AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
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Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • FormerMember
    FormerMember
    thats ok for tuesday don't want you rushing about on my account!!! hahaha

    No i not got my cuppa either think we will have to sack the waitress and go somewhere else! lol

    blimming firemen won't need starch with the size of their hoses!! otherwise you will need alot of cans and cost a fortune! lol
    TERESA HAVE YOU GONE TO SLEEP??????????????

    thought i would shout incase she didn't hear me! lol

    love hugs and firemen with big big hoses love mother hen mel xxx
  • FormerMember
    FormerMember

    Hi mother hen mel and chickies Karen and Kate

    hope you all ok and glad that daryll is doing so well, sounds like the onco isnt too worried about him (in a good sense)by going away for 2 weeks but how dare he!! and more so he should have informed you that he was going away so I dont blame you for hollering!! It would still be nice if you can mange to get away for the week for both your's and darylls sake it would do you good, Mum and Dad had a week away last year after his news and it done themm the world of good so I would keep on to sec!!

    Well didnt see any dr's today but a different nursing staff were on and they were so much more helpful, Michaela being given 2 diff antibiotics (1 of which they are changing tomorrow, now today) and they have her on a drip, they have also given her a mask to put on to stop further infection when she leaves her room to use toilet or wash room but she has to wait for them to 'unplug' her, my mum and her step nan took a pic of her wearing it as she lookks like a duck (we did laugh!!) lol bless her, still none the wiser really but the haemotoligist seeing her again on tuesday and they'll do more if her levels have dropped to 8 (bone marrow etc) at the mo their at 8.4 but apart from all she feeling she's in quite good spirits!! Problem with me being up these hours is dont get home form hosp till about half 8 have my dinner then crash out for a few hours, so much for routine!! Gave my mum a big hug tonight as she feeling it too after all thats gone on and told her how much I love her cos I do (welling up now!!) and waffling.

    Mel. I laughed about the ironing board but then after 20 years phaps daryll just wanted rid of it!! but at least we know that karen a dab hand at ironing so bear that in mind!! Pink I agree with I think she's great but Motorhead???!! each to their own I like all kinds of music really, no actually I dont some of the stuff Michaela listens to does my head in!! but I go with Kate on U2 Bono not much to look at but what a voice!! What are your plans for easter? We don't really celebrate it just have sunday dinner together but won't be doing that this weekend, we're not even bothering to buy eggs etc though we will for Mia and mum bless her has bought Michaela a big fluffy easter bunny, she'll think ahh thanks nan but im nearly 18!!! Hope you all have a good weekend, lots of love and hugs and firemen with big hoses (so glad all else gone as I kept having to go back to see what our goodbye was!!! age kicking in!) XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
    Hi Kate

    Sorry your mum not feeling too good, I too have a pic in mind of her with her little crown on snug in bed, you must be as worn out as me im usually quite quick on comps but think it taken me nearly an hour to type all this!!! Im with you on U2 not sure about Mels Motorhead (hate to think what sort of music she'll have for daryll's 50th!!) haha, sorry mother hen only joking, what does anyone think about Westlife???!! Hope you're feeling ok honey and your dad too, hope duracell bunny picks up soon, thanks for last night!!
    Lots of love hugs and firemen with big hoses (so glad this been cut down!!) Teresa XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
    Ps dont forget email address!!

    Hi Karen
    Sorry your bugs finally set in, hope you dont feel too rough and get better soon, well still none the wiser on Michaela but she in better spirits today so thats a good sign its just so frustrating!! When does your training start again, i made an appointment today at the careers office for 31st March to have a chat and find out more but mum still thinks I should go with the childcare but we'll see. Anyway just a short one for now as its taken me ages to type all this so ive probably missed several posts (dont know what wrong with me!!) thanks again for last night, lots of love hugs and firemen with big hoses (hope you dont mind losing your big marrows!!) Teresa XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

  • FormerMember
    FormerMember
    Hi Keira
    Just wanted to say that Im so sorry for what you are going through at such a young age but you're not alone, I hope you think about joining this thread and sorry that I crashed last night well 5am yesterday morning as me and chickies Kate and Karen were about till quite late (they were holding me up) which you'll get a lot of on here, they're great and mother hen mel 'one in a million' keeps us all in line!! actually they're all ones in a million!! hope to hear from you soon, take care and love and hugs to you and your family teresa XXXXXXX
  • FormerMember
    FormerMember
    Dear Kate I saw this last night and thought of you and meant to send it to you before I crashed out You're Nuts XXXXXXXXXXXXXXXXXXX
  • FormerMember
    FormerMember
    hi chicky teresa

    so pleased michaela is in good spirits, so hopefully antibiotics kicking in now.
    you must be shattered, hope you get some well deserved sleep.
    its good that you made an appointment to find out more about the jobs.
    i dont mind losing the big marrows, i have plenty more here lol
    anyway hunni going back to bed now, just wanted to see how michaela was today,
    speak soon, hope you get some rest, lots of love chicky karen xxx


    mama hen mel

    your shouting def worked, the boys are all awake now lol hee hee
    hope you have a good nights sleep, i will catch up on earlier posts in morning,i will be dreaming of truck loads of ironing lol

    anyway hunni, going back to bed now, thanks for the chat
    speak soon, lots of love chicky karen xxx
  • FormerMember
    FormerMember
    Nite Nite Chicky Karen

    Hope you sleep well and sorry for waking the boys! lol
    Sleep well my little chicken while i sit here eating stilton cheese on it's own!! yum yum.

    love hugs and firemen love mother henxxx
  • FormerMember
    FormerMember
    Are you still up and about? dear Mell
  • FormerMember
    FormerMember

    Dear Karen

    Hope you get a good nights sleep despite boys being up, sweet dreams, lots of love hugs and firemen T xxxxxxxxxxxxxxxxxxxxxxxxxx



  • FormerMember
    FormerMember
    Dear Charles

    hope you dont mind me butting in between you and Mel, How are you? xxxx
  • FormerMember
    FormerMember
    Hi Chicky Teresa,

    so pleased that Michaela in good spirits but shame you're no nearer knowing whats wrong. Bet she loves the big fluffy easter chick really!! but it will prob be funny as she will prob be bit embarresed but thats the good thing with kids as they grow yp is embarrasing them! lol I would probably have done the same to Kirsty and can just imagine her saying 'mum i'm not three anymore!' lol
    I really do hope they find out whats wrong with Michaela soon but maybe she is a medical mystery!! You sometimes find that the staff at the end off the week or weekends are bit more helpful i know we did with Darryl. The weekend staff told us loads more than the ones in the week.

    We don't celebrate easter anymore either as the kids say their too big for easter eggs now but i still wouldn't mind one!! haha wonder if a choccy egg would go with stilton cheese? eeeeeeeeemmmmmmmm have to try that it sounds nice!! lol

    We will prob just have roast dinner sunday but prob be me who cooks it as usual. It's great that Karen can do my ironing for me and i'm sure she'll do your's too as you've been so busy hahah

    anyway love hugs and firemen love and hugs mother hen mel xxx