BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Sending you all the warmest of ((((((((((((((((((hugs)))))))))))))))))) and so many healing vibes to you Bob, what an amazing man you are, such an inspiration for anyone reading your diary.
You are a wonderful family and I will always remember you in my prayers dear Bob, in the hope that you can beat this, we are all there willing you on, including my family.
Morning all, a really good nights sleep, well received. As Linda has already said, we had a great day yesterday and we both really enjoyed some quality time together. Good food, I ate all of mine and a good part of Linda's as well.and then a bit of retail therapy to thank my lovely wife for putting up with me. Once home, I went to bed and slept for a while, before awaking for a local meeting to try and sort out our drainage problems in the area. Once home, would you believe I was hungry again so munched on cheese and crackers before hitting the sack again. This morning feel pretty good although a tad wobbly on the legs so did resort to using stick when popping out. Kate has been staying at a friends house but had a dentist appointment so we picked her upand took her then went back and had a coffee with them. Now home Ive got Justin cutting the grass as Linda wont let me do it yet. Ill be out there soon though, mark my words lol. Just had a bit of a silly moment watching an old episode of only fools and horses, the one where Raquel gives birth, really funny but also really touching and I sobbed my eyes out, dont know why, just did. Felt such a prat but there you go. I dont know if it were reminders of when Kate was born or just got me thinking about the future. Well know its lunch time so looking forward to a nice piece of cheese on toast, perfect. Also another bit of good news, at last after a week being " bunged up" things are finally "on the move. thank god lol. My steroids are being reduced down in readiness for completion of radiation and my other tablets for sickness, which caused the constipation have stopped till Monday. Thank you all for your kind messages and thoughts and I hope your weekend will be as good as I plan ours to be.
Another really good day today. After a relaxing evening, although I did overeat a bit, I slept really well and awoke this morning refreshed and raring to go. I took Mollie for a nice walk, the sun was shining and it was great, in fact I took her yesterday morning as well. After a cuppa I then hit the Garage with Matt and Justin (whilst Linda was down the gym). We loaded up Justin,s car with bits to go and even Kate was out in the sunshine trying to put up an old tent of mine. Just as we had finished Linda got back so that worked out well. I was also determined to cook a roast today and put the chicken on nice and early. All went well apart from soggy Yorkshire,s (which tasted good anyway). It tasted really good and was well received by everyone. Justin did all the clearing up and know we are all relaxing for a bit. I am planning to go outside again in a minute just to potter around for a bit, Id better not over do it lol. A really good day.
Evening Bob - so pleased to hear that you are still enjoying life as much as ever!!!! This bit of sun has been good for us all - but having just seen the 'Countryfile' forecast for the week it looks like us Northerners are taking a step backwards in spite of putting the clocks forward!!!! Snow is forecast for this week in this area (Pennines) so out with the big boots, woolie hat and thick gloves again!!!!
Soggy Yorkshire's???? Really!!! Did you have the tins/oil very hot???? They should be..............
Love and ((((((((((((((hugs)))))))))))))))) to you all
I'm glad you are doing ok, thanks for th advise for my mom she seems a lot better over the last few days, the consultant is going to give her a extra week off because of the side effects to her mouth, and then she will start on a lower gose (25mg instead of 32mg) can I ask what dose have u been on the Dr told us the odds are not so good but she couldn't go back on that dose because it made her so ill.
Hi Lisa, glad your mom is doing better, I have heard lots from people on lower doses of Sutent. and seem to still do well. I have always stuck with the highest 50mg dose and have not faired too bad. My mouth is the one area that has escaped side effects atart from the odd sore point, but as Linda says, I have an incredibly high pain threshold so im sure that must help. I was talking to the girls doing my radiotherapy and they were saying it was unusual for someone having whole brain radiotherapy to look and feel as well as I do, I put it down to my dogged determination and will to be around for a lot longer yet. My face is getting redder by the day, but feels ok. One more stint tomorrow then back to work for me. We had a good journey in to London this morning although Linda was a bit mad at me as I had walked Mollie without taking my phone."I know," I thought, "Ill defuse the situation by putting the radio on". Fat chance of that, when we were in London on Friday, some git nicked our aerial off the car, at least it made us laugh again. It was like meeting old friends at the hospital, its amazing how soon you get to know them and share and swap stories. Now back home and eating for England.
I am so pleased to read that you are doing ok love, long may it last. My fingers and everything esle are crossed for you, would even cross my eyes if I could, but I would fall over lo!
Biggest and warmest of ((((((((((((((((((((((((hugs)))))))))))))))))))))))) to you, dear Linda and lovely little Kate.
My family are there right behind you love, rooting all of the way with you.
