BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember in reply to FormerMember

    Hi, very appropiate for Sir Bob and his lady to travel in a first class train, get the credit card out lots of new outfits for Linda needed, bet youll make a lovely pair with Bob in his dinner jacket, looking forward to photos. Take care all of you and hope my prayers are answered for you all.

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks all once again, another fair day today and we have had rathera busy one.  After dropping Kate off at school we did a bit of shopping for a while before comming home and relaxing for a while. Later on we picked up kate and two more of her friends who were very pleased and exited about being on half term. we popped into a local shop and im sure everyone could hear them but it was great and made me smile. We then had them at home for a while before Linda took them to their dance class. Tonight Lindas brother and his wife popped round and it was good to see them and then later Alison and Stuart came round complete with a big box filled with a huge chineese takeaway. We all ate really well and then nattered for quite a while and looked at some pictures they had brought us to look at. All in all I feel pretty good still and sometimes its so hard to believe I am so ill and probably in the final stages of my fight, not that ill let me stop me fighting for my right to live if the options are there. Linda has gone up to bed and im ready to sleep as well.

  • FormerMember
    FormerMember in reply to FormerMember

    Bob,

    Good to hear you're staying positive - you will not give up the fight easily. There are so many of us here wishing you and Linda, Kate and family all the best, but, like you, are helpless to change things. Really wish we could.

    Stay strong and I hope you all gain something positive from all here sending best thoughts your way. Take care and enjoy your Orient Express trip soon. x x x

     

  • FormerMember
    FormerMember in reply to FormerMember

    I am trying real hard to stay positive and just hope I can hold out. I feel a bit wobbly and reflective today and dare I say, at times doomed. Im hoping the last feeling does not last too long. We have had another of Kates friends round for the day and she has been a great distraction for Kate. We took them swimming and that was good fun although I didnt go in. With all my scars, when I jumped in,  all the kids would have jumped out.  A lazy evening as I am feeling once again really tired. Only two more days and once again I get my tarrot cards read, never has this felt more like being on death row and I do not like it.  Linda ,bless her has had a migraine for the last couple of days. Its not surprising, especially as her mum is going through a late life crisis and keeps banging on about how lonely she will be when her hubby dies. For gods sake, they are both old and have lived a good life, Linda will probably be a widow by her next birthday.

  • FormerMember
    FormerMember in reply to FormerMember

    Bob love please do not give up, keep on fighting, you are such an inspiration to so many on this forum, my heart goes out to you all especially you and dear Linda and little Katie. 

    Sending you an abundance of healing vibes, along with so my strength, I hope you can feel them.

    My love to you and your dear Linda and little Katie.

    Maryxxxxxxx

     

  • Dear Sir Bob, wobbles are inevitable, but they are just that, wobbles.......you will carry on fighting like the strong man I know you are, whatever you decide! 

    My love, some extra helpings of strength and hugs for you and the family too

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    well after a fair nights sleep mI awoke feeling refreshed and ready for the day. First I made Linda a cup of tea and we swapped valentine cards before I awoke Kate and her friend and made them bacon sarnies for breakfast. Then it was time to take Mollie for a walk so i took her for a real long one. The weather was not too bad and we both enjoyed the fresh air. After feeding the cats it was time to relax abit, and sleep a bit. Linda cooked a lovely roast dinner and I ate really well, in fact I have not stopped eating all day. we popped to the shops, bought a DVD to watch and it was great. As we seem to have lost track of when pancake day is I made an executive decision to have them for tea today. Linda walked Mollie tonight and now its time to relax again. I had a bit of a weird dream last night. I dreamed that I had died in my bed and when they came to carry me out the house on a stretcher , they could not get me round the top turn of the stairs. With that they tipped me off the stretcher and grabbed my hands and feet and carried me down like that. I hope it works out better when my time comes. Hopefully ill be downstairs and so will be much easier lol. Matt and Justin are on their way back from there long weekend away to cornwall, it will be good to see them. Not much planned for tomorrow as we have that all important day on Tuesday, you know, the one I would rather forget about. I said to Linda this morning I would like to go to sleep tonight and not wake up until Wednesday morning. Probably not a good idea though.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bob

    I wished you well for your appt on Tues via another post earlier but had not read your blog for awhile and therefore,  was not fully aware of what has been happening.  Needless to say,  I have shed a few tears with regards your news and my heart truly goes out to all of you, especially Kate. 

    You were the first person I communicated with via this site when I first signed on and your confidence and positive outlook has given me so much hope with regards my hubby.  Although we have never met,  I regard you as a friend.  I enjoy reading your blog as your sense of humour always shines through in both good times and bad.

    Whatever decision you make,  I wish you peace and happiness.

    You, Linda, Kate and the boys are in my thoughts and prayers.

    Lizabeth xx

  • FormerMember
    FormerMember in reply to FormerMember

    Wishing you well Bob, I think your so Brave and i wish you could rub some bravery on too me, i just wish we could all meet somewere i would love too have coffee or something with all the people who come to this site we could get on our soap box and have a good Rant couldnt we. Bob please Take care and i wish you and your family all the best .

    Pauline xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Wish you all the very best for tomorrow, you deserve it, hope my prayers are answered, so come on God get it right. XXX