BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Hi Bob, Just to wish you all the very best of luck with your second op and a speedy recovery, i hope you get better follow up treatment than last time. Ive had a bit of a knockback with my treatment as they say the op is too risky but they will make a final desision after my next scan so ill find out at the end of the month. Ive been feeling a bit down so ive not been posting but ive kept upto date with your progress, so keep up the good work. Love Fay. XXXX
Hi Bob just wanted to wish you all the best for the op and hope your recovery is fast. Just think in 3 weeks the ops over and you should feel so much better. Hope you get a good nights sleep and Linda has good sleep in the hotel.
Thanks all for you good wishes and Fay, I hope things get better for you. Well, I'm all gowned up for the op and just spoken to linda and kids at home. I'm not nervous now but all the same will be glad when it's all done and dusted. I still wonder wether they will end up taking the whole kidney out. Whatever happens it will be sorted buy lunch then I suppose I'll be back on liquid diet. I wouldntbmind if it were beer.anyway bye for now and love to all
Bob had op, partial kidney removal again. Pain controlled and well settled back in his room. No doubt he will be posting tomorrow. Sleeping well at present and Kate and I are very relieved this op is done. Linda x x
So fa so good. Op seems to have gone well and my after care has been really good.
Pain is also well under control.
I have sleptvwell during the day ( sorry Linda and Julie) which is why I'm awake now. I cannot beleave the better standard of care I am receiving and am gratefull for this.
As I am typing on a fiddly phone I will keep this short and I hope you are all ok.
Dear Bob Lovely to hear from you; so glad that everything went well.. Linda and Katie - haven't spoken to you two before but you must both have the strength of........a very strong person!!!!!!!!!! Well done to both of you; it must be a very difficult time for you both (I have been a carer too) and I wish you both the very best. I would recommend a bit of retail therapy......never fails! A girl can never have too many shoes.... Sue x
