BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember in reply to moomy

    Today, no work, Linda popped out for a bit this morning, I did a few jobs around the house and felt absolutely fine all day.We went food shopping  As Linda has been in the thick of it for so long I suggested to our daughter in law Katie that perhaps she and Linda would like a bit of quality time together to take her out from the situation for a few hours. Well tonight Linda and Katie are doing just that. Some wine, pampering , who knows. Linda was very reluctant to go at first but after Kate was home from school, she set off. Later I received a text simply "hic xx" so I assume its going ok. I missed her almost as soon as she walked out the door and felt a real feeling of despair and isolation.  I sat down, rubbed my hands through my hair and yet more fell out and for the first time in a while I welled up and could not stop the tears from flowing, I feel such a mess.  I have a tooth that will not stay in in and now my hair wont stay in either. I did recompose myself though and myself and daughter had a cuddly nite watching tv before bed later. She, bless her was really good and a model child who spent the whole evening giving her daddy reassuring cuddles and boy did I need those with Linda away for the night. Matt and Justin have also been fussing round me and Justin has just frogmarched me up to bed. I really hope I can just sleep tonight and awake refreshed and ready for Lindas return i the morning. I love her so much and really miss her but hope the change of scenery will do her good.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bob

    I hope you have a muc h better day when you awake! Was really sad to read your post about you missing Linda and your hair, tooth. No wonder you were upset, you've had a lot to deal with today. I am sure Linda was missing you terribly whilst she was away and she will be back soon to take care of you :) Hang in there...again, you are an absolute inspiration...amazing.

    Take good care

    Luv, Sita xxx

  • After all you've been through, Sr Bob, its not surprising you miss your Lady Linda, she's been your rock......but today is another day and she will be back soon.......glad you had a rewarding time with Kate, though! 

    My love to you all, with big hugs too

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Ooh Sir Bob

    Hope you feel brighter today buddy, you should of put Katie in the big bed with you

    I wonder if your soul mate rolls in this morning with a stinking hangover lol

    Greasy fry up, is the best cure !!

    xxxxxxxxxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Kate, Katie, Me lol, its confusing haha

    Sure you know I meant - Baby Katie, cos otherwise its sounds so wrong lol

    Positive thoughts winging your way, dont go scoffing all of baby katies easter eggs, the appetite will settle down soon Im sure ((((((((((((( Hugs ))))))))))

  • FormerMember
    FormerMember in reply to FormerMember

    Warmes of ((((((((((((((((((((((((((((((((hugs)))))))))))))))))))))))))))))) Bob, hope you feel brighter today, I am sure you will love.

    You of all people are entitled to a melt down, as the others have said you have been through so much and deserve to feel as you do at times.

    You fight on with such determination for your family and yourself. Hope that after you had that good cry you felt so much better, it helps love to let our emotions go, not good for you to hold back all of the time.

    Hope when Linda returns she also feels more relaxed, this is so tough for you all, but keep up the determination you are one hell of an inspiration to so many on here. You are going to get there, you have to, cause all of us are there fighting with you

    . and your lovely girls.

    My love to you all

    Maryxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Why does this flaming site not take all piccies it used to one the other one. That picture should have read, "A BIG BEAR HUG FOR YOU" and your lovely girls.xxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Mary and every one else. Im better tonight although really tired. Linda had a great time yesterday and came back with a bit of a spring in her step so it was all well worthwhile. Today I did some housework with the boys before Linda got home and then I popped in to Cambridge with Justin for a short while. Tonight we had a good Friday fish dinner which was really nice. I have slept a lot tonight, but that is not surprising.  I assume the steroids are still working there way out of my system as im still hungry all the time. Tomorrow i will be on my fourth  Sutent of the week. So far , no adverse reactions apart from the usual. Anyway, time to hit the sack for tonight, I hope everyone enjoys a good Easter break.

  • FormerMember
    FormerMember in reply to FormerMember

    Still rooting for you Bob, take good care of yourself love Fay. xxxx

  • Amen to that,Fay, I'm still rooting for you too, Sir Bob, love and hugs to you and the family

    Moomy