Supporting as bowel cancer progresses

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Hi, thanks everyone for sharing in the forum, it really helps for someone trying to understand how to support

My mum has Bowel cancer and has declined treatment. Until now she has lost weight and sleeps most of the time. However, she is now starting to experience real pain which she is downplaying but I know is happening. My mum and dad have both spoken to Macmillan which has been helpful, however I’m not sure they fully understand how to deal with this phase ( eg they talked about calling MacMillan if in pain rather than go to 111 etc). Mum mum also really doesn’t want to go to hospital

is there any advice about getting ready for pain relief at home?Also I understand there is a form that she can complete to log her treatment preferences for this and that she should keep a copy at home for if they have to call paramedics. id be keen to get this in place so her wishes can be respected. What should be done to complete the form?

thank you