We Talk Brain Tumours

strength to u pete i know it must be so hard on you as you know one day at a time xx

Pam love your post about all is forgiven and the trip to the jewellers - very similary experience.  my daughter went to dubia for a short break couple weeks ago and my son said to alan that if he wanted to get me jewellery for christmas which he has done for last 32 years then it was cheaper there and Charlotte should get it.  I gave the hugest hint that i had wanted a diamond eternity ring for our 30 th aniversary but we had not the fund s at that time so hint was heavily given... not to be and cut long storey short i was taken to our friends shop local jewellers in words of romantic hubby this ones cheap enough will that do   -accepted as did not want any drama its the thought that count s isn t it? anyway today alan taken my daughter to same said jewellers and bought her a very very expensive ring ||||  do u know where i am coming from? or is it me.......feeling bah humbug ......i love my man so much but really having a hard time as realising so every day he has disappeared   u probably all tihinking wtf but i know what i am trying to say and feel better for expressing it Julie xx

Laura,

So sorry to hear that you've had to join us, but we're here to help and support if we possibly can.

Hopefully soon, your father will gain a sense of acceptance and start interacting a little more, but it's a huge emotional burden to undertake.  High blood sugar is a known side effect of the steroid, which result in steroid-induced diabetes which is usually treated with insulin/metformin/glycazide. It looks as though your oncologist felt that less medication is the better course of action or there might be contra-indications for treating the diabetes.  At any rate, I hope the situation stabilizes into some semblance of comfort soon.

I had the absolute pleasure of meeting with Joanna last night as she was working relatively close by.  It was so good to spend a while just having a really good long talk.

Your experience has given me a lot of hope, going to try my husband on tart cherry juice. He was diagnosed a month ago and is on 10mg steroids, hope we have plenty of time together.

Something I just saw on the news.  A brain tumour patient has been refused a claim on life insurance because the diagnosis was within 12 months of the end of the cover.

http://www.bbc.co.uk/news/uk-england-kent-16010848

A terminally ill man's family could lose their home in Kent after his life insurers denied him a payout of more than £200,000 because his policy was in its final year.

Paul Holland was diagnosed with a brain tumour four months before his deal ended with Royal Liver.

The company claim they only pay out if a terminal illness is diagnosed 12 months before the policy ends.

For those of you still on your journies, I would highly recommend that you contact your insurance companies to make sure that you're adequately covered and if not, now's the time to start shouting about it.

All the best to you, Araminta.  It's good to have hope and to try other avenues, but try not to pin all your hopes on things.  Yes, good things can happen and can give hope, but try to prepare yourself for the fact that things won't continue to be good.

All we can do is the best that we can, for as long as we can.

Hows work Pete?  Disgusting about the insurance company!!!!

Work managed to fry my brain rather quickly...

But you can sort of see the point of the insurance company as someone would be left without cover if their terminal illness extended past the policy maturity date.  But you'd think that they'd negotiate adding a couple of years onto the length in these situations.

Morning all, I originally posted in the Brain section of the site but advised this is the busier forum.

About 4 weeks ago My Dad (59) was told he had a brain tumour after his op and they told him it was Grade 4 GBM,  This week he has been having chemo (Temozolomide) along side a 10 day course of Radiotherapy , apparently he has 3 areas were the are tumours, the main big one was removed during the op but the smaller ones remain.

He seems to be coping quite well ( better than my Mum J ) but the one thing that is bothering him is not getting any sleep, oh yeah and a buzzing in his head . He is keeping as active as he can, doing a little bit of gardening etc. The other thing he does is make model planes but I thing he is struggling to concentrate.

All the best to everyone else effected by this

Dan

Welcome Dan. Sorry you have joined us but you are on the right forum for support.

If your Dad is on steroids then this is probably why he is not sleeping so well. The "foggy" feeling in brain is a common symptom of BT as is the difficulty concentrating. It sounds as though your Dad has a positive attitude and is trying to keep as active as possible which will stand him in good stead.

It is early days for you all, and your Mum will still be trying to comprehend what has happened to your lives. She obviously has a caring son and its good that she can let you see that she is not coping. She will get better once she has  a role in dealing with this dreadful disease as her previous one as a wife with a future and plans, has been swept away from her.

Wishing you strength for the days ahead.

Love to all on  this windy morning 

Cathi xx

Welcome to our new travellers, so sorrry you have to be here.  Dan i think it was me that suggested you join us and i really hope you find the support useful.  I am assuming dad is on steroids and possibly a high dose, as cathi has said already.  i don't know where he is having his treatment but some hospitals suggest splitting the dose and giving morning and evening (some GPs also recommend this) however if you give steroids after mid day it really create havoc with sleep patterns, so if dad is taking them like this try to give them all together in the morning.

Pete - it was good to meet up with you

Love to all

joanna xx