AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
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Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • FormerMember
    FormerMember
    Teresa
    lol funny stories that what memories are made from hey bless you i can just picture you in your wellies and your sweet dad catching you how did they know what we were up to lol bless teenagers most of them havent done anything that we havent but we are not expected to know what they are up too bet it was funny talking about it and your dad denying it was funny bless him can picture your face would love to see a pic of the babes your dad will be protecting you all he is so proud of you all always keep smiling with your memories love and hugs mexxxx
  • FormerMember
    FormerMember
    Hi Shezie..not seen him for almost a year now, though had I still been with him then would've been great to meet up, I still have a few friends down there though haven't spoken for a while, wouldn't want to put name on here (will p/m) but lived down by the railway station (from what I've heard he has since moved on completely) as in away from Wymondham, now married with a baby :-( that's why I said my so called 'better' half xx
  • FormerMember
    FormerMember
    His loss.Well if you recontact those friends ,your welcome to pop over, Do pm me with some names but wymondham a big place,well it is to a country girl! xx
  • FormerMember
    FormerMember
    hi yes iv had ocd for about 17yrs got a lot worse i get so tired now even though i can scrub from top to bottom i still think i havent done it clean enough it is a hard thing to stop doing i heard that jade goody off big brother has got cancer how scared she must be feeling i want to start talking to someone of my age see how they are feeling and others that are so scared of dying see here im off again om a bit of a downer i think xxxx
  • FormerMember
    FormerMember
    Dear Sue
    They were probably worse than we were so knew all the tricks didn't they, 1st time I put them on to walk to shops with sis (I'd protested then as well!!) Dad was out his bedroom window laughing and after that I thought sod you I'm never wearing these again so I used to change on the green round the corner not knowing that you could see the green and road from my bedroom window...that's how he caught me lol!! and you're right funny stories are what memories are made from...will try and sort photos out and send them, though you'll have to bear with me as when I use photobucket and tried it before it hasn't worked (ole foggy done it for me last time)...you keep smiling too ok with your loving memories, much love and hugs T xxxxxxxxxx
  • FormerMember
    FormerMember
    hi my name is paul lost sis lynn to ms and now I am stage three melanoma I no what I will go through but I cant think how hard it will be for my family to go through all this again .hope you dont mind me saying .the people who care for us/them. have to all the time try and stay helpfull happy and focused for the people who are ill when all you want to do is scream shout cry and ask why .because you love us/them .I no all we want is some one to make us/them better .but its the people who look after us who also need help thier hearts need mended there are no pain killers strong enough to take away the pain of watching helplessly as we/our loved ones go through this but we no you are there for us and you no it makes such a difference .I do no my ex wife lost her father to an accident at work I realy dont think she every got over it but after 1half years of my illness she asked me to leave as i had fallen out with her brother I never did get on very well with her family but I think it was just she could not go through that again the heart ach of loseing someone I had 2 lovely boys reiss and ethan and i miss them very much but I did not want them to see me that way .and could not take anymore after finding out it had burst through my l/nodes that had to be removed .I had always agreed to anything for an easy life but found after this I could not and for this I found my self home less and having to stay with my sister till I got somewere to live havent had time to think to much but at least now I dont have to lie to people who I dont agree with or who worship money more than life .I was helping my wifes family get out of debt and ending a failed buisness and outing my sister inlaws husband as a fraud they robbed my mother in law of over 80.thousand over 5 years an the strenght that they had big claim coming .not and when found out he ran away left it everyone else to fix I decorated her mother s second house that she rented to them and the busness her brother and brother in law started even though her brother knew he allready owed his mother 50.thousand still went into busness with him I was asked to help by my wife but her brother after all that had been done as sooon as he got a job he took me for a thank you drink was so tired didt want to but after a few drinks I disageed with him an the out come was that he said I was blamming him for what had happend .all i said then was it was time to grow up a little so what if he had to pay back some money it wasnt the end off the world ..why did he go into busness with some one he said himself months before was taking a loan off his family he said I was blaming him but none of them ever took responceabilty for eanythig .and we were all told to but out.till there was no money forthcoming and got found out then we were all draughted in to help and sort out . all this just after 4weeks of radio out of 6 .I am 38 years old and I am just starting to be myself again the happy fun loving person I use to be with this illness for a partner but I dont have to lie to myself or have anyone lie to me anymore .soz for going on but if you have some one with an illness and you are looking after them there with be a star in your heart when the pain dulls it will light up everytime you think off them and they will never realy leave you not your soul good luck and good health to all of you keep up the good work . oppolages this is only the 3time i have used this
  • FormerMember
    FormerMember
    Shell i guess cleaning got worse cause you afraid of contamination even more now.Do you think your morbid thoughts are part of your obsession now? ocd is a full time job are you getting any help for it?xx
  • FormerMember
    FormerMember

    Teresa

    keep hold of them memories tight treasure them im sure you will laugh with them and cry when you need memories are made for a reason.
    i am going to have to go in a minute got to get on with cleaning kitchen as my churbs dont do it and im not here tomorrow babysitting an 11year old and 8 year old they are such hard work but love them dearly will need something to calm my nerves once i get home lol
    its been lovely to catch up again take care sending my love to you and Michaela tell her well done on her results and reach her goal of starting Uni next year
    easier send than done i know but make sure you get some sleep ok catch up with you again soon
    love and mega hugs suexxx

  • FormerMember
    FormerMember
    wow paul, you got alot been bottled up there, you dont have to be sorry for anything on this site.You sound as if you have found some peace within yourself.How thoughtful to be thinking of your parents more than yourself.Ithink family,honesty and reconciliations are important at a time like this, i say this through my own experience at the mo.Do you have people to talk to? you not alone here much love sheree xx
  • FormerMember
    FormerMember

    Dearest Sue
    Thanks for the company and chat...you're a star and a pleasure to have as a friend...hope you don't get kept on your toes too much tomorrow lol!! take care, night night and sweet dreams....much love and ((((hugs)))) Teresa

    Ps...I'll get the CMBFTSMMST right 1 day...sleep tight xxxxxxxxxx