We Talk Brain Tumours

Hi,

My mum has a GBM4, so I mostly ownly write on Glioblastoma why why why, I read the original WTBT during the summer after my mum was first diagnosed and again since November on this new site - am loving the emails notifying me of each post - with this in mind I must confess I'm not always up to date on who everyone is. But upon reading I just felt compelled to write.

_Debs, I've read your posts and your biography and take my hat off to you, it made me well up the way you speak of your children-like my mum you're still thinking of others. I smiled when I read that you called your tumour buttercup :0)  and was pleased to read of your good news - don't fear writing it, I think it's fair to say that we are all experiencing such highs and lows ourselves that it's good to here something positive.

Mollie, I send my sympathies.

I have really taken in what many of you including Martyn and CH have said about sharing the role of carer with nurses. I fear when it comes to it my Dad will try to do too much and bless him, my mum wouldn't really leave him alone with my nieces so I worry a little about him being mum's sole carer in future - also I worry whether she would want him to nurse her after knowing each other since they were 21. So I'm pleased to hear people say very similar things to how I feel - that it is more important to remain your partners wife/husband than carer and there is absolutely no shame in sharing the responsibility for nursing - especially as the nurses seem to do a great job. I think my dad may take some convincing when it comes to it- but I saw how Martyn was converted to this way of thinking and took the support (can I say Martyn you sound absolutely fantastic!) and how much that seemed to have helped. Wise words from you guys as usual.

Sorry to impose on your thread, but you are all really an inspiration.

Much love and best wishes. xxx

Ooh,  I really like you IDOF,   please come back soon.

Better still jump aboard and make yourself comfortable, .Mrs Miggins will be round with the horlicks shortly.

Martyn XXXX

Dear Donna,

I'm so sorry to hear of your loss and I send my deepest sympathy  to you.I so feel for you. My lovely Paul died on October 23rd of this terrible disease and he too died peacefully at home with us beside him. I hope that like me in the weeks to come that does bring you some comfort.

With love

Jeanxx

Here I am with the Horlicks,
It's unbearably sad on this train when one of us loses our loved one.
I know we are all thinking of Mollie and Lee tonight as we sit here together.
IDOF, you are very welcome here.
Miggins xx

Donna / Mollie,

So so sorry to hear your sad news about Lee.  Thinking of you xxxxx

Dear Donna

I am so saddened to hear of your loss. I can't even begin to imagine how you are feeling but your courage and strength has shone through. Your lovely man is so blessed to have had you to comfort and care for him at home. I take my hat off to you.

God bless.

XXXXXXX

Hi, am so sorry to read of the losses here.

I am new to this - my dad was diagnosed with 2 grade 4 gliomas 5 months ago so have now joined the living hell of this awful disease.  He had surgery to debulk one tumour and then the usual chemo/radiotherapy.  At the end of that, he had some kind of bleed and was taken into a hospice and we were told to expect him to live less than 2 weeks.

12 weeks later and he is still with us, albeit in a palliative care unit.  He has reduced mobility on his right hand side and speech difficulties but physically gets stronger every day.  He had a scan last week which showed both tumours had grown - he is due to start another round of chemo this week along the lines of "he has nothing to lose".

If ok, thought I might join you guys for a while so that I can chat to some people who truly understand!!

Dear Donna, words do not seem enough in saying how sorry I am for you.

You are still in my thoughts and prayers.

With much love.

PEABS XXXXX

Hello Samantha,
I think Martyn (Postmark) and I spoke to you on another thread some weeks ago. I'm glad you have found this thread. You are very welcome here. None of us want to be here but, in the circumstances it's a good place to be. 

As you gathered, one of us lost her loved one today so understandably things are very sad here at the moment.
You'll see we often refer to a train. If you read Martyn's profile you'll see why that is.

Your Dad is obviously a fighter, I'm glad he is still with you and hope you have good times with him still, even though he is very ill. Bts are very unpredictable as your Dad is proving.

Best wishes,
Miggins.

Donna,

I am deeply saddened to read that Lee has lost his fight with his illness.I will pray for you both.

With our thoughts and love.

the Skehans.