My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hello everyone, hope its been a peacefull weekend for you all,
Stephens funeral is on Tuesday, all arrangements have finally been sorted, I am wearing red, it was stephens favourite colour being a Man Utd supporter, I hope the sun shines for him as he loved sitting outside in fact the last couple of days we couldnt keep him inside even if it was pouring down.
I will post to you all individually after the funeral, I am just struggling a bit at the moment. Love to all Julie xxxx
dear Julie just to say that I hope all goes as well as it can on Tuesday. You will be in my thoughts and prayers. I wore red to my husband's funeral as well. Sue x
hello everyone im new to this site but felt that i needed to be close to people who understand the hurt that cancer does to everyone that it affects im a proud auntie to the bravest little girl i have ever met my gorgeous Amy~lou, she has been fighting a are form of cancer for the past 5 years shes 12 now and was diagnosed when she was 7 we were told the beginning of this year that amy cant fight this battle to win any more and its been the most heartbreaking few months of all our lives watching her go from this really active crazy and gorgeous 12 year old to a frail little girl in constant pain who we long to see smile just one more day seeing the sadness in her eyes and the fear tares us all apart and not being able to help her when she cries out in pain is just the hardest thing to have to sit back and watch .my sister dawn and amys dad paul are struggling so much with whats happening and i am so worried for both of them in march when we were told that amys treatment was no longer working was such a sad day for all of us and to make things even more unfair the day before we were told i found out i was pregnant and the 1st person i told was my amy, she was so excited and txt me back saying she wanted to be my birthing partner and i was so happy then in the matter of a day my world fell apart because i knew that she was not going to be here in november to meet her baby cousin. i had a 3D scan done the other wek and we got a dvd of the baby so amy could see the baby and before we went i said to amy keep your fingers crossed for a boy, when we had the scan we were told it was a girl and when we rang amy to tell her she said GOOD i was praying for a girl i feel so sad that she wont get to meet her in person xxxx
My name is Leigh (age 26) Married Dad of 2 (girl age 3 years 11 months – boy age 1 year 7 months –and a Baby due December).
On the 14th of May I was diagnosed with a Brain Tumor behind my right eye.
On the 20th of May I had a operation to remove as much as they could and it was found to be a “anaplastic oligodendroglioma grade 3”.
I am currently half way through a 6 week course of Radiotherapy.
At first I found it a great shock and really did not know what to do.
Currently I find I have highs and lows.
What really gets me the most to think of my children losing their Dad, I am scared of missing so much of their life and them growing up.
My daughter is a real daddy’s girl and every time she does something sweet I just can’t help but to go and have a cry!
She thinks that I had just bumped my head and that’s why I have got a scare.
My Wife and Friends have been great! I have been keeping busy, Still doing some work and been going out lots as I find that help me forget about things.
Hi all. Have'nt posted for a while, been so busy trying to finish plans for wedding and arranging visits of family and friends who have'nt seent Jamie for a while. Jamie had scan yesterday and will get results on Friday, sick feeling permanently in stomach this week, just want Friday to be here now so we can get it over and done with. Jamie seems ok, did say he had been getting a few twinges in his head so I have been trying to reassure him that its things moving about after op or bit of swelling, god I hope it is. Keep trying to keep tabs on his speech, reading writing to see if there's been any deteriation there but i dont think so. Had my hen night last sat, just a meal and drinks no stripper thank god! Jamie is going greyhound racing saturday, i think he really would of loved to of gone away somewhere but we were'nt sure how tired he might be so didnt want to book anything up incase he wasnt up to it. Then its the wedding a week on Friday, i know it will be a bit of a teary day for all but dont want that to over shadow having a good time. We went to a wedding reception 2 weeks ago of some close friends and must admit had a few tears about how unfair everything is. One couple with the whole of their lives together ahead of them, children etc, then us cant look forward to a lengthy future together and just stuck on a ticking time bomb, so unfair! Anyhoo, hope everyone is as well as can be expected. So sorry to hear Julie's sad news. Take care.x
Hi Laura, hope everything goes well on Friday with scan results. Myself and hubby got married in May after 16 years together, and i have to admit i thought the same as you not wanting the sadness and tears to overshadow the day. I needed have worried as everyone had a brilliant day and thankfully didn't mention the illness to hubby much at all. Make the most of every minute because the day goes by far too quickly. Love to you all XX
Leigh/Victoria, sorry you find yourselves on this site but you do get great support and advice. Perhaps if you read some of the profiles it will give you an idea of different circumstancies, but please remember everyone's experience is different. Take care
Julie - I was thinking of you yesterday. I hope it all went well (well, as well as can be expected- you know what I mean I hope!)
Laura Lou - thinking of you too. I'm sure your wedding day will be beautiful.
I have recently posted on WTB which is really busy at the moment. My mum has developed shingles long the line of her scar on her head. She has been in so much pain with it. Yesterday it started spreading down her neck and into her right arm. It just seems so unfair! It was 6 months ago yesterday taht she had her operation - what a year so far.
Julie, (((bighugs)))) to you, hopefully everything went well for you yesterday, been thinking of you loads love to you and all your family. xxxx
Lorraine, glad you and Scott had a nice holiday, you both deserve it so much. xxx
Lesley, hopefully you are all ok love to you your mum and the the rest of your family. xxx
Laura, good luck for friday with the results it is so nerve wracking waiting on the results, also good luck with your wedding. xxx
Leigh and Victoria so sorry that you both find yourself here, hopefully you will get lots of support on here xxx
Mollie, hope your ok. xx
Sallye, sorry your mum now has the shingles, as if she hasnt been through enough. xx
Dot, goodluck for tomorrow let me know how it goes. xxx
Rona, are you back in the UK yet? x
Joan, how are you nd David long time since we heard from you. xx
Dianne, hope Hannah is well. xx
Christie, hope your well too. xx
CH hope B is well after his op. xx
Diane, Carrie, Becca, Emma, Jay and everyone love to you all, things ok here still got work probs (long Story) Martin very well but still sore knees and joints and is pretty paranoid but getting there, Martine is upset because its back to school on monday and we will be home from the caravan.
