We Talk Brain Tumours

Hi Tiggywinkle,

Have not been on here for ages but just logged on and saw your post bless you. Seizures are frightening to witness but as you quite rightly say there is no need for hospital visit for each one. If you feel you can handle the seizure on your own it is much kinder not to make the jaunt to hospital with each one. It is important that you note as much as you can about each seizure-i.e. how long it lasted,any unusual different things you noticed while the person was fitting( isolated parts of the body twitching etc). This will give your consultant added information about what part of the brain is responsible for the seizure. Obviously if the fit lasts for longer than usual or if the person fits again straight after coming out of the other one then is time to call the ambulance. There is a drug called Diazepam which is often administered rectally ( as it is dangerous to administer anything orally mid seizure). Your consultant should give you this info or refer you to epilepsy specialist. A and E is not a good place at best of times and I can understand you wanting to avoid. Hope this helps x

Thanks you,bless you for taking the time to reply. x

Hi Y&Y

Nice to hear from you - I know these are not the right words to say but how have you been.

Think about you lots

Take care

Ann x

Hi Ann,

Thank you for asking. Strange you should today because today (Saturday) is the first anniversay of losing my beautiful Husband. It has been a long year and I feel almost in limbo- waiting with trepidation to know where I am going with very little interest- would probably sum it up! Was thinking today how blessed I am. Blessed because I am Mark's wife and for all we had and shared in the short time we had together. I know many will be married for a lot longer but will never have the close bond or special love we shared-for that I am eternally grateful. I am lonely. I can be in a room surrounded by friends and family and feel alone-as though part of me is missing........then I realise it is. I realise in the new year I need to focus on retaining the strength that Mark left me with-which I am sad to say has been waning these last few weeks. I know the next time I will be truly happy is when I walk into his arms but for now I must live the life I know he would want me to live and not let it be overshadowed by sadness for if I should give up now - all he fought so bravely for will be lost.

Thanks for thinking of me Ann and I hope you are coping as well as is possible. I often think of all you lovely Mac friends who gave and still give such desperately needed support.

Love and Hugs xx

Hi Y&Y

Nice hearing from you - I cannot believe that it has been a year since you lost your husband - sending you a big hug.

Alot of people seem to have disappeared at the moment, Robin, Gayle etc

I know that it is difficult to come back on here - I went away for a while but now feel I can help others again.

We were very similar to you and Mark, we only met in 2002 but spent all day everyday together.  Some people are together for many years but the time spent together is probably minimal compared to us.

I am not suicidle and I am trying to get on with my life the best I can but if I knew for certain we would meet up again I think I would opt out - life in the future just doesn't seem to be the same.

I think about the wonderful holidays we had - Steve was a bit mad (in a nice way) if we were going abroad for 2-3 weeks we always drove from Santander across to Portugal (stopping off along the way) and we would buy a left hand drive car just for the holiday then sell it (hopefully at a profit when we came back).

I miss that so much - we had so many plans as you do when you 'retire' and it has been taken away from us.

In 2007 we sold our property and moved into our American Motorhome (we are called 'full timers') and we were going to go abroads but my reservations stopped us (I don't regret that bit).

We invested the money from the property into a business (thinking this was the sensible thing to do with it). 

When the BT struck and Steve lost the use of his arm, we could no longer run the business as we sold motorhome products at all of the shows all over the country - again not a wrong decision at the time as the business just started to work for us after 2 years hard work.

But in hind sight (that word) I so wish we had of just gone off and travelled around europe and blown the lot enjoying ourselves instead of waiting until we 'retired'.

The business and the money doesn't matter - all that matters is that Steve isn't here anymore.

The essence of this is you have to do it now and not to wait.

Signing off now as the tears are getting in the way.

Take care Y&Y

I always think that some of us could meet up when the better weather comes

Let me know how you feel about that xx

Hi girls,

Just popping in to say hello to all passengers. I am unable to log in on my usual browser for some strange reason and have to use a spare! 

I would like to wish you all peace and comfort  for Christmas and 2011.

Love and best wishes,  Doreen and Martyn XXXX

I wish all on this train journey a happy christmas... For some of us we just look back and say thankyou.  Thank you for our loved ones and the love we had.. Take care all and always look forward.

xx jenny w

Hi all, it has been a long time since I posted but I read every message. I am 16 months on from losing my wife and getting ready for my second xmas without her. She became ill around xmas and new year 2 years ago so last xmas was the worst time for me but this one should be better as I am lucky enough to have found (or been found) by a lovely lady who makes me smile again.

I still feel rather sad at times and I accept that it will always be that way as we had so many years together but I am determined to move on for the sake of the kids.

Take care

Paddy

Hi Martyn

Wishing you and Doreen a very happy time together this Christmas

Take care

Ann x

Hi Paddy

I am really pleased to read your post and see that you have a little light in your life again.

At the moment, I am just taking each day as it comes as I only lost my husband in August.

Last Christmas we had a really nice day together which Steve enjoyed so I am grateful for that.

Take care

Ann x