hi everyone
its been a while since i posted on here and its been a bit of a rollercoaster ...
saw the oncologist 4 weeks ago who promptly admitted my husband to the hospital as he felt he was too unwell for any kind of treatment so hes been treated for an infection and put on steroids and some stuff to help clear away mucus from his lung ..we call them the spit shit tablets as they sound very similar to the pills he takes for his thyroid .
he saw the oncologist last week and hes now been offered a targeted drug therapy for the mutation of his cancer....it wont cure the cancer but should hopefully slow it down and give him more time...we are both numb at the moment although i still cry when no one can see me...
my husband is trying to do more for himself although the cancer is eating away at him and he does look frailer now ...hes still got his attitude and we do argue mainly because he gets so frustrated and of course im the one in the firing line ...
our local surgery has not been helping very much as they dont seem to understand what the hospital letters mean in terms of medication for my husband ..its like fighting battles on all fronts with them ...but the macmillan nurses are amazing and are very helpful so thats not too bad
at the moment im having health issues and my surgery has been less than helpful but im coping so far ...i spend a lot of time mentally telling everyone to eff off lol ...worried my mental thinking is going to cross with my actual verbal saying ..but thats my cross to bear ..never knew i could swear so much and with style either ! ........
its hard to face the prospect of my husband dying when we havent had a life time together and he feels the same but we have been lucky in what we have done together so far so i shouldnt complain ...
its the hurry up and wait mentality that drives me crazy ....but i know the oncology doctors and nurses are doing all they can for him and thats all i can ask of anyone ..my kids have been fantastic and that helps ..rest of my family not so much but thats ok ...im used to that
so now we wait and see if the new drugs will help ....the oncologist mentioned chemotherapy as a last resort so life is till worth fighting for as far as im concerned but then im an eternal optimist as opposed to my husband who is a natural pessimist !
hope everyone has a good day today
Hi greyhoundsrule I think we have spoken before. Your post made me smile at the prospect of you swearing with style? Love it! It sounds like it is all very frustrating trying to get all the different parts of services to talk to each other and you not having to chase everyone. That's not the way things should be..I don't know what to say about the prospect of the loss of a loved one but hey hubby is here , frail but OK and he has a wife that loves him dearly who is gona make sure he has all services he needs to keep him comfortable .. 
you keep that optimism.up and also venting at times of frustration because that's OK to do that..Best wishes for now Gailx
