Surviving Oesophageal Cancer

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Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.

I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.

Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.

All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.

I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.

All the best

Crystal

  • FormerMember
    FormerMember
    My hero

    John underwent his Ivor Lewis Proceedure Thursday, he went to the theatre a brave and dignified courageous man. After 8 long hours of walking the hospital and drinking gallons of tea he was put in ICU, the machinery and tubes were a bit over whelming, I wish i had seen this ward prior to this time but there he lay my brave hero. First words he said? "I'm still here babe" i tried so hard not to cry and asked him to stay calm and relaxed which he did with such pride. Although aching and in some pain in his right side he seemed fine and i stayed with him for hours just holding his hand and reassuring him. Today he has been sitting in a chair doing his breathing excercises and not complaining even when i can see at times how tired he is. The surgeon has said the operation went very well and that John sailed through it so i'm hoping this means it has not spread as we have been told we will know the results in 2 weeks. All tubes are to be left in place until he has his barium swallow next thursday which hopefully will show it has joined nicely then he can begin on soups etc and start to have the tubes removed. Me? I'm so glad it's over i am aware there can be set backs but am just taking it day by day. Crystal- Again thanks my dear friend, all of you here have been a mountain of support, i will keep you all informed of Johns journey. John- I love you darling and am so very very proud of you, you are MY HERO

    God bless you all
    Sal
    xxxx
  • FormerMember
    FormerMember
    Excellent news Sally, That's my boy !

    Keep us informed.

    Mick
    xx
  • Sally and John - I am so very happy for you both, I must admit to shedding a tear when I read your post. John, grit your teeth and do those breathing exercises, you've done a fantastic job. Sal, you've been so brave and now you can nurse John back to good health.

    Send my very best wishes to John and a great big hug to you both (((((((Sally & John)))))).

    Love and best wishes - Crystal xxx

  • FormerMember
    FormerMember

    Hi Sally
    Fantastic news!! so pleased for your both, now its a matter of john getting his strength up, keep us posted, and you remember to look after yourself too

    everything crossed for the best possible result in 2 weeks, we are all behind you both.

    love Anne & Ted xxx






  • FormerMember
    FormerMember
    Thinking of you both and wishing you all the luck in the world.
    regards
    Debbiex
  • FormerMember
    FormerMember
    Sally, not spoken to you before but just wanted to say fantastic news re your hubbys operation - hope hes up and about really soon xxx
  • FormerMember
    FormerMember
    Hi Sally, glad to hear that the operation went well. My husband had his op in July and the only bit of advice that I can give you is to take one day at a time. Thinking about you both
    Jo x
  • FormerMember
    FormerMember

    Hi everyone

    Just thought I would drop a line or two to tell you of Johns progress. We are already on day 6 and I cannot believe how quickly the time has passed, I thought it would go much slower. John is making good progress, is now doing two walks a day and has straightened up when walking. The stomach drain and a few tubes have been removed (I think it was the blood pressure and temperature as they are doing these manually now) there is such a lot to absorb. The main issue is the barium swallow on Thursday to see that the wound has joined properly and he can begin eating. He is in very good spirits and the staff are really pleased with his progress. I got there yesterday to find him in tears, my stomach dropped as I thought he had been given negative news but it turns out a priest had just been to a lady opposite as she had taken a turn for the worst, I said to John we prepare ourselves as best we can for the treatment and operation and the stay in hospital although we forget recovery is in intensive care and not an ordinary recovery ward and scenes like this can be quite upsetting. I was quite emotional on Sunday worried I was breaking but I think it was just the relief of it all being over, it's constant phone calls and enquiries from ppl and although this sounds really harsh and selfish at times I just want to be left alone. One of the nurses was saying not long ago the Ivor Lewis was being done once or twice a month, now it is three to four times a week, this awful disease is on the increase. I am coping in the fact I think to myself it is not each day I am without him but a day nearer to him coming home, the house feels empty without him. Although not out of the woods yet I also feel guilty for the people that haven't come as far as John with this condition. Again I thank you all for your kind wishes, support and really helpfull advice.
    my love always
    Sal
    xxxxxxx

  • Sally thank you so much for updating us as I know you have your hands full. I also know that your news gives such a lot of hope to others. As you mentioned, this particular cancer was considered fairly rare but now there are so many new cases that I'm shocked by the numbers cropping up. Some of these people facing this surgery gain great hope from posts such as yours.

    John is doing really well isn't he and his recovery is going well. Try not to worry about the barium swallow, these docs are so highly skilled and they know what they are doing. When it comes to eating for the first time I asked the docs to remove the feed drip so I could eat by myself. They were at first reluctant but I pressured them and was able to eat toast with no problem.

    I hope all continues to go well for John, I'm sure it will by the sound of it, as the staff are very pleased with him. Once he's home you can relax a little and pamper yourself too.

    I'm so happy for you both Sal. Please keep in touch and let us know when John will be home.

    Love always - Crystal xx



  • FormerMember
    FormerMember

    Hi Sally

    Good to hear that John is continuing to do well, once he starts eating a little he will soon be allowed home. When Ted was diagnosed last August we had never heard of this type of cancer and we thought it to be quite rare, but since joining this site I am amazed at the number of people who have found them selves in this position it does appear that for what ever reason it is definately on the increase. Ted has his op at Bristol and we were told just prior to the op taking place that they carry out about one per week, I'm unsure what area that covers. Hope things continue to improve, keep us posted

    take care love Anne & Ted xxx