We Talk Brain Tumours

Hi Tiggy

I am really sorry to read your post aswell.  There are so many difficult decisions to be made along the way.

Hopefully you will get some positive answers next week.

Sending you a hug and my love

Take Cae

Ann x

Thank you Ann, I really admire you for the support you give to so many people on here. Bless you x

hi I have never seen these b4 only the pink one would love to know where to get them

Welcome Cadee, I am 43yo with an Anaplastic Oligodendroglioma and doing fairly well but stressing about my upcoming MRI.

Wish they had a pill to take away scanxiety!

Love to all on the train.

CraftyC if you google grey ribbons you will find a few.....here's a large one on wikipedia

http://en.wikipedia.org/wiki/File:Gray_ribbon.svg

Hope that helps.

hi Tiggy, sorry to hear your news.  Rob has a repeat scan on Thursday this week following his radiotherapy which finished nearly 6 weeks ago.  As he has not had any improvmeent yet from the radiotherapy I am dreading what the scan may show.  Our Oncologist has said he will start him on Temozolamide whatever the scan shows but I wish we could get some improvement.

Thinking of you

jenny

Hi Debs

Sending you some strength to help you through the pending MRI - not sure if this will help with the anxiety but we were told by a phycologist to do some deep breathing in through the nose out through the mouth and it helps reduce the anxiety that builds up throughout the day.

Steve hated the pending MRI's.

Obviosly, you can never eliminate the worry but easing it a little can help a bit.

Take care Debs

Sending you a big hug

Ann x

Thank you all for the kind welcome. Debs, I am sorry about the stress that goes with waiting for scans / results... I am waiting too. It sucks. Tonight is just one of those nights I wish there was someone to scoop me up and give me a hug!!

*hugs* to all of you.

For Susan206... this is not a thread that i'm involved in anymore but i do pop in now and then to see how everyone is doing ... i'm trying to recall some info regarding Avavstin for you, however not now sure of the true facts but someone may be able to clarify for you.  It was some months ago now on the lines that once Avastin has been administered nothing else would work after ???  my daughter had Avastin ( no lottery postcode !!) combined with oral Irinotecan and when that failed went back on to temozolmide ( which had worked well with rt and subsequent year) it grew even more. So , I would ask that if Avastin was prescribed, would this be 'the last resort'?? Someone will come along and either clarify or quosh ? ...and if ive been dreaming, forgive me...head still battered x x x

Best wishes to all x x x

Lynn thank you for the information about Avastin. I want to go along to the next appointment as fully briefed as possible so I do appreciatei it.