BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
An interesting artical indeedJackie. one I will be printing out for future reference.
A very good day with a trip in to Cambridge this morning and an afternoon/evening tea party later. we had a bit of a quiz which Tommy put together and it was great fun. even though my side lost. Now im pretty knackered so all the kids are playing Cludo whilst I relax and read my messages and write up my blog. Hopefully I will sleep well tonight and wakeup with a bit more energy tomorrow. Glad to hear Caz is still pushing those boundarys Moomy.
A good day again today. After last nights little party affair I have been really tired today but apart from that not too bad. I cannot seem to stop eating at the moment. ill be getting far too fat but im not to worried by that as im sure I will loose it soon enough when brain therapy starts. Today Tom and Katie have stayed and we had a grand sunday roast "and im still peckish) Linda and myself keep having, I suppose , sort of reality checks. We are pleased that the brain treatment can go ahead and so tend to overlook the things that might go wrong. I keep positive, as nearly always, but need to keep that reality in check so as to be prepared for any eventuality. My hands and arms keep playing up which can be a bit worrying at times and I think its that giving the reality checks. I also get really tired to the point where I think I could go to sleep and never wake up again. I dont want to, but if I have to go, that would be my prefered way. anyway, thats for the future. Im planning on trying to work this week but will have to see what im like in the morning. I have to push the boundarys but also be a little bit sensible as well, I suppose.
I dont do sensible Helen, you must know that lol. A really good nights sleep today and after waking at abour six I chatted online on here for a while. My plan is to go to work today, Just need to pursuade Linda its the best thing for me right now, That would be easy if I was totally convinced myself.
Hi Bob. Just wanted to drop by and say hello, have been catching up your recent news. You are absolutely right in what you say about keeping positive, I do really think it makes a difference. In my expereince I think the medics also respond well to that and want to help you more when they know you are fighting as hard as you can.
Stay strong (as I know you will) and just take one day at a time. Hope you did manage to get some work in today although if you didn't then it will be there another day for you. I haven't worked that much myself in the last couple of weeks. I used to get stressed about it but now I am a lot more relaxed about it..time with family and friends seems a much better use of time.
Anyway, take care and love to all the family... Rosie xxx
