Struggling to cope with my best friends deterioration from brain cancer

  • 2 replies
  • 15 subscribers
  • 93 views

Hi,

I don't know how to start this so ill just go straight in.

My best friend was diagnosed with a large brain tumor a few years ago. Low grade at first but then it changed, she has a grade 3 glioma. She went through de-bulking surgery, radiotherapy and chemo a few years ago. Things were stable until around 6 months ago when her routine MRI showed two new tumors. She began chemo again but this was stopped a few weeks ago, it wasn't working.

Her decline has been rapid, her speech is getting worse by the day and her motor skills are declining. The pain of watching her deteriorate is unbearable. Four weeks ago she  could talk and do everything normally. 

I think I had convinced myself this wasn't going to happen and now it's happening too fast to cope. This wasn't the way it was supposed to be, we've been through so many milestones and have so many memories, but there are so many more things we were supposed to go through together. I am angry and numb and don't know how to process this anymore.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and, although I' was the one with cancer, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    If you don't get any replies here, it might be an idea to also join and post in the supporting someone with incurable cancer group where you can discuss your emotions about what you're going through.

    If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    Sending virtual ((hugs))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi there,

    Firstly I'm so sorry to hear about your best friend, brain cancer is so cruel. I'm experiencing the same thing at the moment but with my mum who has a glioblastoma, somedays I struggle to recognise who she is anymore. People have told me that I just needed to accept that my Mum was going to deteriorate but that made me even more angry . Why should I accept it, it wasn't meant to be this way.

    You are allowed to be angry and you do not have to accept what's happening to your best friend, do not let anybody tell you different.  What you're experiencing is part of the grief process and everything is valid and normal. If you can vent your emotions out to people who understand what you're feeling that could help? Unfortunately nothing can completely take away the pain and anger you are feeling right now, trust me I understand. Remember to lean on your support system at this time and ask for help when you need it.

    I wish had some better advice I could give to you but I just really wanted to let you know that you're not alone even though it can feel very isolating. Sometimes you are just getting through hour by hour and day by day and that's okay.

    Sending you strength and warmth at this time xx