We Talk Brain Tumours

Pete- Just to say my thoughts are with you and your family  at this time. Yes, I do understand how you feel so calm. You knew that it was going to happen and you know that Ali is now free.As you say, She will love you forever. You have been an incredible inspiration to so many people, Now as you being another journey, we are thinking of you so very much. Do take care of yourself there.

Debs- I hope that all is okay with you and that it is just a wee side effect of maybe your treatment/surgery that has kicked in late there. You take care there. x

Dear Pete, I'm so so sorry to hear your news - the world will be a much sadder and duller place without Ali in it. In all your posts, you made sure her personality and your love for each other shone through - you did her so proud, and I know she made you very happy.

Thinking of you in the days, weeks and months ahead.

Love Debbie xxxxx

Dear Pete,

I am shocked and very sorry to hear your news today, am thinking of you and hope you have people round you.  I understand the feeling calm, maybe its due to our loved ones being peaceful.  You are the most wonderful husband and everyone on the train can see your love for Ali.  Love and strength to you

Sharron xxx

I've only been part of this site for five months and am not sure how it was previously but in this time, its been full of sadness with some beautiful people taken from us, thinking of you all xxx

Debs - hope tomorrow goes well x  I would join anything in the fight against this so if you have any ideas?

Debs- My daughter is year 9 and a level 7a at the end of year 9 is exceptional, I have read that the average is a 5 at the end of KS3 so the 7c already is fantastic!  Hope you are feeling well with no more dizziness x

Ah, I'm finding it difficult to stop myself from talking to Ali while I'm walking around downstairs. I'm just so used to telling her what I'm doing (talking mainly to myself I'm sure).

We've now put all of the care equipment into the dining room with her bed and closed the doors.  It's hard for me not to wander in there and see how she's doing.

Tonight I sleep upstairs in our bed.  Something I've not done since before Ali went into hospital.

Pete, I don't see any reason why you need to stop talking to Ali, hopefully she is somewhere where all evidence of the disease are gone and she is listening to you.  I often still talk to friends/family members I've lost, I hope that doesn't mean I am losing the plot - just that I miss them and need a word with them from time to time.  I quite often chat to a friend I made on here (Indie Chick) she had breast cancer that spread to her brain and she died with 5 brain tumours, usually as I am walking home from shopping.  I don't speak out loud (at least I hope I don't) I just chat 'internally' and somehow it gives me a feeling of peace and calmness.

You have been so amazing Pete, your love for each other is eternal, remember that in the difficult days ahead. Take the advice of those who are ahead of you on this journey, they have your best interests at heart.  As always, love & strength to you.

Well whadya know, all dizziness had gone by the time IACGMOOH came on, although it was still slightly there when I layed down in bed, but I got up quickly and nada, in fact I tried it a couple of times just to be sure (don't ask me why!).  This morning I feel great...........I have been a bit snuffly the past week, only in the morning, so perhaps it was something to do with that.  All I know is, I rarely speak out about anything to do with my BT as I hate a fuss, but it gets to a certain point on your journey that every little niggle makes you think its back!  Silly I know but I can't explain it, I just keep thinking that if I didn't know my prognosis, I probably wouldn't panic every time I get a headache or weird feeling.  

But in the grand scheme of things, I am still so very lucky and I do appreciate that.  I am so hoping that we will have a peaceful and uneventful journey on the train for a while.  We have had to make so many stops over the last couple of months, more than usual I think.  So much sadness for the ones left behind.

I value your company, especially those travelling without their loved ones now.

Love & Strength to all, and just for today you are getting it whether you need it or want it xxx

Dear Pete,

Hi, I'm new to this site but just wanted to pass on my condolences.  You will get through this with the love and support of your family and friends.

Take care.   Pilly

Debs, you arent being silly and I do think I would have had a couple more goes at getting up just to check i was OK.  Please go and get checked out though. 

I still talk to Paul, even though he died in July I know he is close to me and always will be.  Pete, there are no rights or wrongs, do what you need to do.  You will probably find after the funeral that you are totally exhausted, take offers of help, people mean well and want to show how much they care.

Joanna xxx

Pete

I am so sorry to hear your news xxx

Karen

Pete - I talk to dad all the time. We had a huge collage of photos of him made for his wake, I have it in my dining room and I tell him somethng every time I walk past it. I don't care what people make of that, it brings me comfort. My mum says good morning and goodnight to him every day. She has had many attempts at clearing his wardrobe and belongings but finds that it is far too soon. His hats he wore to protect his scar are still on the hatstand and his walking stick is still at the bottom of the stairs. It broke her heart to return his medications so anything else is too much at this stage.

We felt really calm and composed too. There is an element of relief mixed in the with the grieving. It was different for us as we had been waiting for ten days for him to let go. You must be absolutely numb with shock.

Do what you have to do to get through it and stuff what anyone else thinks. If anyone judges you then they aren't welcome in your life.

Keep going Pete, Ali is always with you, you will never be alone and we are all here whenever you need to sound off.

Naomi.x