Hi there Dooker

We’re all pretty tough fighters here, patients and carers, in one way or another, but we know when to be pussy cats too.  Hoping your dad is having a good day today and that you are able to keep his and your own spirits raised.  We’re all here to help if we can so keep posting.

Love and Hugs

Crystal xx    

Hi Steve

Many thanks for your lovely words and it’s nice that you think that there is only one Crystal.  I collect crystals and each one is unique, so you are quite right Lol.

I’m feeling much better thanks, but still have very little energy so I will probably be taking your good advice and resting up a bit.  Also, I have things that I would like to do or achieve this year so won’t be posting quite so much, but I will still be looking in on you all of course and posting now and then.

Have just caught sight of your other post, so will respond to that there.

Love and Hugs

Crystal xx 

Crystal

I feel bad at being so slow to catch up on the news but just to say that it is good to see you back again and I am sorry you were not well.  It did feel odd with you not around.  I hope by now you're feeling much much better and stronger and able to do what you want.

Take care, hugs

Charles

Hi Charles

There’s absolutely no need to feel bad about anything, but thanks for your kind comments. 

I’m feeling much better thanks, the flu and chest infection have cleared up, but some time ago I was diagnosed as having fibromyalgia (fm), which causes general muscular pain and fatigue.  This coupled with the ‘new normal’ since surgery can be a bit debilitating at times.

I hope you’re making good strides forward in your recovery and that you’re not suffering from too many problems with some of the potential side effects.  We're all here to help if needs be. 

Take good care.

Love and Hugs to all here.

Crystal xx

 I wish GOD give u happy life ................

Hi mrbaig

Many thanks for your kind wishes.  Life has been kind in many ways and I’m blessed and grateful for so many things.  I hope that your faith brings you comfort during your sister’s illness and that the doctors will mange to bring the cancer into remission and under control.  Have the doctors told you what stage the cancer is, and what the proposed treatment will be?

You are in my thoughts. 

Love and Hugs

Crystal xx

Aaargh...

Tough times at the moment. I thought we were one of the 'success stories'. My partner Frank was diagnosed with oesophageal cancer back in 2008. Had operation, seemed to be working out well. Making plans for the future.

But... he developed a cough and hoarseness, and now we've learned that he has secondaries in his lungs which seem to have been missed when doing the investigations prior to surgery.

Bad news all round. The surgeon said 'inoperable' and chemotherapy will only arrest the spread and not 'cure'. That was a week last Friday. So we're waiting to hear more about chemo and the options that might be available.

It's been a tough few weeks. He gets down sometimes (and so do I). We've made wills and discussed funeral plans, though we are still trying to retain some hope.

I;m a bit angry about the delay and the medical team missing the signs and absolutely devastated by all the implications. And we still don't have the complete picture.

That's it really. Just needed to vent a little.

Hi Michael

I remember you coming here over two years ago, so I’m so sorry that you find yourself here again and that Frank’s illness has returned.

It’s possible that the secondaries were just too small to see at the time of surgery, so the scans and surgeon just couldn’t pick it up.  It’s something we all think and worry about from time to time in our darker moments, as we are all too well aware that there is a possibility of recurrence.

Having said that, you should never give up hope, as there are many people on this site that are doing very well for a very long time once the cancer is brought under control with chemo and/or radiotherapy.  You’ll find a few of these survivors or their carers in the Gullet (oesophageal) group.

It might be a good idea to talk to Frank’s Mac nurse as she will be the first line of contact and will be very supportive and helpful.  I’d also suggest calling the Oesophageal Patients Association who are excellent in terms of experience, information and support.

http://www.opa.org.uk/

Keep in touch and let us know how you get on.  You’ll be in my thought and sending you and Frank lots of good luck and best wishes.

Love and Hugs

Crystal xx

Hi..Just to let you know update..

.I posted a while ago about my hubby having this awful cough..

He had his Ivor Lewis op in november 2008

Well he still has the cough they say that his stomache is pressing on the lung..and he only has a small bit of eosophigus left so food and drink go over into his lung

Doese  anyone else have these problems??