Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
Those forms are usually given for that reason but for some reason our Dr issued one, couldn't help but think it was through feeling guilty at misdiagnosing Michaela with viral/bacterial infections since June 07 though I was surprised that we were issued with it being the reason for them , if your Dad has a Mac nurse ask their advice because it was them that told me (else I'd never have known)..she was then awarded the higher rate of benefit and it was back-dated to day of diagnosis..stay strong honey and hope you get things sorted, let me know how your dad gets on...love and hugs Teresa xxxx
Hey Donna So proud of ya how cool are you ? Youve just got thu major surgery You gonna be fine babe, you have that kick ass spirit lovein ya and all Your mate Kate xxxxxxxxxxxxxxxxxx
he is just being a man and being as efficient as men can be when doing caring type activities, - they mix and match against what they have to do and more to the point what they actually want to do ie fish, fun,bikes, etc.
hey all chickies, What good chickies you all are! Now you're going to ask me why? Well because you are all little stars and i love you all very much and i feel better tonight thanks to you all! Hope thats good enough reason???? lol Darryl is bit brighter tonight but still croaky and tired, but hoping he may have a virus thing after all We are still going to see his onco on tuesday even if his voice is better as it will set our minds at rest and i have been so flipping worried Glad you all seem so well and happy today that cheers me up too and brightens my heart! Donna hi babe hope your ok and that alls well? So good to see you on here so a big hello to you! I have been awake for 2 days now and don't really feel tired yet but flipping teeth still giving me jip though! Karen think i do need them pliers afterall! lol No teeth no problems thats what i say! Thank you all my chickies for everything you have done for me really does mean so much to know you are all travelling this journey with me. Don't feel so alone with all you here and iv'e given you all pay rises to £750,000,000,000 per day cos you all deserve it! Think a few drinks will be ordered in vast quantities now! Mind i'll be skint but no change there then! lol Washing machine worked lovely really quiet keep checking it was still on! lol Love you all loads Love and hugs MHM xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Thanks for that, i totally agree with what you are saying, but i asked the Dr when does a mcmillian Nurse come into the equasion and he said no we dont want to go down that road, it's basically when the patient hasn't got long. (sorry if this has offended anyone) so that's why i am going to the Maggies Centre at the Chuchill to try and sort things out. What amazes me so many people i have spoken to get the benefits and mcmillian nurses, is it different to where you live?
What makes me so angry is that there is enough to cope with, without the pressure of money
Hey Donna and all Reckons our Mel aint gonna give a damn Knows she wont care whos posting on her thread Mels gonna be happy that her chicks are oks and havein fun She is so real and fab, mel hope that toothace stopped lovein ya lots Kate xxxxxxxxxxxxxxxxxxxxx
Hi Jacq Sounds a bit like your dads dr being a bit incompetent (I know Dad's and Michaela's were) hope you get some better results from the Maggies Centre or failing that ask your Dad's oncologist as it was Michaela's that gave us some of the names and numbers of our District and Mac Nurse, when dad was 1st diagnosed (before being terminal) he had a Mac nurse so it isn't just for terminal patients, keep on at them hun and I hope you get things sorted...love Teresa xxxx
Where did you disappear to? did you go down the cafe with ole foggy or been busy doing Karen's washing? hope not as I've just sent down mine and Michaela's (no rush for them mind) but be good if its back washed and pressed by Sunday lol!! Glad you feel better tonight and hope you get them pliers soon and get teeth sorted..love and ((((hugs)))) xxxxxxx
