Hello,
My husband was diagnosed with lymphoma last Sept. His had 2 types of chemo that has failed. He was due to go for an auto stem cell treatment. However, because his cancer is still active and growing he can no longer have it. It's been disappointment after disappointme
nt. It is now looking like he will have CAR-T therapy pending approval as it's funded.
The last couple of weeks have been hard, I had to take my two girls out of school early due to the rise in covid cases on the recommendation of my husband's medical team. My daughter who is 11 missed her prom and leavers play amongst other things I feel really sad that she didn't get to experience all that and couldn't get to finish her last couple of weeks of primary school.
Lymphoma has taken so much from us, i'm so angry and low and very tearful, I've lost friends, it's like they don't know what to say to me or just don't want to be there for me which hurts as I will help anyone and now I can't help them as I need to concentrate on my family they don't want to know.
I've been so strong throughout for every one and now I'm struggling and I feel like my husband doesn't understand, he just keeps telling me to cheer up and I can't.
I feel I always ask him how he feels, but he never asks me and it really hurts and then I feel like I'm being selfish but sometimes it just gets too much and I just need a cuddle and he doesn't understand how I'm feeling. In an appointment this week I was told there was a chance I could lose him and he just tells me I will be fine if I do. But I won't he is all I've ever known.
Sorry for the rant I just feel very sad x
