We Talk Brain Tumours

Ange I was so sorry to hear your news, I can't begin to understand how hard it is for you and your daughter, it was hard enough for me at my age.  I just hope each day gets easier than the previous one for you and you can begin to smile at the memories you have.  Am not very good at putting stuff into words that sound right but sending you a huge hug, love and strength xxx

Julie - the cheek of the bloomin woman!  Diet? Do you think they hear what comes out of their mouths sometimes.  Even if there is a 'script' as such for certain situations, surely they don't just use it without thinking!  Hope the KFC was fabulous and forget reducing the wine!

Debs - you are so bloomin funny! I look forward to your posts all the time but why on earth have a salad at pizza hut - surely it was buffet day where you can have a taste of everything?  You have one amazing sister too.

Right BT book - picture this, mum is sat in a wheelchair, no use of left arm whatsoever in fact it just hangs, left leg almost gone too, nurse asks 'are you managing okay with day to day chores, you know, washing, ironing, cooking etc.  I nearly fell over too - I mean its not really funny is it - surely sense has to kick in sometimes with these damn questionnaires though!

Naomi - hope the little man has done well with his op today xxx

Love to everyone today xxx

Oh my goodness you all make me laugh so much, its no wonder I am addicted to this forum.  Debs - you have an excuse for not remembering everyone's names and posts, I just don't get why I can't scroll back and read as I type like I used to do.

Julie the stupid nurse is clearly following hospital protocol and you  do not fit the correct program, crazy lady needs to open her eyes and shut her mouth.  Not PC I know but for heavens sake......

Ladies, (pete and martyn if you are reading as well) I do need some help.  I hope you dont mind but I will probably contact you via PM when I return from my holiday.  If you have read my profile you will see what my occupation is and I want to raise the awareness of BT within my company but want some ideas of how to best do this.  You will have to bear in mind that I will also need to discuss other tumours so my thoughts are currently to link in with awareness months ie for BT to target March.  How would this help? what do we want/need?  what about other Countries (I have to think globally).  Initially I want a low cost option.  Please put your thinking caps on and contact me via PM if you have any ideas at all.  

I am off on holiday on Friday so will not have access for 10 ish days.  Off to visit my son, so excited as it is the first time I have seen him properly since the funeral, he is in his final year at university in USA, I have been summons to see the president (university not USA) and various others whilst there so have packed suitable clothing - well to be honest my son said its pretty cool so have bought lots of woollies then checked the internet - between 70-86!!  I think I will be recognised as the eccentric english woman whenever I venture out of the hotel

love to everyone

Joanna xxxxx

Hi all,

Sharron thanyou so much for your kind words.  I am now at the stage where I am picturing another group talking brain tumours, in a better place with the three newcomers, Naomi's dad and Gino having a pint and sharing tunes with your mum, all now able to make themselves understood.x

Debs and Julie you both managed to make me smile. You are great. x

Joanna have a wonderful holiday, you deserve it.  Feel free to pm me on your return and I will help in any way possible. x

Love and best wishes to everyone.

Ange xx

Joanna, I have requested you as a friend, not just because you can't write pm's without being one.....but just because (and I always hear that bloomin Milk Tray advert music when I write that ).

I did find out that International Brain Tumour Awareness week is approaching, 31st October - 6th November...... thought we should all know that, again.... just because!

Hope everyone has the best day they can, am hoping Naomi's little fella is recovering well from his op, that Ange and Sharron are not finding things any harder than they can handle.

I like the idea of another train filled with the passengers that are no longer here heading off to new places :)

I have to keep copying my message, going back finding everyone's names and then pasting my message back in.......having a real Dorey day today!!!!!!!

Love & Strength to all who want or need it xxx

Further up date on the DIET - After having KFC we had a DIET tea lol which consisted of fishfingers savoury rice and fried egg, whilst cooking this Alan munched nearly half a box of matchmakers lol

I just wished all the signs were better at the moment, but he does seem to be deteriorating, in personality, memory and just started to admit morning headaches which seem to disappear when he gets questioned.  This bloody beast is so so cruel.

On a lighter note (no diet pun intended) looking forward to this evening when we have our beloved granddaughter for a few hours.

Naomi, hope you little ones ok and recovering well.

love julie xx

Julie - now, what flavour were the matchmakers. its very important you see, mint and orange are good for you cos of the obvious herb and fruit its only the coffee ones that are bad!  lol.  I certainly hope you had some diet wine or beer also  x

I just wanted to say a quick hello and that I'm thinking of everyone here x I do read the board every day, just don't seem to have the strength to post.

Just to keep it short, my Dad's now well into week 4/6 of chemo and radio and last week on his 64th b'day his hair started to fall out. He's not had a good couple of weeks, but he's keeping his strength up.

For me, a return to morns only at work after being signed off for a week with stress-along with being brave for Dad and Mum; been carrying the weight of waiting for my husbands biopsy results on a mole. Yep, you guessed it-cancer! Luckily, it's appearing fairly early, so fingers crossed. Then there's feeling relieved that it is early (the words terminal make me live in fear of everything now), to feeling guilty when I told my mum (that my hub is hopefully one of the lucky ones and she didn't get that diagnosis for my Dad). Then there's trying to say the right thing and to be there for my lovely hub, while still living with the fact it is cancer.

No wonder I'm coming off the rails!!! I find it difficult to leave the house, but have a wonderfully supportive group of friends around me at work (which is why ive tried to go back this week).

Sorry, I'm rambling again!!

Love to everyone here x

Oh TashaBtn my heart goes out to you. When Mark was diagnosed I felt that the world was a fragile and dangerous place and I used to wonder how anyone was safe. I was sure that terrible things would happen to my family. I looked at people and thought , "How can you laugh and be carefree...do you not know whats lurking out there?".

Take heart from the fact that they have found it early and that millions of people throughout the world survive a cancer diagnosis. Its just that our little train has had so much bad news that we feel vulnerable. No wonder you are off with stress .

Take Care

cathi x

hi tashabtn

felt compelled to respond as i have been through your situation. i was diagnosed with early malignant melanoma in 1992. they removed it all when they did the biopsy and i am fine now.  try not worry i am sure it will be ok x