We Talk Brain Tumours

FormerMember
FormerMember
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Hi everyone

I am just trying to navigate myself around the site.  Still struggling, but thought I would try and make a temporary place for the WTBT folk as we are all wandering round like lost souls at the moment- don't know if this will work- but worth a shot while Mac try and resurrect the old thread

Love Ali xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Just want to send love & strength to all on here.  Can't bring myself to read the posts, just too sad and scary.......I am not sure I want to know the details of how I will end up  ...... please don't think I am being rude, I am not .... I am just being honest as a BT patient rather than a carer. 

    I do think its great you have each other on here at the hardest times and it seems there are lots of you at the same part of the journey at one time and its heartbreaking.

  • FormerMember
    FormerMember in reply to FormerMember

    Debs

    Sending you love & strength too. No one will think you are rude, it's understandable that this site is scary for someone who is a patient rather than a carer. I hope that you remain well for a long, long, long time and that you enjoy life to the full.

     

    Sue xx 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Sue,  that was indeed a very well thought out and delivered post.  I'm sure that Sally and Robin would agree, so thank you from us all.  I just wish we could get Doreen out of the bed for a little while, but her severe osteoporosis prevents the use of a hoist and sling, she must have been there for 5 weeks or so now and it goes without saying that the toileting situation is causing a problem!  Today has been a bad day, I'm just now awaiting the evening carers to help clean her up, fortunately? she isn't aware of the condition she is in today.  I really, really hope that this doesn't drag on for much longer, is that a terrible and selfish thing to say? I hope not. Love and lots of good wishes to you and Pete. XXXX

    Best wishes to you all, Martyn XXXX

  • FormerMember
    FormerMember in reply to FormerMember

    Martyn It is neither terrible or selfish. It is LOVE. None of us want to see the suffering of our loved ones and it is indeed fortunate perhaps sometimes that they are unaware of what may be happening to their bodies. I sympathise with you 100%. Sue xx 

  • FormerMember
    FormerMember in reply to FormerMember

    Dearest Friends

    Just a quick note to let you know that my darling Jan skipped lightly onto the station concorse just after seven this evening.

    Much love to you all - Robin

  • FormerMember
    FormerMember in reply to FormerMember

    Robin,

    We are so sorry my friend, our carriage seems so empty now.

    Doreen and Martyn XXXX

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Robin, so sorry that your beloved Jan has lost her battle. What a cruel illness this is, yet another lovely family losing a very special person. Sending you love.

    xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Robin, so sorry to read that your darling Jan has passed.

    I pray that a cure is found soon.

    Love to you and your children.

    Fee xx

  • FormerMember
    FormerMember in reply to FormerMember

    Martyn and Suetoy couldn't sign off from my catch up session without sending you both a hug. Both of you are facing difficult times, both of you have cared for your beloved partner with so much love and devotion for so long. Thinking of all four of you as well as all those other whose lives have been blighted by BT.

    Love to all,

    xxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    I'm so sorry Robin. But what a brave battle your Jan fought eh?
    Wish you and the little ones all the strength in the world.
    Caroline xx