We Talk Brain Tumours

Martyn,

Just wanted to let you know that I have been following your journey and my heart goes out to you. Both Doreen and yourself are in my thoughts and I pray that Doreen remains pain free and peaceful. It's good that you continue to remain calm. When my husband was at this stage, what helped me most was holding his hand whilst he slept and just talking to him. Although he slept and I could here his chest rattling, deep down I'm sure that he listened to all I wanted to say.

Wishing you and your family comfort and peace at this very difficult time.

Beedarsh

Dear Martyn,  I am sending you a huge hug and my thoughts are with you at this stage of your journey. I m sorry not posted sooner but I know you will understand I m not in a good place at the moment, I do keep an eye on all my mac family and the support we all get is outstanding.   Look after yourself Martyn  Doreen I am sure is very very proud to have such a fantastic husband  Much love  Julie xxx

I have a message here from Tasha who sends this to you via my Facebook...!

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I have no laptop at the mo, so just following everyone via phone, but it means I can't post. I hope you're doing ok x Could you also pass on a message to Martyn please, just to let him know I'm thinking of him. Thanks. I hope Christmas and new year will be kind to you. For me, it will be the last with my Dad, so we are going to try and enjoy it as much as we are able. X

Thank you, Beedarsh, Julie and Tasha.

Things are pretty much the same here. It seems quite odd that we continuing reasonably normally in this situation. We are having our snacks beside Doreen and asking her what she fancies for her tea etc. I suppose that's the best way to conduct ourselves? It seems quite effortless! 

Tasha. I hope your Dad is able to enjoy a peaceful Christmas with you. You have our best wishes also. Thinking of you all, and forever in in your debt. Doreen, our 2 wonderful daughters and me. XXXX 

Gosh, I take a day out and there are so many posts.

Martyn, you know I am thinking about you and Doreen, may she continue to be peaceful xx

OK the walk - Its been a long time since I have walked 10 miles and not sure I can do it but I can do some and drive with the others to the end.  If you need me to do anything to help organise please PM me, I am only a couple of miles from Greenfield.

Love to all Joanna xxx

Hi Martyn, a voice from the past....

Sue and I don't get on the site much but I do drop in occasionally to see how you and Doreen are doing.  My eyesight is very limited these days (myopic macular degeneration) which makes computer work a bit challenging but I think of you and Doreen often and I know Sue and Jim do too.

We are all saddened to hear that Doreen is nearing the end of her journey and our thoughts are with you and your daughters at this time.  You have been an amazing carer for Doreen all these years as well as a source of comfort for all of us on the train.  Sue and I, the terrible twins, have enjoyed the chance to meet up with you and Doreen on occasions, providing us with some very fond memories as well as some good photos.

To all those dear people who have left me messages on this site (which I just found, sorry) thank you for your kind thoughts.  I hope life has become a little kinder to you after all you've been through.  For those dear people who are curently on this journey, my heart goes out to you and I wish you all the strength and resilience you need to cope.  On a journey like ours, this is a good place to be, is it not?

Much love from across the pond.

Jill.

I've not been on here for a few months.... truth is I've been struggling to deal with everything, this disease is just rotten, I have however still been following this thread and am amazed at the love and support that's shown to each other - just fantastic.

For those who may remember MrSG was very poorly at the back end of July at the point of having fluids withdrawn.  However.... despite everything the Dr's said and thought he was not ready to leave us and slowly his health improved.  He requires 24 x 7 care and we were lucky (!) that he qualified for NHS continuing healthcare.  He lives at a very nice neurodisability centre which is just 20 minutes away and the level of care from the staff there is second to none. I spend every afternoon with him - but its so sad to see the man I adore reduced to basically a shell, this is the part I really struggle with. 

Mr SG loves seeing the children (2, 7) and we are very much looking forward to spending time with him as a family on what is likely to be our last Christmas together.  It is very bittersweet, but I know I don't need to explain those feelings to this group! 

Pete - I was so sorry to hear of the passing of poor Ali - I have admired your strength and positive attitude.  I felt I was at that place and must admit to feeling completely overwhelmed and very panicked, even though I thought I was ready to deal with 'that part of the journey - clearly I was not'. Thanks to good old citalopram things are a bit more bearable these days :)

Martyn - you are so wonderful, I hope I will be as brave as you are being when the time comes, sending you love and courage xx

Cathi / Joanna, I hope you are coping with your loss and that Christmas brings some happiness.

Debs - so nice to see the pictures of you, you are a true inspiration.

And to all the other passengers, it gives me so much courage reading everybody else's stories - it is so nice knowing that this is not a path I'm treading alone.

xxxx

Hmmm..  I have a funny idea that Doreen will be obstinate enough to drift her way through Christmas and New Year.

Martyn, I do hope you've got her a present.

hi martyn, i did send you a message via facebook as i find this site pretty impossible to use with my phone but i don't expect you've had time to go on there. sending you, doreen €€and your girls much love and hoping that if this really is the end of doreen's journey that it will be calm, peaceful and relatively pain-free.  from both of us xxxxxxxxxx