We Talk Brain Tumours

Naomi.

Thinking of you all tomorrrow.

Ange...Thinking of you and your daughter. So nice that the Rugby club have come up trumps. Human kindness is out there in all forms , sometimes its times like this that helps us to see it.

Cx

Sharon,

Same thing happened to my Nan a few months after my Grandad died of Gullet cancer.  She had a small stroke followed by a massive one.  Personally I thought it was because she had given up!  She recovered and went on to live another 10 years on her own (in a warden controlled place though). I remember after my seizure the docs at the hospital made me smile and I was asked the same thing after brain surgery, I have since seen the stroke campaign saying that if someone can't smile....good chance they've had a stroke......why didn't the GP use this simple technique!  I hope your Dad continues to improve daily.

Well I've done washing up the old fashioned way, no not by hand, I do that anyway as we don't have a dishwasher, but with kettles of hot water.  I am now waiting for British Gas, they are coming any time between 12 midday and 6pm tonight!  Fingers crossed everyone my boiler is fixable and won't cost us anymore than the £99 quoted so far!

Love & Strength to all who want or need it xxx

Oh lord Debs...Just imagining you stomping the clothes with your feet in the tub....

Dont know about you but its been cold up here recently and I have had the heating on for weeks..hope you get it fixed quick.

Noah and his Ark sailing by my window today. What have we Scots done to deserve this?

Cx

So sorry Sharron to hear your news, it really is a cruel world and can t understand poor medical support.

Sending huge hugs to u and all on the train Julie xx

Hi all,

Shaaron, hope things are a bit better with your dad.

Naomi, wishing you well for tomorrow.

Gs funeral is on Wednesday and we are hoping to make it a celebration of his life, but it is going to be so hard.

Ange xx

Thanks for your messages, re my first post. Havent been on here much as still struggling to come to terms with what is happening to my sister but those of you who are actually in the same unfortunate situation as my sister will know more than me and im hoping help me out a little.

Well my sister went for a radiotherapy appointment today (at Colchester) and he said he wants her to start treatment within the next 3 weeks, she will have 4 weeks spread over her brain and then 2 weeks completely centred on the tumour. He has also sent her biopsy off to Birmingham to be tested for something else and if it comes back with these cells then he also wants to start Chemotherapy as well, but he has stressed that this is no way going to be a cure and he is only hoping to prolong her with a good quality of life for longer.

It seems that we are getting so many different bits of information, the Dr at Queens (Romford) said it was half and half cancerous but then the nurse said if she could grade it it would be a 2 1/2 2 3/4 but she cant so its a 3, and that she will only be given radiotherapy and now this radiotherapist is saying its definately a 3 but he wants to check for other cells and maybe start chemo and all this time my sister still hasnt fully recovered her speech or memory 100%, will the radiotherapy make her worse?

My head feels like its going to explode with all this information and questions i have yet alone my poor sister who is still recovering from her surgery and has to try and understand all this :-(

Llowe1979

My dad was treated at Essex County, Colchester. His oncologist was Mr Lamont. He had his surgery at Queens by Mr Bevetti. From diagnosis to start of treatment it took four weeks. Sorry to hear you're struggling.xx

Sharron

I'm so sorry, I have only just caught up with your sad news. I have no idea how you are coping with this. Your poor dad, heartbreak is a genuine physical ailment. I hope he is receiving good care and you and your family have lots of support. Lots of love to you all.xxx

Well, we have had a hellish couple of days with Herbie (my son - don't laugh at his name!) and his post-surgery complications. This morning I noticed he was smelling like rotten fish and rang the hospital. They wanted him in pronto so off I rushed. We finally got out of there at 9.10 tonight. Tomorrow at 8am my husband has to take Herbie back in to hospital to be assessed by the surgeons (maybe more surgery, hopefully "just" an infection but with my luck, probably not). They will be an hour away from me. At 10am I am leaving for my dad's funeral - without my husband. Worse than that, I DESPERATELY want to be with my son in hospital but can't. It's a no-win situation. I want to concentrate fully on dad tomorrow but I know half of me will be elsewhere.

Sorry for the misery people :(

With love,

Naomi.xx