We Talk Brain Tumours

Naomi . Knew when I woke up and saw the flurry of posts that your Dads journey had ended. I am glad that at last he has found peace and that you and his family are free of the torment of watching him suffer.

.........when you are ready come join us in the other compartment. Its no easier...just a different journey.Wishing you love and support for the days ahead.

Going to my first MacMillan charity event tomorrow. Feel I have to start giving something back and I hope to become more vocal about BTs. A disease that robs a human being of mobility, sight, hearing, speech, empathy, personality, basic bodily functions, swallowing , breathing and most of all dignity and it is bottom of the pile when it comes to funding??? Why?....Maybe its not good for their egos to have a low survival rate.

Saw article about not offering  treatment to Cancer patients for whom they deemed there was little hope because of the ongoing expense. I do not know what it would have done to my family if they had said "sorry ...just go home". i know it was only 6 doses of radiotheraphy, but it still gave that tiny blink of light.....something to hang onto in the dark nights ( they would not be giving us that if there was no hope would they? ). In retrospect I know it only gave us 3 extra months, but it gave us time to say what we wanted to. Physically it probably drew out the dying process, but mentally it got us to and prepared us for the next stage.

Glad Ali is doing well Pete and Debs...hope you get rid of the headache.

Joanna is right...Hopefully some of us will meet up in the future and raise a glass( a real one) to these brave men and women that we have lost/

Love to all. Another sad day.

cathi x

Naomi

My thoughts are with you and your family, I have been a lurker on this list.

Tim my husband died aged 54, five months ago  from this blasted thing he was diagnosed last August and everything happened so quickly. , He too was in a hospice at the end  and I fully understand what you have gone through - as do so many here.

I have been loathe to speak or contribute to the discussion - as I have in the last year been on this downward roller coaster and did not want to offer sorrow and negativity - but I realise now  that we are all in the same boat. We are all going through the same thing, and even though I have not spoken before I have followed everyone stories and in one way I find it comforting - when quesitoning what happened, and what could have been done - I  realise that the journey is more or less the same for us all, that there is nothing we could have done to make it any different or better.

Regards

Ann .

((((Naomi))))

So desperately sorry to hear about your Dad. There's no more I can say which hasn't already been said. You've been the most wonderful daughter-if I can be just half like you on my Dad's journey, I will be proud.

Lots of love to you and wish for peace for you in the coming days,

Tasha x

Dearest Naomi,

Mixed feelings when I read about your dad's passing---Saddness for you and your family that you have lost the wonderful man that was your dad and also relief for you all that this awful journey/nightmare is finally over for you all. Take comfort in the fact that he is now finally at peace. You have been such a devoted, loving, caring, wonderful daughter that just imagine him in your mind, raising a toast to you with his pint of beer and saying how proud he is to have raised a daughter who was always there for him.

Sending you a huge cyber hug and wishing you and your family peace and acceptance at this very sad time.

Love and deepest sympathy from Beedarsh.

Debs ( with your Buttercup) please call your nurse now. She would want to know about your headaches. Don't wait till Monday. I may be wrong but I think your nurse is KIm and believe me she would want to know. Please call her. I'm sorry if I've over stepped the mark. Beedarsh

_Debs - I really hope your headache is hormonal but if it is still there tomorrow, please get in contact with your nurse.xx

Catg - which other compartment? Is there a section for the bereaved on here? I feel a bit lost and not sure where I belong now. I will of course come back on here in case I can offer support to anyone but for now, I'm floundering. Thank you.xxx

Thank you to each and every one of you for your lovely supportive comments. They have really helped me.

I'm feeling sick and weary today. I feel lost without visiting the Hospice taking up a large part of my day. I feel like I've been hit by an express train to be honest. At 4pm today we register dad's death. This all seems so surreal .....

I realise I am selfish in wanting dad back because I know how much he wanted release from this nasty nasty disease. Today I had a heated debate with my neighbour (he works for Cancer Research) and his reply was "not that simple, etc etc". Pffft. I'm not interested.

Lots and lots of love to you all. If I can help any of you in any way, I will. You'll never know how much of a support you have all been to me in your different ways.

Much love,

Naomi.xxx

Sorry to have confused you Naomi. There are many of us who were on this journey but when we reached our destination we did not want to leave all the friends that we had found on here. We have remained on this train...but I think we are just at the back of it now...watching reading and offering support if we can give any. 

There are other forums on MacMillan for the bereaved, but I could not find it in myself to leave this one.

I hope that you manage to sleep tonight.

Cx

Oh Naomi xxx

You have been a massive inspiration to me and I'm glad you'll still be popping in. You're not selfish in wanting your Dad, it's natural.

I appologise if what I write never seems to be enough/ the right thing-I'm not usually so rubbish with words (but being here seems to do it)!

Thoughts with everybody for a peaceful weekend x

My dear Naomi, firstly want to start with so sorry to hear you sad news and wishing you strength and love to you, mum and your family for this part of the journey.  I sent u a reply first thing this morning but the bloody thing would not print and now my words seem not so good.  You have been such an amazing inspirational person and want to thank you for your support and kindness.  Please keep on this site we very much need you here.  Take time now honey to take care of you and your precious family, your Dad is at peace now watching over his remarkable family.  I will raise a glass or more to you tonight take care and hope you get some rest lots of love julie xx

Help - probably left it too late for this weekend - Alan has dvt on his left leg, which is apparently still there since Dec last year been on tinzaparin injections, until 2nd debulk when he had a filter fitted.  Last night he complained of leg pains and his leg seising up, he had this about three weeks ago went to A & e and after being there all day told to go home as it was his old clot - Should I be worried.  Also noticed a slight indentation on forehead in a v bit like babies head - probably being paranoid but just thought ask and welcome any comments   Hope u all have a lovely weekend keep strong and keep up the vino Julie xxxxx