Surviving Oesophageal Cancer

  • 1237 replies
  • 7 subscribers
  • 1231245 views

Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.

I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.

Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.

All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.

I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.

All the best

Crystal

  • FormerMember
    FormerMember
    Hi Li and Wendy, and everyone,
    Thanks for your kind words. Haven't had it proved beyond doubt yet so there's always that chance the Prof who read the scan has got it wrong. Next step is to have things confirmed/denied with further scans/whatever
    .
    Mick's great news has made me all the more determined to give it all I've got. There's too much fight left in this more mature (old) salt to let a little sod/monster interfere with my life!!

    I agree with Steve when he says he has "the little sod" to thank for introducing us to you lot out there who have empathy and consideration for others whom you have never met. The average joeblow has no idea of what our loved ones have to contend with during these challenging new adventures. Until of course until it suddenly affects them - thats when this sort of information and caring source becomes so important and life takes on a new meaning. What a shame we have to go through this before we realise it!
    Take care out there.
    Cheers. Ben.
  • FormerMember
    FormerMember

    hi all

    gill has posted a question on my page that i cant answer if any one has the time could you take alook cheers

    its under oesphageal cancer my father in law

    hope all is well or as good as it can be

    take care

    li

  • FormerMember
    FormerMember
    Hi all i think its amazing how everyone stays so possitive on this site but i must say i keep getting days when i feel really sorry for myself and get quite teary is this normal at the stage i`m at ???? x w x
  • FormerMember
    FormerMember
    Hello Wendy, just read your bio.

    We seem to have had similar experiences with no symptoms, 'other' complaints, problems after op etc etc. I see that you are also diabetic as in my son. From what I can gather, my dumping syndrome symptoms are very similar to a hypo so it must be difficult for you to decide which ine it is.

    All I can say is that it does get better. Most of the fight is in your head. It's taken me 4 years to realise that. Don't be scared to pester your team about anything that is bothering you, I'm sure they have dealt with most side affects before.

    Good luck Mate
    Thinking of you,
    Mick
    xx
  • Hi Mick, Ive just read your profile page and now this fantastic news. It is so uplifting to read about what you have been through and have now been given the all clear. It is great to know that there are success stories and this monster does not win every time. Hope you go and celebrate and live life to the full
    Gill x
  • FormerMember
    FormerMember

    Hi Wendy,

    Yep it's quite normal to get teary and angry and sad and mad and all manner of other emotions at this, and any time.

    Not bad from a male and ex sailor ! I can cry at the drop of a hat - just seeing my 4yr old grandson give his Granma a hug, or hearing a bellbird outside our window in the early morning, or seeing my dog look up at me pleading to go for a walk, it's OK.!!

    We found it pretty tough the first few weeks out of hospital though, after all the attention 24/7, monitoring every cough, sniffle or fart - then all of a sudden you are on your own with no ''experts" at hand. It takes a while to regain confidence and trust in the world around you. But most important is to have trust in yourself, - it ain't easy but as each day passes you will find you are able to do a bit more than the day before. I keep a diary and whenever I become a bit disillusioned with my ability (not inability) I look back and am staggered at the progress I've made.

    Whenever I get a bit down to it and in "woe is me" mode I think of the thousands of young people who have the misfortune to end up with life in a wheelchair and think how lucky I am to be able to walk and talk and do every thing for myself . But yes Wendy it is normal to feel down and sorry for yourself and it's OK.

    I remember seeing a motivational movie on salesmanship about 40 years ago and Spike Milligan was one of the motivators and I have never forgotten his comments.
    He said how he had been in the funny farm on occasions for depression and how salespeople were similar to comedians - only as good as your last performance- and as a result often got depressed after a poor show. He described how he went from the "peaks of elation to the valleys of despondency The secret of staying sane is to not get stuck in the valley"
    His words and zany sense of humour have helped me through the years and thankfully have never lingered in the valleys.

    So all the best Wendy it gets better every day from here on.
    Cheers Ben.

  • Hi Wendy
    I do sympathise and know where you’re coming from. There is a certain stage in recovery when everyone starts to doubt themselves and wonders if they’ll ever find any more strength to just continue recovering, let alone to return to full health. It’s very hard trying to regain health isn’t it? So this tends to manifest itself in a number of ways. For many people, like you, it’s going through the tearful stage, for others it displays as anger and for some it leads to a deep depression. Many people just seem to accept it and do ok. It’s all normal and completely understandable, because at some point it hits home that you’ve been mortally threatened and this causes a physical and emotional reaction such as those mentioned. For myself, I had some anger and impatience, tempered with the thought that it was up to me how I approached my recovery. So I watched many hours of comedy because laughing made me feel good. I surrounded myself with good people and ditched those who didn’t know what they were talking about, and I read a lot of uplifting books. I also got outdoors as much as possible, walking in the fields and woods and going to the ballet and theatre. My main aim was to feel good inside, and this showed on the outside and was physically beneficial. I’m not suggesting you do the same, although it wouldn’t hurt, as people have to find their own way through the emotional levels, but places like this forum lend support and people that have had this surgery know exactly what you are talking about. People have told me quite odd things about how they’ve felt after this surgery and so nothing really surprises me now. The main thing to hold in your mind is that it does get absolutely much better. Maybe not like before, not fully, but enough where you can do pretty much anything you did before, you just do it in a different way. Most days now, I feel very happy and bubbly inside, but can’t sustain too much stress. So, my advice to you Wendy would be to know that you are going to get better and to do it in a way that makes you feel good. Look in the mirror, smile and realise that you’re looking great and that you can be what you want to be and do what you set your mind to do (or near enough Lol). Hope you’re not feeling too bad today, and tomorrow will be better.
    Love Crystal xxx

    Hi to All
    It’s a sunny day so a hug to each of you, but I’ve gotta hug and run so I can sit outside in the sun! Have a lovely day. xxxx

  • Hey Ben
    A High Five to you, we’re so on the same wave-length bless you. Love Spike too!
    (((Ben))) xx
  • FormerMember
    FormerMember
    Hi mick your right dumping is similar to a hypo but it seems i can`t have it fully as it is caused partly by a rush of insulin which i dont produce only inject, its very confusing .I dont`t really have a team either they said now the cancer has gone i wont need a macmillan nurse & i have only had 1 post op appt in july & was still a bit too spaced out to ask many questions i`m due back around november but no appt yet . I just feel a bit lost sometimes x w x
  • FormerMember
    FormerMember
    Hi ben you are my inspiration, its good to know grown men cry i just had a weepy half hour with my hubby and like you say the slightest thing sets me off,maybe i am heading for the funny farm ha ha.I do feel guilty when i see other people going through so much and wonder why i got off so lightly. You stay so possitive and your going through a lot that i know i should count my blessings its just hard sometimes I will try your advice to keep smiling!they will wonder what i`ve been up to lol xwx