We Talk Brain Tumours

FormerMember
FormerMember
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Hi everyone

I am just trying to navigate myself around the site.  Still struggling, but thought I would try and make a temporary place for the WTBT folk as we are all wandering round like lost souls at the moment- don't know if this will work- but worth a shot while Mac try and resurrect the old thread

Love Ali xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi IDOF

    Sending you my love and thoughts too

    Take care

    Ann x

  • FormerMember
    FormerMember in reply to FormerMember

    Moving us up for newbies struggling to find us

  • FormerMember
    FormerMember in reply to FormerMember

    Hello to you all - hope you had a peaceful Christmas and New Year.

    I just thought that I would let you know that, very sadly, my father passed away on Christmas Eve, having fought this terrible illness for 18 months.

    Although his ending was probably quicker than we thought, he was incredibly peaceful and not in any pain.

    Despite numerous Bank Holidays, we have now had a service for him, plus 2 nights of prayers at home - so we start 2011 having to face a life without him but at least with a clean sheet.

    So many thanks to all of you who have replied to my questions/frustrations/ventings/ramblings over the last 18 months - you have truly helped.

    I send all my good wishes to you and your families and peace for whatever stage of the journey you find yourself on.

    Regards

    Samantha

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Samantha. Am so sorry to hear of your dad's passing. Take things day by day love, all of you. It will be hard now. But we are all here still if you need us.

    Take care. Love PEABS XXXX

  • FormerMember
    FormerMember in reply to FormerMember

    Hi All,

    Haven't been reading here for a couple of weeks, my husband sadly died on the 20th December after a brave 6 month long battle with a GBM, this is a cruel disease.

    I just wanted to say thanks to everyone who posts on here, just reading other peoples experiences is a comfort to anyone either fighting a brain tumour or living and caring for someone who is.

    I feel so lost at the moment, I have 2 beautiful children who are so supportive, but I still feel so alone, I miss Brian so much, the house is empty without him.

    Have his funeral on Tuesday, I shall try to make him proud.

    Hope you all get the help and support you all need on here,

    Maz64

  • FormerMember
    FormerMember in reply to FormerMember

    Samantha & Maz my sincere condolences to you and to your loves ones Peace Be The Journey.

     

  • FormerMember
    FormerMember in reply to FormerMember

    So sorry to hear your news MAZ   XXX thoughts are with you x

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Maz. Am so sorry yo hear your news. Tuesday will be a tough day for you and the family. Be kind to yourself and grieve however you want to. I hope that you have family arouond to help you through the next tough part of this journey.....One day at a time love.

     In loving memory Pictures, Images and Photos   For Samantha's dad. For Brian, Maz's husband.

    PEABS XXXX

  • FormerMember
    FormerMember in reply to FormerMember

    Dear All, I am a bit new to all this so hope I have found the right place to ask some questions?  My husband has recently had 6 weeks radiotherapy to his GBM4 which could not be operated on (misdiagnosed as inflammation in July and following a deterioration diagnosed as GBM in October).  Prior to starting the treatment he had lost the use of his right leg and arm and also most of his speech.  The consultant is hopeful that the radiotherapy will help with this although it has been made clear that this is not a cure.  He finished treatment 2 weeks ago and has been very tired this last week.  His leg has started to work a bit better but his arm is still useless and some days he manages to get a few words out and other days nothing makes sense.  We were warned that it can take time to see the improvement but can anyone share their experience about this and how much of an improvement we might see.  I know everyone is different but I am unsure whether we are waiting for a huge improvement which isn't going to happen.  Thanks 

  • FormerMember
    FormerMember in reply to FormerMember

    Samantha and Maz so very sorry to read your posts with the news that your loved ones have passed over. As time passes things will slowly get better although it will be hard for you to believe at the moment. I also would like to send you my sincere condolences to you both at this very sad time.