My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Izzy, glad your husband is a little better hope he is home with you soon send some of your snow down here.
Emma glad Mathew is tolerating the new drugs thats a good sign, when Martin is on the chemo he sleeps so much more, Is Mathew still working through his treatment.
Karen sorry to hear about your mother, when Martin first went to the hospital with headaches before diagnoses he was given dex intravienes sorry about spelling and it did help drastically hopefully it will with your mother too.
Lesley glad your dads talk with Alister helped him, he is such a nice guy, I like him alot, hope you are ok, like you I had 1 small bottle of bacardi breezer, that was enough then it was some coke did not have a drink on friday either my body will be having withdrawl symtoms lol.
Charliebigrave sorry that you have had to join another family having to live with horrible illness, you will find lots of support and friends here.
Joan, hope things are better for you and David and you are feeling better thinking about you.
Had a fairly quiet weekend other than going to Glasgow yesterday, going to take Martine to her friends for a couple of hours and have a nice relaxing sunday I hope, love to you all
Aaaaaargggggg!!!!!!!!!! My car won't start. It's quite a while since I drove it, went to check it was ok and the battery is flat. I'll have to call the RAC out tomorrow, A small thing i know in the scheme of things but bl**dy annoying. Especially a B kept saying to me I shoud check it to make sure it's ok. I haven't told him that it's not.
Also, why when i am starting to relax and wind down in the evening does B suggest that I should do something like check the household accounts. I would like to say I'll do it tomorrow, but then he gets cross and says things will get in a mess and it will be more difficult to sort them out. AAAAAAAAAAAAARRRRRRRRRGGGGGGGGGGGG!!
Moan over.
Just checking in with everyone. Hope you had a relaxing day today Gayle. I love your picture of martin showing off his car. It reminds me of when my dad got his Merc. He was so pleased with it.
Izzy, I hope things are ok with you. Take care when you're driving it sounds horrible where you are.
Hope everything is ok with the rest of you. It's B's last RT treatment tomorrow, so I am wondering how he will be over the next few weeks.
sounds like your having a rough time we have couple of cars Martin is forever reminding me to keep starting them so that the batteries will stay charged but I am forever forgetting, you should get a set of jump leads they come in handy. Your last day of radio you will miss it for a while, wonder what to do with your days, if your like me more time to spend on here, hope your well. We are getting alot of snow today and night I am so glad I love it, Martin says he cant be bothered with it but he nevergoes out in it.
Hope everyone else is okay too, Izzy hows your husband.
Celebrations my hubby is home after a big dilema yes he can go home no he cant I really was beginning to think that it was going to be another night without him but I have got him home he is still very weak but infections are clearing he is still on a high dose of anti-biotics what a joy to have him home thanks for all your well wishes they have been appreciated dearly. I shall speak to you all later rather busy at the moment taking care of hubby hope everybody is good.
Evening all Sitting in my office listening to the rain pounding down on the roof! its been really wet here today and the snow has all gone.
Izzy fantastic news - so pleased hubby is home and feeling better - take care of one another x
Carrie - I know exactly what you mean - I have the same thing going on here too!!! FRUSTRAITING
Gayle - So far so good still matthew seems to be ok on the drugs - he is still working of course up at 6am out at 7am and back at 5pm - how the hell he has managed to do it the entire time I have no idea but admire him for his guts and determination - think this is what has kept him going for so long. it does scare me though as acording to the docs he shouldnt be able to do what he's doing! i phone him 3 times a day to make sure he is ok and he gets so annoyed with me! The drugs he is on are Pazopanib & Lapatinib - 1 stops blood supply to tumour and 1 stops the cancer signals getting to the tumour - or so I belive! We have a scan end of feb and get the results 5th march - this will then tell us if its doing anything. he does seem more tired and paler since he started taking the drugs in fact he is in bed now having a sleep, pleased to report that his blood pressure is ok - I HOPE never done it before but they have lent us a flash electric machine to take it!!! - hope alls ok with you?
Lesley, Joan, Charlie, CH, Karen - and anyone else I have missed - SORRY if I have! hope your all doing ok too?
What a day! We managed to get the car sorted. A new battery, £100.00, but it’s the first time we’ve had to change a battery and the car is nearly ten years old so we’re not doing too badly. It just doesn’t get driven much at the moment.
B has developed a chesty cough, which along with a bad back meant that it took a carer, one of our sons and me about an hour to get him up and dressed this morning. His back hurt so much it was really difficult to get him out of bed. He travels to RT by ambulance on a stretcher so he can be transferred more easily on to the treatment table. This is fine except that it meant his back hurt a lot when he had to get out of the ambulance. He needed gas and air in the end! We told him he was being a drama queen because it was the last time he was going for treatment. He’s now back in his comfy chair, tired but ok but it will be another night for me on the sofa while he sleeps in the chair. I know some people may this the idea is awful, but on Wednesday B will be going in to our local hospice for a while so they can try and sort out his back and generally make him feel more comfortable. Our local community nurse said she was surprised he didn’t need to come in before now.
Izzy – so pleased to hear that your hubby is now back home with you. One of the saddest things we find with the way B’s tumour has affected him is that he can’t cuddle me in bed. He has to lie on his back and can’t move and the pillow raiser that he uses means he lays about six inches above my level (if you can imagine that?) and it also means I can’t get too close to him.
Gayle – I’ve been looking for the jump leads and now found them. I’ve put them in the back of the car. Enjoy the snow. We have just got heavy rain down here now. At least now B’s RT has finished we don’t need to go anywhere tomorrow so we can stay inside warm and dry.
Emma – really pleased to hear everything is going so well with you. It constantly amazes me when I read of Matthew still going to work. They can be so tough and determined sometimes can’t they.
Hope everyone else is ok and not too wet or snowy.
Izzy, glad your husband got home from the hospital, you will feel much better having him there with you, hope he is alot better.
Emma, good to hear Mathew is doing well with the new meds, he is a miracle still going to work with all that treatment long may it continue.
Carrie, glad you have got the car up and running again, sorry your husband was poorly today, at least you can both rest tomorrow hope your weather improves.
Lesley, lets hope we get more snow eh.
Joan, Karen and everyone else hope your all well, I am off to bed now we go to the beatson tomorrow for round 4 of tmz, goodnight everyone.
Just back in from the hospital, its such a long day, I am very tired so Martin is alot more tired than me as you can imagine, first of all could not get a parking space had to park at hospital entrance take Martin into the clinic, then come back out and circle about for 45 min until eventually someone left, then we sat and waited for wht seemed like hours and saw Dr Stefan for 5 mins, then sat in the pharmacy for hours waiting on chemo its really frustrating, off to make the dinner now, hope you are all well.
izzy - Glad to hear your hubby is home, you must be so relieved to have him back - hope he's continuing to improve?
Gayle, is that Martin's 4th round of chemo? what a long day for a short consultation. Hope your all resting up. Have a wee question on diabetes to ask you...do you think a high dose of dex would put blood sugar levels up? Ever since my dad was put back up to 6mgs from 3mgs a few weeks ago (after his dysphasia and chest infection episode) when his blood is tested its always high. I think he probably needs his Glicizide tabs increased to combat the dex.....but who am I? Im certainly no medic but just seems to make sense! probably best phone diabetic clinic tomorrow.
Carrie - car trouble is so annoying - ive just paid £450 for my car failing its MOT - my car isnt even worth much more than that - BAH!
Emma - your hubby still amazes me....just brilliant - this could be the trial with amazing results
Izzy – I’m pleased that you have your husand back with you and I hope that everything is OK.
Gayle – I know what you mean about the frustration of hospital parking. It’s horrendous, of course they want people to travel by other more eco-friendly means but they don’r seem to realise that it’s just not possible with some illnesses. Even with Mum’s arthritis we weren’t able to as it was so uncomfortable for her. As for what she’s got now, there’s no way I’d let her travel on public transport.
Carrie – If it helps, give the car car a kick (the tyre, of course), I have in the past and although it didn’t make the car work any better, it was a good release for me!
Emma - I didn’t know your husband was still working, he sounds absolutely amazing. Long may he continue.
Unfortunately, I don’t have good news from my end. Mum is still in hospital and is bedridden, she can’t talk very well and gets frustrated if she can’t find the words to say. She is also unable to feed herself or drink without assistance. At the moment, they’re treating her with Dex and an antibiotic as tests show that she’s got an infection. I have to say, I've lost it quite a few times over the last couple of days and I’m finding it hard to stay positive. We have a ‘Big C Centre’ at the hospital so I popped in there today just to have someone to talk to face to face. I also picked up quite a bit of information, as they don’t think that Mum will return totally to being her independent self and may need help when she does finally come out. I know that she won’t like that. Sorry to be on such a downer but this all seems to have happened so fast.
