Surviving Oesophageal Cancer

Morning

Still no real change :-(  They are doing tracheostomy today so maybe that will start to help, I just dont know.  It seems to be dragging on and on when originally he was 'just being put on the ventilator to give him a little rest' - that was 9 days ago now.  Just been to drs to get myself a sick note although feel guilty as anything as not really in my nature.  Oh well heres hopeful for a better week.

Very best wishes to all of you out there fighting your own battles.  Be strong, be positive.

Hugs xx

Hi Bacardy

The fact that he wants to wake up is good because he has strength and fight within him, doing the tracheotomy is in my view a very good move, if suction is needed every time the ventilator is removed and during his coming around then he will be in distress, take the breathing obstruction out of the way using this procedure and I think this will help a great deal.

This is only my non-qualified opinion but it makes good sense to me.

Still willing you both well,

Steve

 x

Steve's comment sounds right, trachy will make things easier and save his strength.  Hoping all goes well.

@ Crystal - yep temp normal again and thin man pleased with progress - home soon!

xxx

Hi Bacardi

I hope the tracheostomy procedure went ok and he’s responding in the way the doctors hoped.  Let’s hope that it enables his recovery very soon.  The last thing you need to worry about is guilt for having time off.  I’m sure your employers understand that you can hardly do otherwise whilst your husband is very ill in Intensive Care.  You should take as long as you need, but fingers crossed that he will improve very, very soon.

Crystal xx

Hi Maisiebird

I’m very pleased to hear that Shaun’s temp is back to normal and that he’ll be home soon.  Don’t forget to get one of those V shaped pillows as they provide really good support for the surgical scars.  Catch up later.

Crystal xx

Hi Sue

I hope all is well and that Deter is feeling as well as can be.  He’s such an inspiration with all the many treatments he’s had, and it goes to show just what can be achieved by resilience and determination.

Crystal xx

Hi Steve

You’re in my thoughts as you wait for results.  Hope you’re feeling good.

Crystal xx

Morning Crystal

He's really well thank you and has just finished a work out on his patchwork body before driving up to London to work.

Thank you so much for being such a rock to everyone on 'our site'. It's a great comfort knowing you are there and you always manage to find the right words and give sound advice.  I hope you are well.  How are you?

Thinking of you and all the 'others'

Sue xxx

Hoorah!!! Had the trach yesterday and they werent going to wake him until today but then the dr came and said switch off the sedation!  He came round and tried to smile at me!!  Waaah!!!  His children both came and we all spoke to him although he was still very woozy.  Just rung and hes had a good night and is communicating with the thumbs up and has been asking for me (well mouthing the words as obviously he cant talk!). Thats set me off crying again!  He doesnt remember us being there last night so will go over shortly with his daughter so he knows we are there.  Praying that this is the turning point!  Must be so strange waking up after such a long sleep.

Wishing all of you reading this love, hugs and all the very best  xxxxx

Fab news - got to be the turning point.  Shaun can't remember much either of times when he first woke up.  Great day for you.

Shaun home moz - all being well.  Your husband won't be far behind.

xxxxxxxxxxxx