We Talk Brain Tumours

Several emails of praise? Really?!! They can't even spell glioblastoma!

Still, at least they had enough decency to reply to you. I haven't heard a word from ITV.

Hello Sue

I didn't see the programme 'Wild At Heart' Would it be bad for me to watch it? Om=dd isn't it? When you are suffering , you just seem to want to suffer more! I have attempted to get an early night - Inspection at school tomorrow! Almost full time, and now this extra stress. The almost full time actually means full time but a few extra hours to get things done in. So, got to bed - but can't sleep. Every time I try to switch off images of Hannah come into my mind, and alawys images of Hannah in those last  weeks - Hannah in her wheel chair, Hannah trying to feed herself, Hannah trying to walk - all images of Hannah being deprived of everything she was. I can not think of Hannah happy - and us happy. It seems a distant memory, lost forever. So, my solution, get up and come on the cancer site. At least it gives me chance to communicate about the only thing that matters to me just now. I do feel so lonely when those around me don't talk about Hannah, andtry their best to get on with things, I understand and I reallydon't criticise but it really doesn't make things easier for me - I feel so isolated in my grief, even though this evening I went to counsellling so i should feel a bit relieved. And now of course tomorrow I will be  rough and under par, when there is so much stress at work too.

Suppose I should try bed again soon

Hope you are bearing up, whatever that means

Merilyn x

I don't believe they would have emails of praise as anyone who has experience of GBM would agree that the programme caused much upset and perhaps we would all think more of them if they acknowledged this.

Love to all  who unfortunately know and give us all strength. I'm not doing great on the strength side but keep trying. xx

Dear Sue

Two things - when was that awful programme on? I want to form an opinion

Also, something in your letter strikes a chord. That is what is happening to me - when I try to sleep all I can think about is those last  twelve weeks when Hannah had everything humanly imaginable done to her, and in which GBG attacked every bit of her body and brain. That is all I can think of, and it is so , so, so painful and the yearning o see her is so strong it almostbengulfs me

Merilyn x

Dear Sue

Two things - when was that awful programme on? I want to form an opinion

Also, something in your letter strikes a chord. That is what is happening to me - when I try to sleep all I can think about is those last  twelve weeks when Hannah had everything humanly imaginable done to her, and in which GBG attacked every bit of her body and brain. That is all I can think of, and it is so , so, so painful and the yearning o see her is so strong it almost engulfs me

Merilyn x

No reply here either,  but can do without such a wishy, washy, cop out of a response such as that!

Had it been about a stupid tram crash in Coronation Street, whatever in Emmerdale or that terrible Eastenders, then that would of been of far more importance wouldn't it????  I am still simmering at their rank ignorance and stupidity.

I feel for you all. Martyn XXX

Thanks Martyn. It's true what you say - look at the controversy surrounding the recent Eastenders' storyline (which was also dealt with insensitively and incorrectly. How do these overpaid tv execs sleep at night?).

Merilyn - I'm so sorry to read of your sadness and grief. The only grief I've ever experienced has been through miscarriages and they were bad enough so I cannot begin to imagine the pain you are going through. You have helped me so much with understanding GBM and you are in my thoughts. Keep going if you can. Naomi.x

A Message for Peabs

I have just been reading a new forum headed Dissapointed and the lady writing it said that Cancer Research UK are organising a Marathon called Shine - Join our night time Marathon and beat Cancer.

She was disappointed because the cancer her husband had was not listed as a fund raiser.

I have just looked at the site and was pleased to see Brain Cancer and Childrens Cancer are two of the 12 Cancers.

If you go to the home page and scroll down you can click and scroll through the cancers types that people can raise money.

Addressing this to you Peabs as I thought that it would of interest.

Take care - think about you all the time.

lol Ann x

Hi  Merilyn,

The programme was on on Sunday at 9pm ITV, I don't normally watch it but then nothing is normal for us anymore is it........  I just use TV as a distraction.  My other daughter was so angry she wrote to the chief excecutive (I can't remember his name but she posted it on the site, I don't know if she has had a reply yet. I will send you a pm later this evening. Thinking of you and all the others on the site.      Love Sue 

I received the below today.