Surviving Oesophageal Cancer

I'm not suprised you do not like the pollen. Pollen is the product of the flowers (gametes) which the bee, bird or bug picks up when collecting the nectar. The bees later turn the nectar to  honey. The big therapeutic hype some years back was royal honey, don't hear much about it any more. Honey is nutritious and full of good stuff. Who knows what flowers the pollen came from, melaleuca honey is good stuff but the pollen is rubbish.

I'm so glad - it is taking up room in my freezer and I can now throw it out in good conscience. I felt guilty aobut doing so before!!!  It is hard to know what IS or IS NOT good for you these days!! 

J

Hi Crystal

I hope you are getting used to the new site. Must admit to being quite frustrated with the navigation.

Steve

Hi everyone, it's good to find you all again!

I know I keep harping on about it but we can't understand why it took 9 weeks from diagnosis to start chemo. It's been 3 weeks since his last tests and we can't understand why the delay. He's been so positive and was able to eat until around 4 weeks ago. If only the chemo could have started then.  I feel very bitter about this but I try to push it to the back of my head so that we can concentrate on going forward.

I just keep re-reading your blogs on here as they give me hope that we will come through this.  I know it will get worse before it can get better.  I'd just like to fast-forward please!

Hope tomorrow brings a better day.

Love to you all.  Sarah xx

Being freezing cold is just one of the many side effects of the cancer, so just put on all the heating and the many layers to keep warm. Even if you are sweating yourself. I couldnt believe it in the summer when my husband used to come to have a drinky on a saturday night with jose marionio scarf and hat and gloves to match in our kitchen. In saying all that I would give anything to have all that again. Sign the mac web site if you havent already about keeping  warm with cancer. love jmd xx

Hi Sarah

Sorry to hear that your dad is suffering from some of the more unpleasant side effects of the chemo. Generally, the anti emetics can be changed until one is found that suits your dad and helps control the sickness. As you’ve mentioned, it’s very important that he drinks plenty of fluids whilst undergoing chemo, so you might try Bottle Green Elderflower Cordial (the still variety which is diluted with water, not the sparkly one), which seems to help with the sickness and the metallic taste that chemo induces. Also, ginger is fairly good for nausea and apart from the cordial I personally found the Delmonte ice lolly fruit smoothies the only thing I could eat and enjoy.

As for the nine week wait until commencement of chemo, that’s just about within acceptable limits, sometimes it takes a little less or a bit longer. I was diagnosed in early Feb 2007 and began chemo late April, so a good ten weeks.

I hope your dad can try to focus upon his eventual recovery and see the chemo as a means to that end. It’s hard when that awful sickness won’t stop, but stop it will in time. People recover very quickly once the treatment ends. Get him to do those visualisations I mentioned before as those will help to fix the mind and help to regain some control.

Love and healing thoughts to your dad.

Crystal xx

((((Steve)))) There you are! You weren’t lost, you were just not found Lol. My sense of direction and navigation were never strong points, but at least I knew north from south until I came here. Still, the site seems better now so hopefully the developers won’t turn the map upside down again. Did your thread the Demon survive?

Crystal xx

Hi Lou, just thinking about you and hoping all is well down under, so to speak. Did you have a look at the food synergy we talked about before? It seems to make sense to my mind. Anyway, I hope you’re enjoying the rugby training and keeping as fit as possible.

Hi jmd

Having just read your profile I’m so sorry you lost your husband very recently, but you’re in the right place to find lots of help and support from those who understand exactly what you’re going through right now. It sounds as though you both fought very hard for the right to obtain specific drugs and it’s wonderful that you continue with that positive campaign so that others with rarer cancers might benefit.

Lots of healing hugs to you.

My husband used to be freezing cold all the time too ,, he used to wear lots of thin layers and a thick dressing gown then sit inside a thick sleeping bag with 2 hot water bottles down the front and he would still be cold,, unfortunately this went on for months even when he had a 8 week break, but then started a different chemo and the symptoms were even worse , he had pins and needles in his feet and hands,, he used to try all different squashes and drinks but always fund it very hard to keep up his fluid intake,, i think he was really one of the unlucky ones with the side effects he had all the way through and beyond,, i hope they can sort something out for yr dad soon and that he feels a bit better,, i know its not nice to see someone you love go through so much,, wishing you and him all the best   love linda  x