BOB JK My diary of kidney cancer (to be continued)
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Bob, you must feel exhausted, and it was hot, too! I bet your cat will return when hungry, cats do that! Hope you have a good long sleep now....and well done, Linda!
Can't imagine how tired you must have felt the heat was bad enough without being pulled about and all that travelling. Hope you have a good rest today it's alittle cooler where I am today so if it's like that where you are it maybe a bit of a rest from it. Your little girl must be coming up to the summer holidays, I know at my daughters school around this time of the year there are sports days and all other events that they get involved in, so this may help to take her mind off the situation a bit Hope you have a good day love to all. D
A reasonable nights sleep yesterday and a lazy day today. We both feel physically and mentally shattered and a rest is called for. Still no sign of the lost moggie.
Hi Bob not spoken here for a while. I also had a bone scan yesterday and am fed up going to the hospital 3 times a week for some reason or another. Having my 5th weekly chemo this afternoon and not feeling to bad.
How are you recovering from your op and when do you start back on Sutent? Not had a chance to read back on your thread but will do this later today. Hope the cat is locked in someones shed! My friend lost her cat last week for a couple of days it came home starving and must have been shut in someones house or hut. Fingers crossed the cat comes back.
Realy enjoying this sunny weather evern though I cant sit out in it is lovely being so bright the only thing is everyone is out cutting hedges grass so not able to enjoy the sun in peace!
Im doing ok and wound feels much better to the point that I can forget about it during the day. It still is healing and cavity within wound needt to heal before wound can even be reclosed so Sutent is a long way off yet. At this stage its not known even if I will be going back on the Sutent. I guess it all depends on results of bone scan and recheck of possible lung mets. I am certainly enjoying sunny weather and today have been sitting out in garden whilst mum in law did a bit of planting for me. We went for a walk this afternoon calling out for the blessed cat but no no avail. People will be getting me sectioned if they here me going about calling "Daisy" and making silly noises in the hope the cat will recognise me. I think she has found a better, quiter home and is spying on us looking for her. Linda has gone to pick up kate and a friend from school and then taking them swimming in the hope it will stop any cat talk (or lack of cat talk)
While Linda was out with Kate and Emily I went indoors to make a drink and then back into the garden and there was Daisy staring back at me wondering what all the fuss was about. Her return coincided with the local kids finishing school so im sure our next door neighbors put the kids buggy in the garage and Daisy seized her chance and escaped home. Linda has redressed my wound and its beginning to look a bit better and it certainly feels a lot better.
Tonight Ive been to a school meeting which was good and gave me something different to think about. All in all a good day. Linda has now popped out to a friends house and its just me and Kate. We have watered the garden and are now watching masterchef together before I give her a cuddle in bed.
Hi Bob, Thanks for your message and im glad to hear your finally showing signs of recovery. I cant imagine what it must be like to have got rid of both kidney tumours, it must be such a relief and the beginning of a longer life, as that word terminal is a word thats hard to come to terms with so heres hoping your scan results are good and there is something to be said for being possitve and strong. I had to have another blood transfusion yesterday, id been given a blood request envelope incase i felt extra tired so i went in on monday and my blood was 8.4 but when i went in yesterday they tested it again and it was 7.4 so i had 3 units and i feel tons better now. I have my outpatients next tuesday, im dreading it as its sacn results plus i think ill find out if i can have my kidney out, my prof said if the surgeon can take it out the bits left in my lungs wont bother me for years so im hoping they can take it out but ive got my doubts as the surgeon said its very risky as the tumour is wrapped around a artery and there are lots more veins that the tumour has made to feed its self that hes not sure where they are so i could bleed to death on the operating table, theres bits i dont understand but no doubt ill find out next week, ill let you know next week. Soooooohhhhh glad you found your moggy, pets can be such a worry at times. We had a nice trip to cleethorpes which always does us good. My daughter Joanne has left for Glasonbury today very excited she goes every year and loves it. Well im going to say night night now BB is on the tele soon, i know call me sad but i love it, so carry on taking good care of yourself, love to the family, Fay.
Good to hear from you and glad your feeling a bit better after your "top up".
I feel pretty good this morning and the wound looks to have stayed drier so things are definately getting better. It looks like im being dragged kicking and screaming to womens clothes shops this morning (such joy). I dont mind that much as at least it gets me out. Kate had a bit of a tough day at school yesterday and came home and wrote what she was feeling. It was so sweet I thought I would reproduce it here
In my imaginary world, it is peacefull and quiet, children are all kind and well educated and there is no jealousy
Everyone loves each other and there are no wars, children and adults and all living things are all loved and treated the same
No robbery can happen in my world and I will not allow disease, everybody is happy and there is no sadness
There are no such words as hate and cannot, and no one is too wealthy or too poor, In my world people share things including food and money
In my worldpeople give all they haveand do things for each other, peoplecannot bully and no one is ever teased or lonely
