Surviving Oesophageal Cancer

Zoe - I am sorry I had assumed that your son had oesophageal cancer and my advice was given with that in mind.  I should have read your profile first!

However, there might be something useful there.  

Wishing you both the very best of luck.  

Hi Zoe, Ed couldnt tolerate any of the protein drinks, soups or powders either. Even when I tried to smuggle them into mash or soup his body would react straight away. I am not really medical but it seems the body cant digest the protein without the stomach but very slowly learns to adapt and starts to accept things. Ed still has trouble 2 years on with lots of food. We have learnt timimg and portion control so it is going to be a long journey for you and trial and error your only option. My heart breaks for you as I can only imagine the pain of watching your son struggle. People do have lots of experience and advice so , along with your Mac nurse I hope something helps. Meanwhile my thoughts are with you, love leisha xxxx ((((((((((((((((((((((((hug))))))))))))))))))))))))

Hi to you all.

A quick update - Jonathan's eating is improving rapidly.  It is a real sign of the desparation you can feel caring for someone with this cancer when you feel so thoroughly delighted when they manage some Readybrek, a soft boiled egg, some Tuc biscuits with Gentleman's Relish, a small cheese souffle and some tinned mangos with double cream - and this is all topped up with three 'Fortijuice.'

Needless to say, the system is protesting a little.  

No results from the last CT scan done 17th December.  

We are feeling more hopeful than we have done for months.

What a fragile world all of us live in - so easily sent to the heights, and so easily plunged down again.   Keep your fingers crossed for us and divert any bad news from the scan. 

Thinking of you all. 

Hi Grace

Just to let you know I am thinking of you, I really hope the scan results offer some hope. Fragile we may be but without hope we can have nothing, so keep strong and look after yourself.

Steve

Hi Steve

Thank you so much.  Hope is a slippery operator, but what would we do without it?

It fuels the fight. 

Best wishes to you.

Grace

Below is somthing I wrote about hope over on my thread The Demon,

Hope

Within Pandora’s Box hope was locked away from humanity and we were as candles unprotected from the changing fortunes of the wind yet upon the release of hope our fragile flame is able to burn brighter against a fortuitous wind, for what shall become of us if we do not have hope to shine back into the face of fear and adversity as we journey along life’s precarious path, for we may have nothing else to give or receive except the extended hand of hope.

Dear Steve

You put that so very beautifully.   

Thank you.  

(I do think we could have done without the particular evil you and my husband are battling, don't you?)

Grace

You may think this odd but having cancer is not the worst thing that has happened to me, back in 97 I was involved in a really bad car wreck and suffered with post traumatic stress disorder, I could not get my life back together for quite some years, to me there is nothing worse than not being in control of your mind, the difference being back then I felt like I wanted to be dead, but now with the cancer I can at least look the Demon in the eye and give as good as I get.

I think Jonathan may agree with me in that I would rather have this evil disease than watch someone I loved go through it, your other half sounds like a fighter to me, but so are you for standing by him. I am not about to roll over any time soon not while I still have the fight.

Good night,

Steve  

Hi Grace

Glad to hear that Jonathan is eating better ,hope he continues to improve  obviously the treatment has worked well I am so pleased.

Marianne

Hi Grace

So glad that Jonathan continues to make progress.  Hopefully very soon he will graduate to more substantial food and begin to regain weight, but from what you say, he seems to be doing well. xx

Hi Steve

I’m happy to see you posting again as I’ve missed seeing you around the forums.  Thank you for posting the lovely excerpt from your Demon thread to remind us of Hope.  Today, I light a candle to Hope, for all of us.  Take good care. xx

Hoping everyone’s day is as good as it possibly can be.

Peace and Love Crystal xx