We Talk Brain Tumours

Cat!!!  You're so bad for promising me for something I really won't be able to deliver!

Pam, I've had a little chat with you on Facebook earlier, but I just wanted to echo what everyone else has said here.  Tony's comfort is paramount.  Hopefully, you can get him home soon.

Hi everyone

I know i don't post often but I do try and catch up with you all.

Pam I hope you get Tony home soon. I don't know what I will do when I am at the same stage of the journey. sending you BIG HUGS ((((((xx))))))).

Debs sending you lots of good Vibes............ Chris has just has an urgent Mri after his seizures on christmas eve. We get the results Next Monday. So I know ,you will know what it's like in our house at the moment. I'm sure that Damien (BT) is still sleeping but I know Chris is terrified.

Zoe sending you lots of strength and peace. Chris is almost coming up to 18mths since Damien ( my name for Tumour) was found. He was given 6 to 18mths and he is still here fighting. He had the RT and Chemo. followed by 6 mths Chemo. He didn't seem to have any really bad effects from them. He was very tired at the end of the RT. He also seemed to have cold symptoms on the last day of the chemo tablet. His memory is shot now, but we walk all over and do at least 4 to 5 miles every Fri. Hoping to go this week as he seems to have recovered well after his recent seizures.

Julie where are you love ? How are you?

Love and peace to everyone

Denise

Thanks for the birthday wishes

Pam - hope you get Tony home soon if thats what you want.  Paul wanted to die at home but once he had been to the hospice, he went as a day patient, and later following hospital admissions, he loved the staff and he made some good friends there too, we had a good experience, open visiting and I took one of the dogs in to see him, he chose to die in the hospice and we all felt comfortable with this.  You have to do what is best for you but please make sure you have the support you need (and want) at home

Pete - impressed you are going to run the hike :)  I am happy to sponsor you, 

Denise thinking about you awaiting the scan results, always seems the cruelest of things, we were lucky and only had to wait once, each time we were asked to wait after the scan and given the results within an hour, even that make me feel sick.  

Debs - sending good vibes

Love and strength to everyone

Joanna xxx

Julie, hoping things are ok with you......sending extra love & strength.

Denise, wouldn't it be grand if Damien & Buttercup would elope and sail off into the sunset together ..... if only.  Yes I totally understand the tension in your house at the moment.

Cathi, oh yes my beautiful lilac airer, constantly heaving with washing, its bloody brill and I am saving the planet, one airer and one carrier bag at a time (Tony goes nuts at how anal I am at using my 'green' shopping bags, heck I do it more just to annoy him now lol).  Did you hear about my escapade with twin tub powder in my automatic washing machine..........cleans the floor beautifully!!!!!  

Oh I have my appointment to see my oncologist for my results, I've had that since last August 2011.....although gawd knows what we will talk about if the bloomin MRI doesn't come through soon.  

I am going to be really naughty  when I get the appt letter, there is always a checklist attached ........ one of the questions states: if you have had brain surgery ring this number.  Well it takes flipping hours to get through and I've rung that number umpteen times only to be told yes your fine for the MRI, really, well I never, wonder how I got through the other 20 odd times!  So bugger it, I am not ringing the number but I will fill in the history form (not that I can fit all my previous info on it anymore lol).  I do like to bend the rules just a bit, being a rebel makes me feel better :)

Pam, hope Tony has settled at least for the time he needs to stay before you can get him home.

Love & Strength to all who want or need it xxx

Pete...Sorry. Was only kidding....  See how easy it is to start a  rumour? On this Forum, you can now be our official Vitual Marathon Runner!

cathix

Pete running up Mam Tor - surely not ?

I was told he wanted to be the first to volunteer for the "naked" reverse bungee I might organise next !

Anneb63!

I think you'd definitely sell tickets to that one. (And probably some of those little theatre binoculars too!). 

Sorry Pete! ;o)

Pam

x

Oh brother...!

This is what happens when I'm surrounded by women!!!

DEAR PAM HOPE YOU HAVE YOUR TONY HOME WITH YOU.

SORRY NOT BEEN IN TOUCH WITH ANYONE. COMPUTER BROKEN, BORROWING SONS 'DONGLE' TONIGHT.

BEST WISHES TO ALL

LOVE JMD XXXXXX

Hi everyone,

Alan had a stroke and is regaining slight movement to the arm on the right side, after a weekend of basically being alone from the medics such a good thing we have friends in medical places that on Monday the mac nurse visited, is putting in place end of life care, hospital bed arrives today (we have to call it an adjustable bed), I am looking after my man as best I can with as much dignity for him but really really is so sad.    GP visited yesterday.   Advised that he could have another TIA at anytime which more than likely would be fatal but obviously unable to tell when.  Spent the whole of yesterday seeing OTs District Nurse Carers etc.  Organising our room for the bed.  Last night was our last night together in bed so sad but can t loose control on auto pilot.  I know time is very limited and feel in a dream world if that makes any sense, sorry no nightmare is the better discription.I will and I am determined to give my beloved husband the best treatment in the world.   Time for me later.   I am very tired.  Thanks for all your messages and support I have read them all and am hubbled by all of you, sorry not to make any of this personal to you  but I know you will understand

Hugs love and strength to you all    Julie xxxxx