Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.
I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.
Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.
All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.
I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.
All the best
Crystal
Hi all
Nick is doing well but energy levels come and go. Have been rather busy at school and we still have ofsted to look forward to. How are you doing Crystal? and Brumigen? We have a new addition to the family ... a labrador called snow! I must be mad but he is getting us both out and walking on the beach ... well I am the one who takes him running on the park at 6.30am and Nick takes him round the block lunchtime then we both take him to the beach 5pm for a run and play ball. Nick's weight has stabalised and I have lost 4kg. We have spent the weekend gardening as Nick was feeling really well. However he is tired tonight ... so is the dog!
Hi Ben
Would be great to meet up but Nick and I will not be in NZ this year due to his ops. Both my daughters are coming out in July with the eldest daughter's boyfriend and their aunty Fiona. I will miss my fix of paradise this year and Nick says he is looking forward to eating at Saffron in Arrowtown, will have to make it next year. The girls will be in Queenie to do a bit of snowboarding and relaxing in Aspects of beauty, they will be visiting their uncle steven who lives in Auckland, and friends who live in Kirwee. Small world but Fiona's husband (Geoff) has a good buddy from uni who is a doctor in Timaru. Kepp smiling :)
Jane & Nick
Hi Jane and Nick,
Great to hear you are doing so well. Nothing like a dog called Snow to get you going!! I brought my heading dog Trixi from the farm at Lawrence when we moved and she has that "dogability" to give me that look that says -if you want to sit there that''s ok but you would be much better off taking me out for a walk. I'm sure Snow is the same. Take care out there.
Cheers Ben
Hi Crystal,
Hope this share-let finds you fine and with a spring in your step as i see you have not posted for a while and was wondering if everything ok?.I had decided to go to the coast for a while ,so i was not in internet land for a while ,I have tried to stay away from people with the nasties but its not easy to tell who has and who has’nt got them.The sun blessed us for a few days and the rain blessed us for the rest of the time.
Have you been able to increase the range of menu options yet? ,do certain foods have a worse effect than otherstuff?,Going in on Monday to see the plumber so I find out myself ,I would like to discuss the food thing in more depth later but knowing how long it takes me to post ,it may be a lengthy correspondence. P& L Woody xx
Hi Ben
Thanks for the kind words from yourself, your Kiwi location sounds excellent for recoup-can I book in for for R&R? its a bit more frantic around these parts,lots of people and lots of noise …hope all is well…Woody
Hi Woody
It’s good to hear from you, as I know your surgery is on Monday and I was hoping you’d drop by before you go into hospital, on the Sunday I presume. If you want to send me a pm before you go then feel free to do so. Your own profile doesn’t allow anyone to send you a message so it’s good that you’ve posted here. I hope you’re feeling very well and although I know you’re probably a tad anxious, don’t forget that you’ll be in the very best and most experienced hands. Before too long you’ll be posting here asking those diet-related questions. Is there someone that could post and let us know how you’re getting on until you’re fit enough to post for yourself?
If we don’t hear from you before, I wish you good luck and a good and speedy recovery. ((((Hugs to you Woody ))))
Peace and Love
Crystal xx
Hi Jane and Nick
It sounds as though you are so busy Jane, but Nick is doing tremendously well isn’t he? It’s only been 3 months and already he’s gardening and running on the beach, no wonder his energy flags sometimes Lol. Though I do sympathise with the energy drain as I can still relate to that occasionally. How brilliant to have a lovely Labrador called Snow, who will make sure that you keep as fit and healthy as he wants! (Who’s a beautiful, wootiful doggie woggie boy then) Sorry, couldn’t help that, I just love dogs and all animals. Take care and keep in touch, especially about Snow Lol.
Hi Ben
I hope you’re still going great guns and out making hay with your dog Trixi. As Woody, Jane and Nick all say, you have the very best place in which to enjoy the walks in that superb scenery. Hope the physio continues to go well and that your diet has settled down more.
Hi Mick ((((Hugs to you too))))
As for myself, I’m fine, but after reading your stories of your dogs keeping you fit, well when I was in early recovery I could only manage a kitten called Elfie. He’s absolutely adorable, but I don’t quite get the outdoor exercise that you’re getting. Most of it is indoor activity called catch the vase or climb the curtains or shred the wallpaper Lol.
Take good care everyone.
Love Crystal xx
((((Netty)))) Welcome home, and you’re a star for posting here so soon after your surgery. I don’t know how you manage it because I wasn’t fit enough to approach my computer for many weeks, just through tiredness really. You’re doing really well. I didn’t know you’d had pneumonia so that must have been very worrying at the time. But these doctors and nurses in intensive care are amazing aren’t they?
I’m glad that you were able to laugh at our posts and John was an absolute star in keeping us informed of your progress, so a big thanks to John. We shall want to hear all about your hallucinations when you feel up to it. Bizarre aren’t they LOL, and yes, very real at the time.
I imagine right now you’re feeling kind of knocked out and wondering however you’ll cope, and even do the simplest thing without sheer exhaustion taking over. You’ll see that day by day you will accomplish the small things and there will be a compilation of achievements. The main thing is to ride with it, your body has control for now, and it does get better, it really does.
Hi to Woody, good luck and thinking about you.
Hi to Ben, have a good evening Ben, how’s the exercise and eating?
Hi to Jane and Nick, hugs to Snow, go on then, and you Lol.
Hi to(((Mick)))
And anyone looking in, hope your day is a sunny one.
Love Crystal xx
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