BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Doing extra to the normal daily grind is tough eh Bob, I'm due to work with my dog Spice today at pets as therapy, don't really feel up to going after yesterdays scan, but know when I do go I'll feel better for it, makes me feel I'm giving something back somehow.
Hope your day goes well. It's chucking it down today here and getting Spice dry and fluffy for her patting will be tough after her walk!
What is it with winter that makes us feel lower than we should? or is it waiting on the blessed scan results to see if I can still have my sutent next week that is driving me nuts? Whatever it is I just want to sleep at the moment not like me at all.
Hoping to come off blood pressure again now I'm into my 2wk break from sutent as my pressure normalises now and tabs make it drop too low! You're so right about balancing those pills!
I can understand how you feel Jackie, Winter does seem pretty depressing and for me its because in the summer, lots of time is spent outside and I love the outdoor life, doing barbies and things with family and friends, soaking up the suns rays, all brilliant stuff ad I hope im about to do it again next year. pets are a great therapy and good company.
Today I did half a day at work, then came home as we had a new storage unit delivered for Kates room and of course, me being me, wanted to get it assembled today. I did struggle at times and had to rest twice but between me and Matt, we did it and it looks good, even though im convinced its not the one we ordered. Our next job is to look at a new bed, we are torn between two possibles, one I like and one Linda likes. I told her to get the one she likes as she will be using it a lot longer than I will. She was not amused but it is common sense to me. We wont be too late to bed tonight as we have an early start again for the Marsden. Tomorrow is scan day with the results on Friday. I am, for the first time , a little apprehensive about the results as I was thinking there would be no new brain mets if the Sutent was working. We will see. Also tomorrow we have to pop across to the Cromwell to have a MRSA swab done ready before admission next week for the Gamma knife.
Bob, i'm still here looking in on you and checking up on you :) you and your family are in my prayers and thoughts. Stay strong as you are doing, lots of Luv to you all sita xx
Scans are all done, after a rather slow journey to London. We got stuck behind every bus and taxi and every traffic light was red. Whilst in London we calle at the Cromwell and done all the regestration ready for next wednesdays Gamma knife op. So untill tomorrow, its just a waiting game. My thanks to my lovely wife once again for her driving skills through London. I would be truly lost without you x
Just to let you know thinking of you and yours. Liquid sunshine today. Rather dark and dismal. Knock at the door and there was a young lad selling veg. Him up above must have heard me saying I didn't feel like going to the shop.See good things do happen
