Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    sleep well!
  • FormerMember
    FormerMember
    Hi Andrew,

    Im Darren. I have been undergoing tests for suspected Hodgkins Lymphoma and have just been given my results from my surgery for biopsoes. It turns out that I have several neck nodes and Lymphnodes that have Secondary cancer caused by a primary of the Thyroid Gland.

    I am waiting for my first meeting with the MDT team in Sheffield. My consultant has explained that they will remove my thyroid and perform a neck dissection (how scary that sounds) to remove the secondary affected bits and bats in my neck.


    My point being I think you have written my current life story. I know exactly what you are saying and am asking the same questions.
    Im a single person and havent slept since the news last Thursday.

    At least I know somebody else has gone through what I am going through now and maybe I not really going crazy.

    Hope everything turns out for you and you continue to get support from your family and friends Im sure you will.

    Good Luck

    Darren
  • FormerMember
    FormerMember
    Hi Darren, if your still awake.
    Sorry to read what your going through at the moment. I expect (hope) the andrew has gone to bed. (If you haven't Andrew - bad boy!)
    So I hope you dont mind me replying to your post.
    Before I came onto this site, I couldn't sleep. I used to stay awake until about 6am, then fall asleep until about 10am - and be tired all during the day. I would sit worrying, feeling scared, crying, cussing. It became a visious circle. Andrew and others on this site have helped me enormously and I feel more relaxed and usually able to cope (we all slip now and then). I know what your thinking! If I'm OK then why am I still up talking to you. It was just that I went out and did quite a bit of walking around today which hurts, so I have been sat in bed since about 6pm, and now not tired. I will make an effort to go to sleep in a minute.
    Anyway, were all here for you, through the ups and the down.
    I know its not usually a 'man thing', but have you tried some meditation CD's, they work for me. If I dont sleep, they help me to relax, but usually I fall asleep during the meditation therapist still wittering on in my ears. Either way, they help.
    I hope you try to sleep a bit tonight - sleep is a good healer, physically and mentally.
    Hope we here from you tomorrow.
    Luv
    Christine. Counting Sheep Meditate
  • FormerMember
    FormerMember
    morning to all of you ...especially you andrew !!!..........beautiful sunny day here and im off to bed as i worked last night , one more to go then three days off ...yippee !!!!

    talking of cars , i drive a silver golf gti and love it , when i was younger i used to have a triumph spitfire ( soft top) and a tr4a, another soft top ............if i could i would have a maserati ...........i love the classic cars im afraid !!!

    one of my disappointments in life is that a few years ago when i was married , my then hubby arranged for me to go rally driving for the day ...........and i broke my wrist 4 days before so never got to do it ..........i let my daughters boyfriend have the pleasure of my present instead ............arent i lovely !!!!

    happy driving andrew , talk to you later .
    suexxxxx
  • FormerMember
    FormerMember

    Darren,

    you won't believe the brilliant piece of writing I just completed before I pressed the wrong butten and then deleted it all by accident - lol.

    You should have read it - pithy, to the point, witty, urbane, full of verisimilitude - actually it was none of these things so please read on and I will try to be of some help.

    On here you are always welcome to join our happy band, we will never criticise you or your choices but we will try and help when you ask for it and sometimes when you don't, we will try to offer our experiences when they are relevant or guide you to others when they are not.

    There will always be someone or somewhere to turn when you need it. as you have already seen from Christine’s post above, there is always usually someone about to just talk to you.

    I started this thread because I was so low I didn't know what else to do and through the last few weeks have always gained help and support when I have needed it most. I have also, I hope, been able to offer the same help and support to others.

    So I have some initial thoughts for you, what you are experiencing is unique in many ways to you so there are no right or wrong things to do and no right or wrong ways for you to react. Everything is unique to you. We can offer help and tips and even put you in the direction of others in the same boat.

    Have you been in touch with your local MacMillan nurse and hospice yet? They are great and can arrange all sorts of good things for you as well as just keeping in touch with you to see how you are going and what they can offer to help. Mine arranged my meting with a pain specialist who can spend much more time with me that my local GP can which has been a great thing for me personally. So, if you haven't done that, do it as soon as possible. you can arrange via the GP surgery.

    You are welcome here to rant and rave about anything, we may join in, you are welcome here anytime just to chat with us about fun stuff as well. You are really just welcome, so don’t be a stranger and let us know how you are getting on and how you are doing.

    I am glad you chose to post a reply and join us here so please keep it up!

    Darren, if you want to, please just keep posting on here then at least we will know how you are getting on.

    I can't think of anything else to say at the moment other than, best wishes and please keep going and keep in touch with us here.

    Regards

    Andrew

  • FormerMember
    FormerMember
    Sue,

    you are very generous to do that, I bet you were really mad at not veing able to do it yourself but at least the ticket didn'y go to waste!

    Best wishes and may your generosity come back ten fold to you.

    Andre
    xx
  • FormerMember
    FormerMember
    Christine,

    hope you got enough rest and are feeling great now, lovely things to say to Darren as usual from such a generoius spirited person as you.

    Andrew
    xx
  • FormerMember
    FormerMember
    This is for all of us to "Shout to the Top"

    good song and good mood - loud and positive!

    From me to everyone on here -;

    http://www.youtube.com/watch?v=T9nwcd-jF00


    Andrew
    xx
  • FormerMember
    FormerMember

    Morning all.

    Great piece of stirring music to start the day - Thanks to Andrew.
    The video was good to watch too. That pianist was really feeling the music.

    Hope the morning routine has gone well today Andrew.

    Sue, you sly one, keeping your love of classic cars under wraps for so long. Heres a special one for you: Car 5 . I'll do a swap if you like - your Golf for my classic fiesta (lol). Somehow I think I know your answer - In your dreams! do I hear you say.

    Liz, where are you today? Your missed. Let us know how you are.

    Well its wall to wall sunshine here in sunny Somerset, and my mum has just phoned to say, where am I, we

    were supposed to be going out to lunch at the garden centre. Whoops, I forgot. So must go now as its about an hours drive to get to her.

    I hope you all have a lovely day, and Andrew, try to get out in the sun, if its only for 5 minutes, it really feels good.

    Here from you all soon.
    Luv
    Christine. Car 4



  • FormerMember
    FormerMember
    Hi Christine,

    yes its glosioius sunshine hera as well, so I will be getting out and about later on. the new back routine went well again today and have spoken to the Mac Doc about the new drug regime - she is very happy with it and i will be visiting the hospice sometime this week or early next to set up and start a physion routine for my legs and back and stomach muscles - the Adonis look is coming back - yeah right!!!!

    Have a great day and catch up later.

    Andrew
    xx