We Talk Brain Tumours

Hi.

Does anyone have any experience of sedatives.

My husdand is taking 10mg Dex. and only sleeps for two to three hours at a time during the night.

This is becoming a problem as he is very confused and week, he is falling a lot and has poor co-ordination.

I worry incase I don't wake up when he's up and about at night trying to make a cup of tea etc.

His GP is visiting tomorrow and I'm thinking of asking him for a mild sleeping tablet.

Is this a good idea or does anyone have any advice.

Hope everyone is as well as can be expected and having a peaceful evening.

Hi Araminta,

What times in the day is your husband taking the Dex?  I'm sure you're aware that one of the side effects is wakefulness.  So if you're able to give the drugs in the morning/lunchtime, it might help a little.

Hi

I have been told that they can help but not always, as I'm in th same position with my husband, he is on 16mg of Dex and i try to get the second dose in at lunch time, sometimes its not possible if he's asleep.

Ive had another night with him going back and forth to the bathroom and then he is struggling to cover himself up with the duvet

hope all goes well with the GP

take care

xx

just getting us back on the front page :)

Hi Pete,

Harry takes 10ml Dex about 8am. The doctor decided today to reduce this to 8mg. Also gave us some Lorazepam which is supposed to calm him I think, not that he's aggitated but it may help him become more restfull during the night when at the moment he's getting up every two to three hours.

Thanks for your concern,

Minty.

Hi Shelly,

Harry has been prescribed a  tablet called Lorazepam to take half three times a day and one x one ml at night. I'll let you know how we get on.

How do you cope with the disturbed sleep, I really find it hard and dread bedtime, but I know that some time in the future I will look back and think it wasn't that bad after all, do you know what I mean.  I'm sure there are plenty of people on this site who would give anything to have their loved ones back, sleepless nights and all. so to all who have lost someone, sorry for moaning.

Hope you and your family are O.K.

Love Minty. 

rant alert just got to get it off my chest.... what a bloody horrible time we as a family are experiencing. we cannot say do or behave normally in all respects. so so tired cannot even remember normality Christmas New Year etc was a complete nightmare nothing said or actions will change anything my friends, famly etc are all trying (well except for one complete bastard who thinks his only brother is pulling a fast one and should be working etc) but nothing helps, no-one can help, feel so low don t know where to turn what to do .........any suggestions please......feel as though everyone thinks i ve coped really not though.

feel bad for feeling like this as know all too well some of you have already lost your loved ones, but know the inevitable is just around the corner for us/me

tc everyone sorry to be so down xx

Julie, so sorry that you're going through this madness.

Yes, you need help in a big way.  Talk to your mac nurse (if approachable in this way), and also your GP.

You badly need emotional support that your current care package isn't supplying.

Rest assured that you are coping. I said this before, and I'll not tire of repeating it.  "Your best is good enough", no one can ask or expect more of you.

You are doing superbly, it anyone has a problem with that, then it's THEIR problem.

Julie,  I really feel for you and can understand how desperate you are right now. I think all you can do now is accept some cover so that you can get some sleep and then spend as much time with your husband while you can. Take care, were all with you and will stay with you as long as you need us.