We Talk Brain Tumours

FormerMember
FormerMember
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Hi everyone

I am just trying to navigate myself around the site.  Still struggling, but thought I would try and make a temporary place for the WTBT folk as we are all wandering round like lost souls at the moment- don't know if this will work- but worth a shot while Mac try and resurrect the old thread

Love Ali xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Just bringing it up where it belongs.

    Love to everyone

    Allison xx

  • FormerMember
    FormerMember in reply to FormerMember

    And me too. Best wishes to all - Robin

  • FormerMember
    FormerMember in reply to FormerMember

    Martin Just wanted to add my message of support to you,Becky & your family at this particular time. No part of this journey is ever easy but I hope that for all of your sakes it is as peaceful a time as possible. xxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Very quiet on here lately, I know several of us are going through very, very hard times but I hope others are as well as can be.

    Things in the lowlands are going on their way, in their own time.
    Living abroad, at least in my case, means that I'm quite isolated.
    W and I were a very self sufficient pair (emotionally not in the vegetable sense!) so, inspired by our Mandy I've signed on for counselling (is that how you spell it?) from a local hospice.
    We didn't actually use the local hospice just district nurses and our GP, so I don't know the people from the hospice. Have the intake interview next week and see how things go. I don't feel in dire need of help but just someone to talk to who has seen all this before and I hope will have some insights or reassure me that I'm vaguely on a reasonable path.
    Here, most counselling is done by what is called 'first line psychological help' so it is part of the medical services but my feeling was that I'd prefer to use a volunteer from a hospice as that seems to provide more of what they call a  'walking stick'  rather than see a professional who would make bereavement feel more like an illness.

    The paperwork is horrendous - at least I find it hard having to chase people up to reply. I saw on some of the other Mac threads that this seems to be a very typical response from banks etc. I suppose it's the added uncertainty of finding out the exact position that contributes to my irritation.

    I'm very much looking forward to the lighter evenings as evenings are the worst part of the day for me. Also I suppose that's when we spent most time together when W. was well.

    Our puppy Bluebelle is mostly a bright part of my life - though on bad days I wouldn't say that! She is 6 months old now and we go to Puppy Classes every week. They should really be called Human Classes as it's 90% training the human to behave in a consistent way!

    Anyway, as it's quiet on here, I thought I give a bit of an update of chez Miggins.

    Sending strength and a big hug to those of us who need it at the moment.
    Martin, Daisie, Suetoy sending you all love and a hug. xx
    Robin, hope your builders are behaving. xx
    Love,
    Miggins xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi CH-hope counselling is helpful for you. Cant say I have thought about it yet. Felt tonight I have been doing kind of ok-obviously waves of grief that sometimes resemble a tsunami. Then I realised I have only done 5 weeks and the thought of how many more weeks I have without Mark was so -alone. Im not sure I am looking forward to the better weather-bah humbug!. Know it sounds strange but at the moment it is ok to snuggle in by the fire,surrounded by my candles. When the weather is better I will be outside-watching happy couples living life together. Sorry if that sounds bitter it wasn't meant to be. Must say inforrming our Bank was the easiest task. Just took Death Certificate in and bank details and lady took photocopy and details and even changed beneficiary on Stakeholder Pension-all in 10 mins. I was suitably impressed. I had put off going to the bank because I didnt want to have just my sole name on Bank book! Sounds funny but as we got married just a year ago I was so excited seeing our joint names on things-even the Gas Bill which made Mark laugh as I hopped around the lounge waving the gas bill whooping with joy as it had Mr and Mrs. on it. Simple pleasures.  Love to all others reading who are struggling at the moment. x x

  • FormerMember
    FormerMember in reply to FormerMember

    I bet you are right about that Y&Y!
    As soon as the nights get lighter, I'll be moaning on about wanting darker nights back!

    Changing account names was also OK here - though I also didn't like doing it - at one time had a bit of a tug of war with the person who wanted to take W's old cashpoint card but I had the firmer grip! I know that will sound odd but things like that can be hard especially at first can't they.

    Do you remember energy? I think I used to have energy but it's not here at the moment!
    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi all. I haven't been able to even read some of the replies on the thread lately but am getting better. It is coming up for six months and now and finally the last bank has got its proverbial backside in gear and written to me despite my requests. I should have all the paperwork sorted now and just need to put it all in an understandable package for future reference. Even the tax people have paid up! Please take care of yourselves and big hugs to anyone who wants or needs it.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi CH-ah yes-energy. All seems a far distant memory. Met an ex neighbour today. Her husband and her retired from working 4 years ago although they are not that old. She was moaning that all her husband does is sit on the computer. Doesnt want to go out with her for a walk. She said she may as well be on her own. Didnt tell her about my life(havent spoken to her for maybe 8 years properly). I had a few tears when she had gone. I said to my daughter"why didn't they take her husband,they dont get on anyway".Of course I didnt mean it and had good laugh with my daughter because I had tried to kill her old bu+++r of a husband off! Poor man he is quite inoffensive. Glad you managed to hang on to W's cash card. All Mark's are safely here in his wallet!.  If I see sight of any energy I will send some your way. x x

  • FormerMember
    FormerMember in reply to FormerMember

    I might be pushing CH out the way in the queue for energy - I was only saying to CH the other day that I can't quite believe how lacking in energy I am and I really am not doing anything except surviving each day however that panes out.

    Hi to Padster, good to see you pop in - paperwork up to my eyeballs here - the system seems unbelieveably and unnecessarily complicated - no inheritance tax to pay but so much to prove?  I don't even know what some of the words mean so I've taken the tact that if I've not heard of the word then I've never come across it so I can't have it????  Hopefully I'm right!

    Thinking of you all - I want to say more but words are failing me - love to everyone xxxxxxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Mandy- saw the time of your post. Hope sleep doesnt evade you too many nights. I seem to sleep ok at the moment though I put that down to my Sleep Easy tea! Surviving each day seems to require more energy than anything.X