We Talk Brain Tumours

Hi Y & Y,

Intented suits me fine, in fact the prospect of a blond and in a tent, suits me very fine thank you.

I hope things are as good as with all passengers?

Martyn XXXX

Hi Everyone

I am going to get back into the swing of this again as I have enjoyed reading your posts and banter - but sad for those who are struggling.

Y&Y - blondes get away with murder and it keeps people on their toes that sometimes intelligence prevails!  Horrible awaiting scan results but good to hear you have an appointment which is often more than we and others have had previously - been kept waiting weeks and weeks on most occasions, but that's because there is no treatment for P so I suppose there's no urgency on their part but for us waiting to know the truth it's hard.  Thinking of you xx

Martin, I'm so sad for you, for Becky, for the kids - there isn't much any of us can say which is going to help but reading your post makes me think what wonderful husband and dad you are being - I know I said before that you've got and had some awful decisions just now and I truly hope Becky manages to get on that plateau in time for you all to have the best christmas you can.

Hi Robin, I know unlike me to be so quiet - Peter has needed me to 'be' with him but today he has had the first really good day for some time - I only realise that now, today - thought he was ok last week but just realised that that was only because the week before he was so so ill.  Difficult one to call with the children isn't it?  Has anyone tried advising you, someone from the hospice maybe - they usually have trained counsellors who are experienced with how much or not to tell children - even if they just spoke with you - children do pick up so many things it might be helpful to you to know you've made the appropriate decisions about how much they should be told.  I know my eldest, who was 16 at the time told me she wanted to know everything, so I told her what I thought was appropriate, as there are so many maybe's I chose not to tell her these - only the definites - but it ended up she couldn't cope so I stopped.  However, the other two who were 13 and 15 at the time chose not to know anything - totally stuck their heads in the sand - they all find it hard to deal with which is why I wonder if there is someone at the hospice to guide you all through as I really wish there had been someone for my children.  Not being able to talk about it has been the hardest thing for them I think as their friends can't relate to their situation so won't talk to them - so who do they talk things through with?  Sorry - on my soapbox, but just feeling for you on this particular subject xx

Hi to Ali and Allison, it's always nice to hear from you x

I think CH is thinking about ironing her pinny that Martyn had freshly washed - she'll be keeping him in check Martin, Martyn's been allowed a bit too much free reign recently! 

Well since I can hear P snoring soundly and the tv in the bedroom playing away to itself I'd best love and leave you all - have to say though I am really pleased this thread has re-kindled itself, really good to hear from all you lovely people

See you xxxxxxxxxxx

Mandyr-thanks for thinking of us.Dreading but cant wait for scan results on Thursday. Yes life is suddenly tougher for us but you have coped so admirably with far worse for much longer-you are an inspiration. Thinking of you guys too x

Hello to all,

Mollie,  I have been told that your hubby is not too well at the moment. I do hope that it is only a temporary blip, we send our very best wishes to you both. XXXX

Welcome back Mandy, the bar takings have been well down lately what with you and Miggins away.XXXX

Best wishes to all.

MartynXXXX

Apologies for crashing this vital thread, but wanted to send yin & yang much love while waiting for Thursday's scan results, (she kindly posted on the "stupid things" thread a little while ago).  Fingers crossed.

Apologies again, take care all

Leah

xx

Thought I'd pop in to check if you are all being good.

I've been hearing some steamy tales of blondes in tents and Terry's Chocolate Oranges rolling to the back of the train so I've put my pinny back on and an going to keep the driver in order (or try to!).

Hugs to everyone needing one tonight - I think there are a lot needed at the moment.

Love,
Miggins (formerly CH)

Hi Leah, apologies!!  what on earth for?     You are very welcome, by the way have you got any chocolate oranges?

Whey hey Miggins, lovely to see you,  mines a large one!

MartynXXXX

Hi all,

Ive been reading this forum for a while but couldnt bring myself to comment.  Ive been talking about Breast Cancer and Bone Cancer and Liver Cancer for over 5 years...I always knew one day it would go to the Brain.  So here I am talking about Brain Tumours.  I was diagnosed with 4 secondaries in June...couldnt just have the one eh?  Ive had Radiotherapy and now Im just taking life one day at a time.  Although to say Im scared would be an understatement!  Im glad Ive finally plucked up the courage to post on here.

Love and Peace

Indie x

Hello Indie, and welcome (well welcome isn't quite right but you know what I mean).
Goodness what a journey you have had already. I know you will find lots of support here and often just a chat.
I think we are all scared just show it in different ways.

Love,
Miggins xx

That's what they all say Martyn
XXXX

(A nice easy one to get me back into the ways of the train eh?)