Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Darren,
you won't believe the brilliant piece of writing I just completed before I pressed the wrong butten and then deleted it all by accident - lol.
You should have read it - pithy, to the point, witty, urbane, full of verisimilitude - actually it was none of these things so please read on and I will try to be of some help.
On here you are always welcome to join our happy band, we will never criticise you or your choices but we will try and help when you ask for it and sometimes when you don't, we will try to offer our experiences when they are relevant or guide you to others when they are not.
There will always be someone or somewhere to turn when you need it. as you have already seen from Christine’s post above, there is always usually someone about to just talk to you.
I started this thread because I was so low I didn't know what else to do and through the last few weeks have always gained help and support when I have needed it most. I have also, I hope, been able to offer the same help and support to others.
So I have some initial thoughts for you, what you are experiencing is unique in many ways to you so there are no right or wrong things to do and no right or wrong ways for you to react. Everything is unique to you. We can offer help and tips and even put you in the direction of others in the same boat.
Have you been in touch with your local MacMillan nurse and hospice yet? They are great and can arrange all sorts of good things for you as well as just keeping in touch with you to see how you are going and what they can offer to help. Mine arranged my meting with a pain specialist who can spend much more time with me that my local GP can which has been a great thing for me personally. So, if you haven't done that, do it as soon as possible. you can arrange via the GP surgery.
You are welcome here to rant and rave about anything, we may join in, you are welcome here anytime just to chat with us about fun stuff as well. You are really just welcome, so don’t be a stranger and let us know how you are getting on and how you are doing.
I am glad you chose to post a reply and join us here so please keep it up!
Darren, if you want to, please just keep posting on here then at least we will know how you are getting on.
I can't think of anything else to say at the moment other than, best wishes and please keep going and keep in touch with us here.
Regards
Andrew
Morning all.
Great piece of stirring music to start the day - Thanks to Andrew.
The video was good to watch too. That pianist was really feeling the music.
Hope the morning routine has gone well today Andrew.
Sue, you sly one, keeping your love of classic cars under wraps for so long. Heres a special one for you: . I'll do a swap if you like - your Golf for my classic fiesta (lol). Somehow I think I know your answer - In your dreams! do I hear you say.
Liz, where are you today? Your missed. Let us know how you are.
Well its wall to wall sunshine here in sunny Somerset, and my mum has just phoned to say, where am I, we
were supposed to be going out to lunch at the garden centre. Whoops, I forgot. So must go now as its about an hours drive to get to her.
I hope you all have a lovely day, and Andrew, try to get out in the sun, if its only for 5 minutes, it really feels good.
Here from you all soon.
Luv
Christine.
Whatever cancer throws your way, we’re right there with you.
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