Hi, thanks everyone for sharing in the forum, it really helps for someone trying to understand how to support
My mum has Bowel cancer and has declined treatment. Until now she has lost weight and sleeps most of the time. However, she is now starting to experience real pain which she is downplaying but I know is happening. My mum and dad have both spoken to Macmillan which has been helpful, however I’m not sure they fully understand how to deal with this phase ( eg they talked about calling MacMillan if in pain rather than go to 111 etc). Mum mum also really doesn’t want to go to hospital
is there any advice about getting ready for pain relief at home?Also I understand there is a form that she can complete to log her treatment preferences for this and that she should keep a copy at home for if they have to call paramedics. id be keen to get this in place so her wishes can be respected. What should be done to complete the form?
thank you
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007