Richard

This is not the news you or your young family need to hear, I hope you can stay strong in these uncertain times, I have not heard of the type of chemo you are having but I do hope it does not wreck your family plans over Christmas.

I wish you and your loved ones all the best and echo what Crystal has said that we will be here if you need us.

Best Wishes,

Steve

Richard im sorry you have this to deal with but keep fighting x

Latest on Roy is that they are hopefully going to start chemo within the next few weeks to alliviate some of the symptoms.  I dont know much about chemo and its side effects and i know there are different types of chemo.  All i know is that he will have it in a vein one day and then take tablets and this is repeated every 3 weeks.  How bad will it hit him?  He looks fragile now - he is only 9.5 stone but was 16 stone when diagnosed in April.  Will chemo make him worse? How bad are the side effects?

Hi my husband has ECX chemo which is infusion into the vein then he has tablets for 21 days  then it is repeated again he has had 4 courses and so far has had no side effects at all apart from hair loss hopefully Roy will handle it well .My husband is having chemo as his tumour is inoperable but it is obviously working a he can now eat most foods again.I will keep my fingers crossed for Roy,thinking of you both. Marianne

Thank you for that info - hopefully Roy wont suffer any side effects and it will be good if it means he can eat - glad things are going well for your husband x

Hello All,

richard im sorry for your news, hopefully the chemo wont be too bad for you especially over xmas.

gg1630 hopefully roy handels the chemo well, if he gets sick remember to try differnt anti sickness tablets, gerald had his changed a few times to get ones to suit him.

Crystal how are you? i hope you have been well. i read about your mum im so sorry.

ive not been on the site for a while  so im not sure if you remember me or Gerald but i need some help, Gerald has been doing fantastic he is even working full time now but he is having some new problems he gets dumping after eating but over the last few weeks he has become tired (his iron levels are normal) and breathless but what has become more worrying is that fact he is having trouble swallowing again he says it getting stuck he is often running of to cough up, its very much reminding us of when it all started back in april so i was just wondering if any one else had this? we all no the chances of this coming back so dont worry about trying to sugar coating any thing

but Two things Gerald has got are drinks one is called calogen extra its just come out, you only need to drink 30mls 3 times aday its got  500 cal per 30mls gerald says its brillent good for helping keep the weight up. the other if called fortisip compact its got 300 cal per 125mls and they dont taste to bad either unlike the milk shakes he had before they are perfect if you cant face food they are practicly gone in one mouth full

hope all is well or as good as it can be

take care all

Li

Hi Li

Nice to hear from you again, I am 19 months post op and I still have trouble swallowing which causes coughing, he needs to speak to his specialist as sometimes the scar tissue thickens up causing these difficulties. I certainly would not worry too much at this stage as many of us here still have similar symptoms including dumping, it sounds otherwise Gerald is doing well with his recovery which is good thing to hear.

Take care,

Steve

thanks for replying steve the swallow is getting worse he has had problems with meat since day 1 post op but now its most foods he has his six month chrck on the 18th so hopefully we will get some answers then. he had a lung function test last week on his sarcoidosis and that was all clear we are also hoping its scar tissue nothing more serious but we all know how unpridictable this horrid disese is

any way hope your well steve

take care all

li  

Hi Li

From what you describe, and considering the time-frame involved, it certainly seems like a post-surgical stricture where the scar tissue thickens as it heals.  An endoscopic dilation generally puts this right so the doctors will look at this when Gerald has his appointment.  Dumping Syndrome is also very common and may last for many months or even longer.  I too suffered from that tiredness and breathlessness some time after the surgery and it was discovered that I needed injections of vitamin B12, which are administered every 12 weeks for the rest of my life.  If the doctors are aware of these symptoms then Gerald will be given blood tests and possibly a few other tests to establish the exact cause of this tiredness.  Anyone of these symptoms is unpleasant and often difficult to cope with, and taken altogether can be very difficult and also worrying.  The six-monthly check-up should be quite thorough and hopefully resolve some of these problems for Gerald and put his mind at rest.  Hope you are well Li.

All the best

Crystal

Good Morning to Everyone xxx

A Very Merry Christmas To You All

May the spirit of Christmas bring you peace,

The gladness of Christmas bring you hope,

The warmth of Christmas bring you love.

Best wishes from

Crystal & Nicu xx

Thank you Crystal.  What a happy pair you look.

I am going to try and attach a photo ....

I give up.  

Lots of love, Grace. xx