Surviving Oesophageal Cancer

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Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.

I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.

Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.

All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.

I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.

All the best

Crystal

  • FormerMember
    FormerMember
    Hi Snowdog

    Today is a good day to be alive! You are a wonderful brave man and I feel enriched to know you. You are a strong man and i'm sure that this is just another little hiccup on you long journey.
    I send you lots of ((((hugs)))) and xxxxxxxxxxxx and remember all your friends are here for you.
    lots of love
    jools
    xxxx
  • FormerMember
    FormerMember
    Hi Snowdog.

    Damned rotten news!!! I want you to know that my thoughts and prayers are with you today and in the comming months. I know your spirit is strong but I'm still sending you some extra healing and loving energy..............I have plenty to spare, especially for someone as deserved as you who have taught me many things which have helped me on my own journey. I extend my hand to you, and walk with you when you need me.

    Christine
    (((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))
  • FormerMember
    FormerMember
    Hello Crystal,

    Hope you are feeling better. I can't remember when my last B12 was, I think it was March 27th so I'm due the end of this month. xxx

    So sorry to hear about Woody. My condolences to his family. It seems so cruel that he got through the surgery and then had brain mets.

    Snowdog. I can understand your disappointment but surgery isn't the only way forward. Chemo does work and will be targeting the secondaries as well. If they respond to treatment then an operation may be an option in the future. Keep your chin up mate and keep posting. Fingers crossed and try and stay positive.

    Christine, long time no speak. Glad to hear that you are coping and still in control of your treatment. Good luck mate xxx and best wishes to your mum as well.

    Mick
  • FormerMember
    FormerMember
    Thank you all for the positive vibes, it is help and support from you all that has kept me going over the past 6 months, which I must admit have been amongst the darkest of my life. Thank you does not seem enough.
    Take care all
  • FormerMember
    FormerMember

    Sadly my brave strong husband lost his battle on Sunday. It was very sudden but peaceful. Thank you for all your support and I wish you all the best for your own journeys.

    Gayle x

  • FormerMember
    FormerMember
    Gayle we have not spoken before but I have read your post and your profile and just wanted to pass on my sincere condolences, I hope you have a huge family and friend support network around you and that your little children will mean that you manage to carry on through this heartbreaking time. Good luck I think you are amazing xxxxxxxxxxxxxxxxx
  • FormerMember
    FormerMember

    Gayle

    My heartfelt condolences to you and your boys for your most terrible loss, I will be thinking of you.

  • FormerMember
    FormerMember
    dear Gayle
    So, so sorry to hear about your sad loss.
    My love to you and your family; sending you strength and sincere condolences.
    Sue x
  • Dear Gayle
    I’m so very sad and sorry to hear of your terrible loss. You’ve been absolutely remarkable in your bravery, your lovely caring nature shining out as an inspiration to us all. I hope that you find lots of love and support from your close family and friends, as well as from friends you’ve made here. I know you’ve got two little boys who I’m sure will bring you enormous comfort in the days ahead and ensure that daily life goes on. Please accept my deepest sympathy and know that I’ll be thinking of you. Sending you hugs and strength.
    Love Crystal xx

  • FormerMember
    FormerMember

    Hi Jane, Hi Woody's Girls,

    Have been out of touch for a few weeks and only just caught up with the devestating news. My thoughts are with you and I cannot imagine what you are going through. Both Nick and Woody gave me inspiration. God bless.



    Hi Crystal and others I have overlooked.
    Have been on the Queensland Gold Coast giving Sharon a well earned break. We had a wonderful time with lots of lovely sun saw a few old mates and managed to give Sharon a Business Class ride home to good old NZ as I stacked on an act which had the Captain calling for "is their a doctor or reg nurse on board" and an ambulance was waiting to take me to hospital ED on landing. As she said later "would'nt it have been easier to have simply chatted up the hostess!" Had a CT scan the next day and it turned out I had a kidney stone which was good news - the not so good news is that scan also showed thickening of lower bowel and 3 spots on my lung (the one they collapsed for surgery) so now have to wait for urgent colonoscopy so here we go on another adventure (Sharon isn't so sure she wants to go on this one - I think she is losing her sense of humour)
    Anyway that's a quick update on the state of the Portobello Paradise.

    Remember - there are no bad days -- only good ones -- and some that are better than others.
    Give it all you've got.
    Cheers Ben.