We Talk Brain Tumours

Loulou,  I am thinking of you and your family, as Debs said nothing we can say will ease your pain but we are all here for you xxx

Frizzer, I think we are in the same boat yet again, it seems this is becomming a familiar story lately, how I wish it wasnt!! xx

Supposed to be having first r/t today but have been advised to change mums mind as she deteriating fast, we would rather spend quality time now rather than have r/t and hospital visit, but it's mums wish, they have said they may cancel it now anyway.

Love to all xxx

Teen x

Hi Cathi,  Great news definately know what you mean about the three months, we are taking each day as it comes and if it is a good day boy do I try to do things I know Alan enjoys.  Enjoy the good times and so pleased for you with the GREAT NEWS  keep positive   Big Hugs to all xxx

Loulou, my thoughts and prayers are with you- we went through a similar thing with my mum; we got called in when she slipped into a coma so we stayed by her side day in day out, night after night, afraid to leave her, until a week later she finally went peacefully with me and my sister each holding a hand and saying goodbye... its so sad and a terrible thing to go through, but my mum was in so much pain she really needed to slip into her lasting sleep XXX

Hi Teen - yes it does sound very similar and very scary.  Will the hospital explain to her why they are cancelling?  Is she currently on steroids as well?

To be honest Pauline has been affected by the tumour and really doesn't understand what is happening.  She is not aware that the illness is terminal and feels that the tablets are keeping her feeling well.  She feels so happy and positive at the moment although has become quite childlike and very repetitive.  Her short term memory is shot to hell.

We saw the images of the tumour yesterday and I was amazed by it.  I was expecting a sort of ball type lump but it looked like someone had dropped some ink onto blotting paper and it had spread out.  They said it is very deep.

My thoughts are with everyone at the minute and I send love to all

Katiexx

Hi Katie and All

Well mum went and had first r/t today, our doc said give it a go but came and spoke to us whilst she was in there, told us she has deteriated quite alot since last week and maybe give thurs apt a miss and see him Friday again and to prepare ourselves!!! She has slept again nearly all day and was falling asleep in her wheelchair nearly at the hospital, now sleeping peacfully again xx

I agree Katie about the tumour it looks like an ink blot, mum has one big one and  3/4 smaller attachments and poss another on her right side, well they pointed out a swelling there, so not good news, but we already knew this, will keep thinking positive and just hoping really, mmm I wish ....

Love to all

Teen xxxx

Loulou, thinking of you at this trying time.

I've just seen my mother this evening and she's quite chatty and alert but she's very very confused. She had me looking for something in her bedside draw which wasn't missing. She's very weak now and is struggling to get around, even with her walker. This has developed quite fast since last Friday according to my dad.

It's getting hard now to spend time with her as her confusion is getting to us.

My wife Jane has gone from being physically reasonably ok (she has serious cognitive impairment from the tumour) to being unable to walk in the space of 2 weeks. I can just about hold her up long enough to put her on the commode and get her out of bed, in the wheelchair etc. I love that I can be her full time carer but the not-walking has made things suddenly so much more complicated. We were on a trip to Stockholm only 3 weeks ago. Now it all seems so far away.

I am sending positive vibes to all those going through a tough time right now.

SusieSue, hope you've managed to get things, if not sorted, at least in motion today for your daughter.

Love to you all PEABS XXX

My beautiful, amazing mum passed away at 2.08 this morning. She had her wish and was at home with all her family. I'm relieved shes not suffering anymore but i would give anything for one of her healing hugs. I feel so lost xxx

Oh Loulou - I am so, so sorry for your loss.  I cannot begin to imagine how you are feeling right now.  As you say she had her wish and was with everyone that she loved.  

My thoughts and love are with you and your whole family right now

xx