My husband was taking on oral chemo for 5 weeks for secondary kidney cancer and then had a devastating neurological event. It was initially diagnosed as stroke, then treated as encephalitis, then lumbar puncture and MRI results eventually were clear and, by that time, he had made a fairly good recovery so was discharged from hospital. The oral chemo was stopped straight away after the event and as a consequence, he feels a lot better in himself physically. I am noticing cognitive impacts of the event however (more than the 'chemo brain' which was evident before).
Has anyone else come across this? Any advice? I am at a loss as to what to do. He goes for his next immunotherapy next week, but we won't see the consultant till next month. The cancer was bad enough, now this. Feeling very sorry for myself and him.
Hi Optimistic Snail and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like a very frightening event that both you and your husband went through. I didn't have this reaction when having chemotherapy but thought I'd pop on to suggest that you also post this in the dedicated cancer support forum for the type of cancer your husband has, as then you'll connect directly with others who may have experienced this.
I can see that he has secondary kidney cancer but, as we don't have a forum for that, it would be best to join and post in the forum for whichever type of primary cancer he has. I've looked at the information in your profile but I couldn't work out what his primary cancer was. You could either let me know, and I'll give you a direct link to the forum, or you could look through this list.
Once you've joined you could copy and paste your post from here to save you typing it out again.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
