My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Just watched the evening news with Martin, main headline Ted Kennedy dies of brain cancer, god I didnt want Martin to see this as he still doesnt know prognosis, I find myself having to lie again and tell Martin its a different thing completely that you have and you will be fine, I hate telling him lies but knowing the truth would kill him and he has already asked me not to tell him anything that I know. RIP Senetar Kennedy.
dear gayle sorry to intrude but for what it's worth I think you're doing exactly the right thing - little white lies can bring peace of mind to Martin. My husband was just the same. It's hard, but i've never regretted it.
sending you and tour lovely family all good wishes sue x
Dear Gayle, We too watched the news of Ted Kennedy. My husband knows he has the same kind of tumour and also his prognosis. It was such a blow to him. He starts his 6th cycle of chemo tomorrow and is such a fighter. Take care. You are always such an inspiration to all. x x
hi all ,i also was watching the news and it made me think of my brother...he is 39 and had his third tumor debulked last monday.The first being a grade three then the other two surgeries was for grade 4s...he has been battling this horrible desease for two years now,its very hard as he is very sharp with me at the moment and i dont know how to handle it,i do know it is common for mood changes.I would also like to know how many surgeries can you actually have,the last surgery they was going to put the wafers in (which release some sort of chemo)but they couldnt due to weeping.i also would like to know the prognosis as my parents seem to think he is going to go on for years,will someone please tell me what they know......many thanks....xxxxxxxxx marnie xxxxx
gayle i would just like to say i think your a very strong and brave woman,and too all the other people on here,i have gone through every single post on here just to educate myself on my bruvs illness,and it is nice to know there is support out there.Im sitting here havnt slept properly for ages with a drink in tow just to take the edge off.At the moment im very tearfull cant believe this is happening,im so worried....my brothers two young daughters 13 and 16 are not aware of how bad it really is,do you think they should be told?? im just soooooooooo lost right now.I probably sound selfish .xxxxxxxxxxxxxx marnie xxxxxxxxxxxxxxxx
Gayle, sorry to read how low you are at the minute, my hubby's a bit like Martin feeling insecure when i'm at work i think the seizures scare him more than anything at the minute but thankfully i'm only 2 minutes drive away if he needs me. I don't mind the mornings at work because i know he is in bed until i go home for lunch, but going back to work after lunch breaks my heart because i know how fed up he is just lying watching telly all afternoon with the dog. He was in a lot better mood last night thankfully and is now looking forward to our weekend away ( 2 nights away from the in-laws can't wait !!) Hope your feeling a bit better today but i know it must be hard keep strong and love to you both.
Susan and ying and Yang, thanks very much for your kind words I know what you mean about small white lies but I still dont like doing it but I try my hardest to protect Martin from the truth, Ying & Yang it must have been awful watching the artical about Ted Kennedy with your husband knowing the prognosis. xx
Mollie, glad your husband is feeling a little better, hopefully your break away will be great for you both. I have been looking to book a wee break for us, although we go every week to our caravan its not really a break it the norm, M & M love it but it kind of boars me maybe just the way I am feeling at the moment, I found a nice little break yesterday on the net a 3 day mini cruise to amsterdam in october and I think we might be going heres hoping, it would be something to look forward to. xx
Marnie, your brother sounds like a real fighter 3rd debaulk, is he still on chemo? Prognosis is so different from person to person, thats why the docs cant really give a straight answer, its all down to tumour position, the growth rate and how each indivual responds to treatment your brother seems to be doing really well, there are people who live for many many years with this tumour, although most are not so lucky, just keep hoping and praying your brother remains the way he is. As for his children its up to your family how you want to deal with it, our daughter Martine is coming up on 10 she knows her dad is very sick and he always will be, at the beginning we told her, her dad was really ill, every scan we tell her the truth so far its been pretty easy, thats all she knows as time goes on we will tell her things as she needs to know not before, others are very different anf tell their children full prognosis from the begininning, for me this is not needed as it would just be longer for the kids to worry. xxx
Jo, hope things are ok with you David and Reynard. xx
Dot, hope things are continueing to get better for you and Rodger, Martin been out all morning at his charity shops, back home with more junk lol at least he is happy :) that makes me happy although I get so bloody aggitated at times. xxx
DianneJ, how is Hannah. xxx
Rona, are you settled in your new home yet, we havent heard from you in a long time. xxx
Christie, love to to you. xxx
Eileen, love to you and Rob, hope things are ok with you both. xx
Lorraine, Lesley, Becca, Diane,Carrie, Emma, Jay, Julie and everyone else love to you all.
Gayle, Amsterdam how lovely hope all goes to plan and you get to go its just nice to get away from the normal day to day run of things, like you say the boring stuff!! Hubby was actually wanting us to have a break in either Amsterdam or Bruges in September but since his last seizure he'd rather stay in England for the time being. Take careXX
hey gayle he had his op monday so should be starting back up with the chemo....his tumor is front left...he,s very depressed at the moment,but thats understandable ...my brothers daughters keep asking me will dad be okay,and is that it now he,s had his op is he back to normal now...so its an awkward one...but hey got to keep on..xxxx
hey gayle my brother starts his chemo tomorrow,i hope he isnt as sick as he was last time though....my dad just phoned me to say my brother had a letter from the hospital to say everything went well with the surgery,and that they got 100% out....?? thats not possible is it...i know there trying to be possitive though.The tumor possition is the front left (speech side).I hope that you martin and martine are fine...xx marnie xx
sending you and tour lovely family all good wishes
