We Talk Brain Tumours

Sounds as if your husband is one fit man, which must be  all to the good I think.
After his radiotherapy Jay has scans every 3 months, then 6 months then yearly. When he had gone 5 years he was discharged from Oncology.  What a day that was, he came out  from seeing his consultant with the biggest, silliest grin all over his face.All the other patients gave him a standing ovation, I think he gave them hope. He was given a card with direct number to his consultant and his named nurse, so if he had any worries, problems etc he could get straight back in touch.
Then last May, he began to have a return of the symptoms he'd had before, so rang them and you know the rest. 
This time around its not so scarey, we know what to expect, although he didn't have chemo last time,  which he had this time. To see him now, you wouldn't know there was anything wrong with him, apart from the fact he gets his words muddled sometimes and his short term memory is poor.
He has to have a hearing test on Thursday, but that maybe nothing to do with Jeremy (the tumour) its a family problem. All too easy to blame everything on the tumour, he just doesn't like to admit it could be an 'age' issue!

Anything I can help with or if you need to off load. please feel free.
Kathy xxxx 

Hello everyone,

My partner Bernd had his surgery on Saturday and is now at home recovering. He is doing very well but he is frustrated by his difficulty speaking. We knew this might be affected so now we have to deal with it. He knows what he wants to say but cannot get it out. At first he could only say yes/no/hi but is now saying sentences so it's definitely improving. We saw a speech therapist at the hospital and have been going through the exercises he gave us.

The tumour analysis results aren't in yet, sometime next week. Just trying to find something to enjoy in every day at the moment. This morning I drove Bernd and my mum (who's over from Australia at the moment to help) to Richmond Park which was lovely in the sunshine.

So pleased to hear the surgery went well and Bernd speech is improving.
How did he find the 'procedure' as they call it, I'm interested as this is what my son may be facing. 
Richmond Park in the sunshine sounds beautiful
xxxx 

Jill..Pleased that Bernd's surgery went well. One thing less to worry about.

There was a sad but uplifting article in todays Mail about GBM4. One of the things mentioned is that there is a Charity called Rosemary Trust in the Hampshire area which may be of use to some of our group in the South?

Off to do Midnight Walk for the Hospice tonight as a tribute to Mark. We have managed just short of £7000 which is how much Prince and Princess of Wales Hospice in Glasgow have to raise from Charitable donations each day!. Hope we dont keel over in the heat.

love to all 

Cathi x

Hi Marney, Bernd can't remember much about the procedure. He can remember 'flashes' of activity such as them touching his brain and him involuntarily moving an arm or a leg, but he can't recall everything that happened while he was awake. He did say it was a very weird experience! But not distressing or upsetting, I hope that helps.

To Jill, very glad to hear the surgery went well and that Bernd is making a good recovery.

We have had a difficult week as Doug has continues to slow down, though we have spent the sunny days enjoying the garden. Our appointment with oncologist was a difficult one as all Doug's symptoms indicate that the tumour is probably growing again and no more treatment available.  They have brought his MRI forward to the 8th June to see what is happening. The Dr was quite direct in what may happen, all very difficult for us to hear.  Doug's main concern is to see our youngest daughter through her A levels, which take place in 3 weeks time, she has to get 3 A's so she can take up her offer at med school.  His steroids have been increased along with the Epilim, hoping that these may improve some of his deterioration.

I don't know where we will find the strength to get through this, but the hospice nurse visited today and has a very calming influence on the situation, we are lucky to have this support..

Best wishes to everyone

Sue

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I have been unable to post for some reason but hopefully this has now been rectified.

It is with great sadness I am writing this post, on the 20th May at 7.40 am my beloved Alan lost his brave fight.  

Julie x

No words, Julie, just love, concern and hugs. Everyone here is right by your side.

Little Jen X

Julie, so very sorry to hear about your loss. Words seem inadequate. Take care and look after yourself. Thinking of you .......... Beedarsh xx