We Talk Brain Tumours

Excellent letter Deli,  dare we hope for a reasonable response?

Regards Martyn.

I meant to put "should not be dealt with" on a light entertainment programme! I'm cross with myself that I didn't calm down enough to proof-read it first!

We probably won't get a response but if it makes at least one person feel ashamed then it's been worth it. Obviously no-one on the whole production team has had any real-life experience of this disease.

This is where I wish "Points of View" was still aired!

Hi there

My sister passed away in September from this dreadful disease and I do come on here fairly often but rarely post.

I read the posts about the wrongful portrayal of the suffering of someone with GBM4 on Wild of Heart last night. Although I did not watch the programme I have also  emailed a complaint to the Chief Executive Adam Crozier of ITV spelling out in no uncertain terms my horror at the way they did not bother to do any research about what actually happens to someone suffering with this. 

Thinking of everyone who is on this journey X

I'm glad you have also written Jo, and to all others who have done so, this is the letter I emailed this morning:

To who this may concern,

Last night I started to watch the above programme but turned off the TV as it was too painful to see that the  brain tumour Gliomablastoma Multiforme grade 4 which is the most aggressive brain tumour with no cure was so trivialised.  My daughter aged just 41 years died from this disease on the 26th September (She was diagnosed when she was 38years) and I just wish that steroids could have held it at bay as was portrayed last night. She was on the highest dose of steroids when she died.  I know that there are so many people of all ages who have died from this awful disease and believe me the ending is nothing like was portrayed last night. It has been 16 weeks since my daughter died and I still cannot stop the thoughts of the last 6 weeks before she died and I am sure that if more research into this disease had been carried out by the producers of the programme it would not have been so trivialised and may have actually raised more awareness and supported the research that has the least funding.

I will be interested in your thoughts as I feel so strongly that last nights programme was very insensitive to the people who are bereaved and more so to people that are suffering from this disease.

Well done Suebeach11.

Love and hugs honey

PEABS XXXX

Suebeach 11

That was a very thought-provoking email. If anyone at ITV has a heart or any sense of compassion, they will reply to you. I look forward to hearing what they have to say.x

Total agree, I am too  angry at the  moment to write to ITV but I will.. I watch my husband die.. He did not just go and lay under the stars...

jenny W

Moving us up for new people

It really upsets me to see that we get new people on a daily basis

Well, its 4 weeks tomorrow since the radiotherapy finished, we were told we should see an improvement in 4-6 weeks and so far...nothing.  I am feeling so despondant, is Rob going to get some mobility and speech back or did he go through 6 weeks radiotherapy for nothing.  There are a few things he wants to do when he can and I am so hoping that he will get enough mobility back so that he can.  Just needed to have a moan, sorry everyone, not a good day today. 

Hi,

This is the reply I received from Channel TV today  

Dear Sue Beach,

"Thank you for your comments on Wild At Heart.  We are very sorry to learn that this drama was so upsetting to you, and would like to express our sympathy for the recent loss of your daughter Amanda. We have passed on your comments to the producers of the drama, Company Pictures, for their information, but we would like to mention that we have had several e-mails of praise for the storyline from other viewers who have also been affected by Gliomablastoma.  Again, our sincere apologies for the upset you felt whilst watching the programme at what must be a very difficult time for you and your family.                            With very best wishes".                                                                                            Channel Television.