My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
B has deteriorated over the last 24 hours. Our hospice nurse called earlier and gave an injection to help his breathing, and she's coming back later to set up the syringe driver. She said it will probably be a couple of days.
Hello ladies (hope I don't offend anyone by missing out any men who might use the thread!) Thank you for making me feel welcome. Gayle, I was so pleased to see the news about Dot's new grandson. I haven't heard from her for so long and often think of her and wonder how Roger is doing.
Diane, I hope that life is made a bit easier for you now you have the electric bed for your husband. Although I try not to dwell on the future too much, I do often wonder how we will manage if Paul becomes too ill to be able to get up the stairs to our bedroom. I have often seen others mention having hospital beds brought in and I assume that for many people, they will have to be downstairs so presumably that means the carer having to sleep downstairs too.
The balloon flight that was arranged for this morning was cancelled yet again. When I rang for the decision last night they said that low cloud was forecast and they won't fly if it is misty, rainy or windy. As one of my friends commented, with the typical weather in the UK that won;t leave many days when the flights will actually happen! We now have a new date of 16th April. Maybe next time...
Well I'd better carry on with some work so I shall wish you all as good as weekend as is possible and hope your loved ones are comfortable.
Carrie, so sorry to hear your sad news, I will pray for both you and B and hope for a miracle for you too (((((((((big hugs))))))) to you both. xxxxxxxx
Emma, hope Mathew is comfortable and you are bearing up ok ((((((((((((((((bighugs))))))))))))))))) to you both and the kids too. xxxxxxx
Sue, lets hope that you get your balloon ride next time, its something I would love to try the closest I have ever got was paragliding in barbadoes, it was fantastic. xxxxxxx
Lesley and Becca, hope your dads are doing well, Lesley hope Amber is enjoying her birthday, bet you are spoiling her, she deserves it eh. xxx
Julie, hope Stephens appetite is a bit better. xxx
Lorraine, hope your mum is doing better, speak to you soon. xxxx
Joan, hope you and David are both ok. xxx
Diane, hope the new bed is making things easier for you. xxx
Rona, hope your enjoying your time with your dad, is it this weekend you home? xxx
Debbie, hope all is ok with your dad and the family.xxx
Jay, sending you love. xxx
Christie, Reland, CH, Sallye and everyone else sending you love.
I got a telephone from a friend this morning who told me to buy the sun newspaper, a paper I would never buy, but I got if any of you get a chance get a copy there is a story about a guy who has beat cancer 8 times including 4 fatel brain tumours, it cheered me up so much.
just got a text from Emma, Mathew is going into the hospice to get medicine sorted so that he is more stable, lets hope he is home soon with Emma and the girls.
Phew - my mum has got through 2 days of chemo without the horrendous sickness of Day 1, so hopefully that's sorted at least.
Carrie and Emma - thinkingof you both. Friends keep saying to me - you're being so strong, but it's not that at all really - you just have to be cope don't you. But I am thinking of you both lots.
Someone else said they were arranging a 4 year old birthday party (sorry can't work out how to look at back pages now that I've started writing, so can't remember your name). I too am arranging a Princesses and Knights party for my 4 year old tomorrow. My mum had set herself the target of coming up for the afternoon - it would have been her first long trip away from home (an hour and 20 minutes) since diagnosis, but I don't think she should come. Firstly she's had a hell of a week with starting the RT and the sickness with the chemo, sitting on an uncomfortable village hall chair for 2 hours watching a load of 3 and 4 year olds screaming doesn't sound appealing to anyone, and I will be completely paranoid if any of them have colds or runny noses. But as she said last night when I suggested that we went down on Sunday as usual instead " But it's what I've been looking forward to". I'll speak to her tonight and make a decision then.
Off to make fairy cakes and wrap up pass-the-parcel....
Beautiful day here but a bit at odds with whats going on in so many lives
Gayle- glad Martins feeling better - don't let him overdo it tho it must be lovely to see him wanting to be busy xxx
Carrie- felt so sad to read your post on such a sunny day - I sometimes think the great powers that be get the back-drop wrong when they're setting scenes in our lives - It's a bit too lovely outside - Hope B is peaceful and especially that you are ok too - we find our soul-mates so simply and innocently in life and never think that we will have to lose them just a little further along the road like this .. Love's eternal tho' and so is hope
Be thinking of you xxx
Thinking too of Emma and Matthew today and sending much love to you all xxxx
hello every one. just a quick note to say that i hope everyone is Ok and your all in my thoughts. Kep strong your all amazing and we can do this!! sending lots of love to you all x x x x x x
Hi all you lovely peeps, what a glorious day to be alive, then Sh*t you remember and it's back to the daily routine, how I wish I could turn the clock back for us all or fast freeze now and only thaw out when a cure is found, oh how amazing that would be.
Anyway, enough of my rambling and no I haven't been hitting the vino (not yet anyway) it's just my way of coping.
Rob was at the MacMillan clinic for 4hrs today, so I went for a long drive on my own with the music blaring and singing along, visited my Mum and had a ball, even the nurses at the cllinic commented on how relaxed I looked, oh what sunshine can do for you, Gayle you must have felt like that on holiday,everything looks better in the sun (especially with a sangria by your side)!
Sorry to hear a few of you are not doing so well, and believe me I am thinking of you all, you may be able to forget for a few hours but it all comes flooding back too soon. Love and oh soooo many good wishes are coming your way Emma & Matthew, Carrie & B and anyone else who needs them. take care, xx
I still don't know everyone's name so I send greetings & love to all who use this site, cause it you are hear you are suffering as we all are. xx
