cancer shock

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its been a roller coaster so far ...finally saw the oncologist yesterday who said that there was nothing to be done for my husband ..hes had 3 types of treatment which havent worked and the cancer has got worse ...defineately is lung cancer which had spread to his lymph nodes and he has a tumour in his chest which has grown in the last 3 months ..

its seems like we have been stuck in a cycle of nothing ..if that makes sense .....we thought we were speaking to the palliative team when in fact we had to wait for the oncologist to make the decision ...im not complaining about his treatment but sometimes paperwork and decision making can be so frustrating for everyone ....

i know the cancer team have done their best for my husband and i will always be grateful for the care he received from them ..

we knew he wouldnt live forever and we are so thankful for the time we have now although its borrowed time which is slowly running out ...

its devastating but we have to live with it as it is ....we now have clarity in regards to the cancer and what will happen next ..

we are now going to take each day as it comes ..every day is a bonus and we are hopeful that my husband will be here a bit longer than we thought ..

the hardest thing for me has been the feeling that hes dying slowly and i cant do anything to change that ...i know its not the life we wanted for our later years but it is what it is and at least we know now what is likely to happen in the future ......hes decided that he wants to stay at home with me for as long as possible and i agree ...the oncologist said that the palliative care team will liaise with our gp practise about medications that were previously prescribed through the cancer unit ..my husband just laughed and said good luck with that as our gps have not been very helpful so far ...now we wait to hear from the palliative care team or the community care team and then we go from there.....

been trying to get my husbands appetite back as much as i can because hes so frail now ....protein drinks ..meal replacement drinks and i try and cook a dinner everyday that i run through the blender so he can eat a normal meal .....all the treatments hes had have wrecked his appetite and its difficult to find him something he can eat without being sick ....but now hes trying to eat and thats something ..he has pills for the sickness and nausea so it has helped him eat a bit more ..

i have a cupboard full of complan...soups ...fridge full of protein drinks and whatever else he fancies eating ....

but thats what you do for someone you love ...

take care 

sarah x

  • Oh Sarah ,

    so sorry to hear what your both going though , but I’m sure he appreciates all you do for him .

    asyou say one day at a time

    thinking of you 

    Gill R

  • thank you 

    its been hard and we are now waiting for the palliative care team to contact us ...we have an appointment at the wellness centre ( i think its called that ) at our local hospice to talk about counselling and other stuff ...not sure what they are going to say to us or whats on the table ...we are waiting for the community nurse to call us and schedule an at home appointment so medication previously prescribed by the hospital can be transferred to our gp for adding to his repeat prescription and to see if we can get his ensure drinks on prescription as we cant buy them at any pharmacy without a prescription ..can buy some at our local sainsburys when they have them ...

    we are both numb about this at the moment and trying to get into some kind of routine that revolves round my husbands needs is very trying at the moment ..we are trying to go day by day and thats all that matters ..he knows hes dying and worries about me coping when it happens ,,,i worry about him and at the same time dealing with a headcold ..i really really hate november at the moment lol ...

    but saying that ,,it could have happened at any time of the year ..we knew that he was on limited time ...he still gets ratty over small things that wouldnt normally bother him but now i know its the result of the cancer and he cant control that so we just muddle along day by day ...i cherish the days now ,,hes still here and thats what matters to me more than anything ...life is hard but liveable now ....

    take care 

    sarah x

  • Hi greyhoundsrule,

    so sorry to hear your news so sad , but I’m sure you’ll soon get into a routine and take advantage of the good days .

    ive just started going to a wellness class addached to my local hospice , they are lovely people as you can imagine, IVE filled in a form about how Im feeling today and the lovely lady is putting people in touch with me to see how they can help me , IVE come away feeling Im back in control, and get some answers in order to make a decision.

    Sending love and thoughts to you both,

    Gill  x

  • hi briars 

    its 3,30 am and im full of a terry cold as my daughter used to call it lol 

    havent slept yet and sat here drinking tea like its going out of fashion ! 

    had a talk with my husband and we both agree that whatever time is left to us wont be wasted on things we dont want or dont like .....

    at the moment im not keen on being around people and neither is he so everything is normal ....

    i was thinking about what cancer takes from people ....its not just the eating away at the body its the mental toll and the sense of losing control and having to rely on outsiders if that makes sense ...my husband is pretty stubborn and can be quite rude to me and others and i think that cancer has taken away his sense of worth and left him a shell of who he used to be ...at this time he is letting go of things that he really loved to do outside of family and leisure stuff we loved ..

    i understand why hes doing it but it still hurts to see him getting frailer and letting go slowly ...

    hes still the man i married and i love him to bits and always will so its the   letting go bit thats hurting me and him but we cant change it so we go on as much as we can 

    routine is good so far and we are sticking to it as much as possible ....

    i sometimes feel selfish for feeling lost because im not the one with cancer 

    combined with this awful cold im very tearful at the moment and hes worrying about me ..which i didnt want but guess thats part of the whole issue ....

    feeling very philosophical about it all but still grieving if that makes sense to anyone 

    we are putting our affairs in order and that makes it hard to deal with 

    but whatever happens we both love each other and that will never change 

    take care

    sarah x

  • Morning Sarah ,

    so sorry to hear your news , get all the help you can to keep yourself strong and do keep in touch I’ll be thinking of you bothSun with face

  • Hi Sarah,

    I don’t really have anything to add to what you and others have said. It’s all amazing. 
    But I just wanted to send you a hug!! 
    Lallylou