We Talk Brain Tumours

Hi All, can't quite believe i'm writing this but my beautiful Lee passed away yesterday at 7.20am, he got worse everyday since the seizure on the 28th November but thankfully was very peaceful until the end and we were able to care for him at home for the last 2 weeks.

Love to all

Donna (Mollie)  xxxxx

Donna, I'm so sorry to hear that. Sending you my deepest condolences.
You have been a rock for your lovely man.
With Love xx

Donna, what sad news.  After many months here and all too many losses of lovely and dearly loved people, I still find it hard finding words to say to you. I think that's because there just aren't any words that will do anything to lessen the pain and grief you must be feeling. You cared so well for Lee and I am sure it gave him comfort and helped to make his passing peaceful knowing that he was at home with you where he belonged. Thinking of you.

Sue

xxxx

As a brain tumour patient I am finding this thread harder and harder to read.  Donna my sincere condolences to you and peace be the journey Lee. 

Love & Strength to all those involved in a BT battle or journey.

Debs (and Buttercup),

This thread is very hard at the moment - there seems to be so much bad news re scans, people cominbg to the end of the jpurney etc. I haven't felt it appropraite to post about my mum's progress in the face of such sadness, but I shall now, if only to hopefully give you and some others hope. As a quick recap - she was diagnosed in January, had debaulk and suffered really badly with the TMZ.. Managed about 3 weeks of the initial 6 weeks. Then only managed one roun d after that as it made her so weak and sick. So back in June after 1 round we were told no more treatment. There were so many nights that I prayed so hard that she would die that night, just to take her pain and discomfort away. I thought that with no further treatment we would just be on a downhill journey that could only get worse. But she has got stronger and stronger, it's unbelievable. Her husband was diagnosed with colon cancer in September and that seemed to change her whole attitude on life. She had to be the strong, well one again . She had a scan in September that showed no sign of regrowth. She saw her consultant last week who was absolutely amazed at how well she looked and how well she's doing. She does have problems with short term memory, and teh dexamethasone has destroyed her adrenal gland so she now has very low blood pressure and gets dizzy if she moves too quickly or when she stands up too quickly. But she outlasted me on  a Christmas shopping trip two weeks ago (well for the morning away - she then flagged after lunch very quickly and we realised that she's overdone it). But I am truly amazed by how well she is doing - and of course very glad that God didn't listen to my prayers in the summer and that she's still with us for christmas.

Sally E xx

Sally,

I can understand why we feel we can't post good news when there is so much sadness and pain around us.  Thank you for your message it does indeed give me hope and inspiration, way to go Sally's Mum x  

 I have been so lucky (so far), was sat in a chair eating dinner 4 hours after my 4.5hr operation to remove Buttercup in Jan 09 and I went home less than 24hours later.  I breezed through 33 sessions of RT with the hairloss being the only side-effect (as if thats not devastating enough) and have now finished my 6 cycles of TMZ, during each cycle my brain swelled and I suffered severe constipation no matter what I eat or took to combat it.  Only went on the Dex for the 5 days of TMZ.

I feel a bit strange now that treatment has finished, yes I could have years before Buttercup starts to regrow but having a scan every 3 months makes it feel like I am living 3 months by 3 months - if that makes sense.  I feel like I am flying solo now with no parachute! Next scan is early Jan 2010, fingers crossed theres "nowt to see here move along please". 

In the last couple of weeks I have started wearing a wide headband instead of a hat (first time outside hatless since March 09) because my hair has grown back sufficiently - with one big 'sparse area' which took the most RT, right side at the front, going to need a wicked combover for that LOL

Oh Donna,  what sad, sad news.   Your love for Lee just shone from your messages whenever you posted.    We are so sorry and send you our sincere condolences.

You are still our Dolly.

Lots of love,  Doreen and Martyn XXXX

Donna – Very sorry to hear about your Lee; please accept our deepest sympathies; I will, as always, light a candle tonight and break out the special reserve malt.

Debs – stick with us, you have given us so much.

WTBT – The Old Thread – Today I have received nearly 500 emails from the old thread ! I kid you not. I managed to get back on to the Mac site and switch off email notifications; I have enough emails without another 8,000 ! All we have to do now is track down where they’ve hidden it. A job for Miss Marples perhaps.

Have a best as you can evening all – Best wishes – Robin

PS – Jan in grand form this evening, must be the monster sleep she had yesterday.

Donna, such sad news - I am so sorry - you showed yourself to be a wonderful support, Lee couldn't have a better wife - take care my friend xxx

Donna my thoughts are with you. Tough time here at mo too as my hubby told last week tumour regrown and no furthur treatment. So hard watching loved ones suffer-it all seems so surreal here. Im sure you can identify with that. You did all you could. Sending you a hug x